I've just been diagnosed with Lyme disease. I wonder if there is a connection with Meniere's Disease. This has caused partial face paralysis. Any suggestions?
Wow! I am so sorry! I don't think it is, I've never heard that b4. But I am not a dr. What is it like?
I very much doubt there is a link as Menieres is an autoimmune disorder and Lyme disease is an infecttion caused by ticks. They do not appear to be remotely connected.
Also none of the symptons are remotely similar.
Just hoping
I haven't been formally diagnosed with Meniere's. Tests are scheduled for next Thursday, July 7.
I take it you have antibiotics for your Lymes disease. It is supposed to clear up without problems if treated early enough.
What Menieres symptons do you have?
i didn't realise there were tests for it, i thoughtnit was more an assessment of the symptons.
It is a hearing test and a balance test. I already know I have a hearing loss from a test last year and just daily living. My balance is usually ok for someone who is 71 when I'm not having problems.
Yes I have antibiotics for the Lyme Disease. The Lyme Disease has caused Bell's Palsy with partial fave paralysis.
My symptons are a fullness in my head and a stopped up feeling in my left ear. This all came to a head on June 4 when I was driving and my eyes seemed to move on their on. I immediarely became very nauseated and went to emergency. I have have 4 more attacks since then. From googling there have been other people who had Lymes Disease which had been diagnosed as Miniere's Disease. Before all rhis began I had vertigo or BBP
but had not had an episode for about 5 years. Hoping against hope that these recent attacks are a result of the Lymes Disease.
How wereyou diagnosed with lyme? What test did you use?
Blood test
I was diagnosed with Meniere's in 2009. Last year I had a recurrance of the vertigo after not having any for years. My ENT ordered an 'Otic Blood Panel'. It checks for all sorts of things, Lyme being one. I tested positive for Lyme in the initial test, plus in the confirmation test (Western Blot test). Neither my ENT or infectious disease specialist thought it was related to the vertigo, but my primary care thought there might be a connection. But only to the recent vertigo, not to the meniere's. I believe the re occurrance of the vertigo had to do with Meniere's and the Lyme was just a coincidence. I never had any traditional Lyme symptoms, but was treated anyway. The fact that Lyme test is included in the Otic Blood Panel does make you wonder though. Guess it can have neurological effects...
yes, I know. But there are several. Did you pay for private testing (it's really expensive) or did you get a positive on a western blot test? I'm awaiting my western blot results but I read it's not truly accurate. Just wondering which test diagnosed you.
Sorry I don't know which blood test diagnosed the Lyme's. Frankly I was in shock when they said I tested positive for Lyme's and didn't ask questions but apparently Bell's Palsy can be the result of Lyme's since that test was part of the bloodwork for Bell's. I luve in the states and am on Medicare and have good secondary insurance so I don't think I should have any problem getting tests.
I assume you are in England?
OMG...I'm so sorry you have both!!!! LIke Meniere's alone, isn't bad enough!!?? I have no idea how the 2 diseases might be connected, but here's wishing you the best of luck in treating both.
Take good care...
J
From the nuerologist wh treated me in emergency there are two. Nerves hat run clise to one another in the brain. One somehow is related to Meniere's and the other Lyme's. He said he didn't belueve that the Lyme's could be causing the Meinier symptons but still hoping
No, actually I'm a Floridian. I've been chronically ill for 4 long years with no definitive answers as of yet. If at all possible, next time you go in to the doc could you ask what test you had? I suspect Lyme.. But I don't know which wat to go with this testing. If not.. That's totally ok! & I believe Lyme & Menieres very well could be related!
Just taught to a friend who I had lost contact with. She had Tests done 20 years ago that. Diagnosed the Menier's. She said a CAT scan was done.
My apologies for all the typos. Only one eye functioning because of the Bell's Palsey caused by the Lyme Disease
Hello there!
I know this post is old but i feel i must comment.
I had tests in Germany as England don't test accurately for lyme....
I show co infections for lyme and now I'm showing a weak positive on the nhs test for lyme he they still dismiss it!!!
I am currently suffering recurrent sinusitis for 15 months now... i get dizzy and then today I've I've a horrible bout of vertigo come on! My left ear has tinnitus. I am wondering if i may have menieres. My dad has had ear problems over the yrars and he too has vertigo for past several weeks. My mother has had vertigo on and off all her life and doesnt know why and doctors didnt help. I know menieres can run in families ?
Anyway not been back to my doctord yet as its constant battle with the nhs here and lyme. Argh!!! I had an elisa and 1 igg band positive me a me a exposure but i get told no you dont havelyme. I am sick of it and just want to get treatments. Currently seeing a herbalist! I have been left to rot with the labels ME andCFS and bIS over thepast 14 years and now ive got Pots too. P.ostural tachycardia sybdrome! Also can triggered by lyme hence i had the test.
[b]I have removed reference to individual private clinics, which are not supported by UK doctors[b]