Ive had ME for 4 years now. Doc said it is stress related due to going through a divorce which I took badly. I have obstructive sleep apnea and sleep with a cpap machine. Im getting so fed up of the tiredness now. Dont know what to do to get better. Is there anything at all? Doctors not really clued up on it I feel...Help appreciated...Thankyou.
Hi Godfrey my husband had CFS for just over 4 years and I managed to drag him back to the gps as he had lost all hope in them. He asked if he could be referred to a specialist for m.e/CFS . The gp said no point they can't do anything there's nothing we can give you .( disgraceful comment) but typical. We kept asking saying I would like to be referred . Ok .
Best thing ever. A specialist who listens explains and diagnosis then explains what they can offer. Drugs and occupational therapists. The OT is the best as she tailors her treatment individually to the person and expects him to get back to 80 percent energy levels of what he used to have .
Such simple practical advice a lot I don't get but my husband does.
The gist is don't say I can't do that alter the way you can do it . Look at things from an energy saving view.
And then how not to get stressed cognitive behavioral therapy. Lots more .
she visits him once a month .
So push your gp and get some expert help. It is out there.
Hope you find it .
exercise and weight loss will cure your sleep apnoea but as for the ME it takes a lot longer to recover from.
Richard
There are so many different things that can lead to people being diagnosed with ME that without have a better understanding of the cause, there's not much doctors can do.
Unfortunately, there is also something of a willingness for some people making money in this area to exaggerate their own expertise and ability to help others, even when the evidence contradicts their claims.
My friend who deals with ME, gets her best HELP from her chiro who does muscle testing and an integrative MD who is willing to try so many supplements that can help.....like higher doses of Folate.....she works so hard to try to get her health back. It's a very DEEP seeded issue.