I have dealt with MD for over 10 years and have tried everything from my DR, Diuretics,sterroid shots etc. I was sent to a specialist in Nashville and I had a sac decrompession surgery and Gentamycin inj that disconectd my balance nerve on my right side. The surg wea 6/16. I have been dizzy,off balance and spacy ever since This is daily all day. Anyone else had this surgery? I am so regreting the surgery. Does this get better? Anyone know?
Has surgery at least reduced the intensity of the vertigo?
Eleftherios S. Papathanasiou, PhD, FEAN
Clinical Neurophysiology
Fellow of the European Academy of Neurology
Dear April,
I'm so sorry to hear what you're going through. I haven't had that surgery or the Gentamycin injection, but I'm pretty sure there are people on the forum who have. I have had vestibular rehab and balance retraining with a physical therapist who specialized in Meniere's, and that helped a lot when I had completely lost my balance after a particularly horrible episode.
What has your doctor said about your situation? Perhaps some Physical Therapy might help?
I can imagine how miserable you must be feeling. I wish you all the best in finding some relief.
Take good care,
J-
I actually started the therapy this week . And it has made my symptoms worse . The therapist told methatvit could get worse before it gets better .
It is different that a true meiners attack I could not function with those . But this is different it isn't true dizziness I am off balance and I have a hard time concentrating . It is dizziness but different from the attacks .
Hi,
I can remember feeling that way, too.....She made me do everything that made me sick and off balance, and many times over! However, I think it was around my 3rd or 4th visit that I began to feel more stable and less nauseous. I also had to do exercises at home, in between visits, which was difficult at first...but again...I think it was around the 3rd or 4th visit that I realized that I was much more steady, and I my stomach was staying where it belonged.
I know how difficult this must be.....Try to hang in there for a little bit and see if it might get better (I know! Easier said than done!) But if it's still getting worse after a few weeks, I'd say you've given it you're best shot and I can't see the point of torturing yourself.
I wish I could be of more help!
J-
Thank you for your kind words .