Many ears disease

Only kidding, i know what it is and how it's spelt, I've had it since a few months before Christmas, I've laughed about it, cried about it, allmost commited suicide over it but mostly just stayed in my bed, curled up worrying and trying to find some reason for it but it just is what it is, it affects a lot more people in the world than I ever could have known before to some extent or other.

I've stopped eating chocolate(allmost),reduced my sugar and salt intake, never really drank much tea or coffee but that's stopped too, eating lots more fruit and veg and even salads and water, it's just like being on a very special diet appart from the added Mirtazapine, Proclorperazine and other pills I never knew about or even thought of trying to spell before!

I'm just getting over the second attack, the worse ever three months of my entire life in any context imaginable, I cant think that it could be worse than that but it probably will, I didnt think it could be worse than the first time,and it was.

The only reason I called it 'Many ears disease', was merely to shine a comical light on the disorder as once you've been to hell and back there really is nothing to do but laugh and it really was like visiting hell, my entire body and mind and soul and spirit, my very being was under attack.

I'm glad it's over, for now, until the next time, which should be sometime over the next couple of months, meantime I just have this annoying ringing, hissing and clicking in my ear and the neverending issues with my ballance and dissorientation and tiredness amonst other symptoms of which there are many to keep my company.....think I'll write a book about it, if I can concentrate for long enough! x

I no exactly how you feel had tinnitus for 2 years and the vertigo started Christmas first attack lasted 6 weeks next one about 2 weeks get about a week free then it starts again not always severe I'm taking serc tablets , ENT have talked about injections into ear

Investigate having a grommet fitted, plus steroid injection. I had 35 many ears attacks last year ( I call it minions disease!) Had a grommet + steroid injection then few months later had another steroid injection too up. UK NHS, I don't know where you're based but keep a daily diary and note your attacks, length of time etc. Buy the book Meniere Man and the Astronaut. It explains the attacks and helps stave them off! Tell your ENT how bad things are so you can get help. Im on double dose of betahistine, 6 a day plus a diuretic. Really helps and life is 'fairly normal' at the moment. I know it will deteriorate but am enjoying the reprieve! I'm worse after alcohol so avoid it and avoid noisy places. Keep us posted.

I'm there with you! Ours started around about the same time...severe vertigo just hit me out of nowhere. Finally within the last month I haven't had any room spinning episodes...my computer screen and driving somewhat still bothers me. I'm watching my salt...kind of...but totally quit caffeine...doing some smoothies with fruits and veggies I would normally never eat. I take 2mg valium 3x daily, one benadryl, and histamine phosphate drops under the tongue. Something has definitely helped...either that or I'm just getting a break! I'm totally deaf now in my right ear and have that tinnitus...I really think taking out the caffeine has lowered the volume though...I've done so much research on this mess. So here I am...35 and no hearing already in one ear...gonna be in bad shape if my good one goes! :-)

I've been on a caffeine free diet not helped ,cut down on alcohol. I'm taking 3 serc tablets a day.

Suggest you double your betahistine. Tell your doctor you want to, that you've heard that an increased dose is helping other sufferers. Avoid alcohol whilst in unstable phase, honestly it affects your ears so will counteract the drugs you're taking to help. Avoid energy drinks and high sugar products. Rest frequently and close eyes and deep breathe regularly throughout the day.

Thank you Angela I will buy the book and have a read. Yes the injection has been offered to me I am in the UK . I feel dizzy most off the time get really back attacks when it is hard to do anything,

Yes I don't have alcohol very often will speak to my doctor about increasing the tablets, did the injections help you and do you continue with the tablets as well. I sometimes think I need a sign on my back saying I'm not drunk I have vertigo (not worth saving meniers because most people have never heard off it )

I just know that the attacks stopped in september 14, grommet insertion was aug 14, I had 7 small attacks between aug and sept, and nothing since. The steroid injection top up was in dec 14, because I'd had 7 after the op they gave me a top up. Before grommet I used to get split second dizzy spells throughout the day, they're frightening as you feel an attack is impending all the time. 16mg betahistine 3 times a day wasn't enough, doubling it and those little 1 second dizzy moments disappeared. Tinnitus drastically reduced. I get whooshing when tired, I shut my eyes and deep breathe and it calms. I can be at work and do this. I live a much quieter life and turn down noisy public events and get shopping delivered. Lots you can do to help manage this disease. Don't let it rule you, you rule it! x

Glad it helped you thank you for your advice