Massive aura migraine

Brain and nerves
1

I had the worst experience of my life yesterday.

I was rushed to hospital with symptoms of a stroke. I lost my ability to say words and then my speech all together, I was confused, couldn't hear, had wiggly lines in front of my eyes and memory loss. I was in a state of confusion for about four hours

Turned out to be a massive aura migraine. So scary :-(

Has anyone ever experienced anything like this?

2

I thought several times I was having a stroke but it clears after a few days. I am so scared at times and getting reAlly depressed.

3

Hi

Sorry to hear about your experience yesterday that must have been very very scary.

I had suffered migraines for best part of 30 yrs so really do sympathise with you.  My experiences similar to yours were also very frightening diagnosed with hemiplaegic migraines - very similar like a stroke, couldn't speak, couldn't focus on what my husband was saying, and was slumped on the couch right next to him yet couldn't find the words or make any actions to alert him until he just happened to glance at me and saw something was wrong.  He was even more terrified than I was to be honest as he never suffers from migraines and has had to watch me for years and years go through very bad episodes but this terrified him.  Couldn't string a sentence together or think properly and ended up going to bed for over 24 hrs to get over it but made me very scared.

Hope you don't experience it again - not pleasant,

Take care x

4

Yeah this is the first big episode I've ever had and they think it may be linked to the combined contraceptive pill

It was terrifying. I felt like my brain was malfunctioning and there was nothing I could do. I didn't regain my ability to talk and understand people for almost four hours. And then the head pain started

Feel very tired and groggy today. Just hope it doesn't happen again

5

Thanks for your reply. That sounds very similar to my experience yesterday

I was unable to get my words out and when I did, they were jumbled. I couldn't read or concentrate on what anyone said. I couldn't hear voices properly, including my own. I felt like I was in a dream like state. I had memory loss and was unsure who I was and who my boyfriend was

It amazes me and terrifies me in equal measure, what a migraine is capable of doings

Thanks, hope you are well x

Single most terrifying wx

6

Sorry, ignore that part on the end! Phone is jumbling my text up as much as I was jumbling my words up yesterday!

7

From this forum I have discovered many types of migraine with multiple causes but have yet to find any real relief from the symptoms. If anyone out there can offer some hope I would be do grateful. I have had to give up work as a result and miss this part of my life.

8

So sorry to hear it affects your life so badly

I'm new to migraines of this scale. I wish I had more advice to give

9

30 years ago, at work looking at a computer monitor, got tunnel vision, went for a walk "to clear my head" and, before I'd left the building, was collapsed in a changing room unable to speak or stand, or make any kind of communication or action, sobbing uncontrollably.  I was taken to hospital (carried to the ambulance), as a suspected epileptic, and it took about 4 hours to come round.

So, yes, they do happen, though rarely, I think.  I've never had another incident quite like that.

10

I'm glad that was the only one you had to that scale. I never want to experience what I did yesterday. I thought my brain was completely malfunctioning

I didn't know any of this could ever happen due to a migraine

11

Hi again, I have had so many over the last 2 years I am beginning to think it has to be something serious because it is difficult to accept it is all down to migraine. I am just so glad I found this forum, it has kept me from ending it all so far.

12

Have you seen a neurologist?

13

Hi there,

I suffer with hemiplegic migraines my first experiance was 18 months ago , i was working and have all my life and i collapsed terrible headace anyway i felt very weak by the time i got to hospital i had lost all feeling down my right side and went blind in my right eye . It was the worst feeling of my life they didnt know what was up until a specialist came in . It lasted a month the first time i was in hospital 6 weeks . Since then it happens regular not as bad but i loose feeling ive been back in hospital several times . I am now registered disabled it has ruined my life as im only 39 . Maybe ruined is wrong as im alive have a loving family and alot of people are worse off . I take about 15to20 tablets a day . Mine is hemiplegic migraine .

Thanks andy .

14

Hi liz ,

I suffer terrably with my hemepigic migraine i first lost all feeling as a strake and blind in right eye this lasted a month was in hospital 6 weeks . I get them regular and have been in hospital alot . I am now registered disabled cant work and was severly depressed really bad . But please dont have bad thoughts speak to someone you can get help . And you can cope . There is help if you ask tell them how you feel and tell the head aches and depression , you will be ok .

Andy .

15

I too suffer Hemiplegic Migraine and this sounds just like what you had Penny.  Yes it is scary for sure as I have been hospitalised 3 times this year.  I am taking Flunarizine and just started Botox.

Good luck Penny

16

That's so awful! I'm so sorry this happens to you

And everyone else suffering from these

17

Yeah i looked it up and it does sound very much like what I had. My boyfriend told me earlier that a doctor had used that word yesterday so it's likely what I suffered

I am really hoping it was a one off occurrence :-(

18

Hemiplegic Migraine is quite a rare condition and my consultant told me that Flunarizine is the best preventative meds for it.  It didnt stop mine, but it did reduce the length of time I spent in hospital and since I had Botox I only had facial tingling/numbness and bad eye pains.  So at least no hospitalisation, thats an improvement.

You need a referal to a neurologist, to get an MRI to start off with, then they can decide best treatment. 

I hope it was a one off for you too. 

Good luck to you and others who suffer HM on here we are all in the same boat.  At least we know, after we have MRI scans that nothing serious and life threatening is going on, but we also know too well how disabling and painful they are none the less.

19

Yeah. They believe it may be linked to the contraceptive pill I am taking and to first stop taking that straighter away. Then if I were to suffer another episode as severe as the one I had yesterday, they would look at treatment options

Thank you all for your advice x

20

well thats all very well, but they need to be scanning you at least, or did they do that in hospital?

I dont think taking you off the pill is the answer.  Not the best thing for other parts of your life I am sure!