Hi everyone. First of all English is not my main language so there may be mistakes sorry for that. I am 16 years old and i have Menier's disease for 2 years. My doctor said that Meniere's disease is rare for my age. I am tired of fullness and the ringing in my ear. I am posting this because i need some advice i want to live like a normal person.
It's not nice , I didn't get it till my 60ties, go back to doctor get him to send you to ENT specialists
Hi there...I'm 35 and was just diagnosed 3 weeks ago but have been having trouble since last November. If you google: computer monitor triggering vertigo, you will see an article....the second one: vertigo causes/symptoms /treatment /uc Irvine ca. It is a very good read. I have issues with my computer screen triggering my vertigo so that is why I was searching it like that.
Hope its not the computer screen
Yeah...seems to me everyone is different...some get different triggers but for me so far it is the computer screen, driving, weather changes, and sometimes just being in a store...it's so strange. I am doing the low sodium thing...not perfectly but I'm trying and I cut out all caffeine which I believe has helped with my tinnitus. I also take 3 Valium a day...one benadryl and these histamine phosphate drops under my tongue. Something has helped...I think it is a combo of the meds and the weather stabilizing more recently. However I have been having a harder time today but we have a storm system moving in. If I could just get the computer and driving issues fixed...those are major things for me...I work all day on a computer.
I have tinnitus and meniers which causes the vertigo I belong to a support group on Facebook called tinnitus, it is very helpful
Oh good...will have to look for that...
Hi, Can I just add-
I've had this horrid disease since I was 40 (now 54)... My father had it from the age of 26 to the day he died at 78...My partner has had it since the age of 32 (now 55).... His father had it from the age of 28 until the day he died at 75....
It affects us all differently....
It didn't make a jot of difference what I didor didn't do - for the first year I had full blown, lie on the floor, vertigo attacks for 12 hours at a time, every other day - I took pills, cut out salt, saw the top docs, etc.... My dad had clusters of vertigo attacks which lasted 6 months at a time.... Oh and I didn't have a computer then...
Yes MD is fairly rare in 16 year olds but my specialist has seen quite a few 14 to 18 year olds with MD.... just ask to be referred to a specialist to be sure of a correct diagnosis.
I'd like to say that my life with MD has been ok, but it hasn't - I will never work again - have no balance (partly due to surgery) I'm not allowed to drive, and have lost count of the suicidal tendencies because of the "no cure" situation
Contact the Meniere's Society - the have the true facts about MD
That's just awful! I have read about people that are so bad they practically live in their bed! I can't imagine...I thought having to crawl from the bathroom to my bed was the worst! I tell myself that regardless of how bad I have it, someone out there has it worse...
The trouble is it can fluctuate such a lot, i seem to get vertigo attacks in clusters like my dad did, then the vertigo goes away for a while. My partner has random attacks with no pattern to them at all, it's so soul destroying - i know there are worse things to have out there, but this is such a pain sometimes, my life seems to be permanently on hold
I always felt like i was alone with this disease but now i see that its not just me.
There are so many more than you think once you get to looking around!
Yeah I feel like something is coming because of the weather...I have woke up with a headache the last two mornings and the tinnitus seems louder...those are usually signs for me. :-/
had tinnitus for 2 years vertigo started last christmas, went to ENT may and he said i had meniers, trying serc tablets and caffeine free diet if that doesnt work going to try injection into ear, i belong to a support group on facebook called Tinnitus its been a life saver talking to people who have the same
I have been trying acupuncture for 2 months and it helped me a lot. my vertigo attacks lasted 6 or 8 hours before acupuncture after 2 months it decreased to 4 or 5 hours. you should try it too maybe it can help.
My attacks last weeks they are really bad first few days but feel dizzy and as if I'm going to pass out ,then I just feel light headed and have to be careful about moving my head, I'm an taking serc tablets but ENT is on about injections in my ear.
I tried acupuncture too. Not sure if it helped or not. I was better after it, but I think I would have been anyway, as the stress in my life was reduced.
Dear Batuhan,
I am 58 y.o. and I have had my Menier's since i was 14-16 y.o. I suffered all my life and never was able to go to parties because of noise levels. I never attended concerts because of the noise level. I became a diabetic 6 years ago and about three years ago I went on a no gluten, high micronutrient (vegitables), very low animal products, almost no salt, very low grains and almost no sugars except for small amounts of fruit, and of course no alcohol and lowered my intake of coffee and I don't experience vertigo, ever since then but I have the loud humming in my right ear, which is driving me crazy. So, yea, sorry. Life sucks with Menier's but maybe you can learn to handle stress better and try tai chi to help balance life in general. Take care