Have any members had complete respite from all symptoms of this dreadful disease and if so how long has it been since last attack.
Hi Maria. Since my neurotologist increased my dosage of betahistine to 24mg x 3 per day I have had no attacks of vertigo and my tinnitus is quiet enough to ignore. I’m unsure how much hearing loss I have but I was already 50% down before this started. I have a review at the end of this month. I have high quality hearing aids so am coping at the moment. I play squash 4 times a week and do Pilates so my balance is fine. I make the most of this as Meniere’s is unpredictable. I can even enjoy a glass of wine occasionally. I take nothing for granted though.
Hi Maria. I’m going on 8 months since my last major episode. I now believe this is due to a combination of medication a strict diet observation. I’m also using anti-vertigo herbal patches. And I also drink a lot of water.
Yes! It is a terrible disease! I have not, I had the surgery in 2014,it really, helped my veritgo! I do still have dizziness and balance problems and the fullness feeling. I have to have the injections in my ear at least once a year! I, just had the injections 5 weeks ago, I don't think they helped me as much as the last ones did, I will have to go back soon I think! I hope, that yours will stay gone forever!!!
Hello David! Could you please tell me what kind of patches you use? Thank you so much!
Happy to hear that Christine. Yes the Betahistine snd diet changes have made a big difference. Thank you for your reply.
Yes thank you David for responding.
Thank you
Hi Maria. I use MQ Motiin Sickness Patch. They can be purchased online.
Full remission of severe symptoms ( vertigo, nausea, vommitting) for 21 months. Hearing damage not reversible but severe tinnitus reduced to background level.
When symptoms began to re-appear ( ear fullness, unstable tinnitus and mild vertigo) went straight back on high dose Betahistine - 64mg tds - which shut it down again quickly. Was able to wean off beta after 6 months and have remained symptom free for another 21 months!. Fingers crossed!
Approx 70% of sufferers do get better so stay positive.
Hi Neddy0,
A couple of questions - how long ago was your first attack and now you are in remission do you still take a maintenance dose of betahistine? I love to read your posts as it reassures me that we can manage Meniere’s with the right treatment and some luck. It would appear that betahistine doesn’t work for everyone. I have my 3 monthly review with the neurotologist clinic next week and I’m fairly sure my hearing has deteriorated although I’ve had no further attacks of vertigo.
First attack end of June 2014 - full on severe vertigo and vomitting lasted 15 to 16 hours. Unlike many people I had never had any milder attacks previously! First given betahistine (16mg tds) 9 weeks later after several more attacks when saw ENT privately. Attacks only stopped completely after dose raised (by Aural physiologist) to 48mg tds. The advice was to wean off beta once free of symptoms for 5 to 6 months.
I do not take maintenance dose but have stock in hand so that if symptoms re-appear again I can go back on previous highest dose quickly to hopefully pre-empt further trouble. So far so good!
- just discovered this emoticon suffering nystagmus - genius.
Thanks Neddy but will stay on B for s while as its only been 7 weeks since last attack.
Hi
what is this injection you mentioned ? Will it clear the balance problems ?
I have ear fullness and balance issues and constant ear ringing for last one year.
Hi Christine, how long did it take the 24mg to kick in and for you to notice the difference?
Many thanks
Sarah
Hi Maria77273
Meniers symptoms are different for each individual.
For me vertigo attack is less. But Tinitus and imbalance while walking always there. Due to which am not able to do any job for last one year.
Hi Sarah. I’m just looking at the diary I was asked to keep for three months. I made 3 columns of vertigo hearing/pressure and tinnitus with colour coding for good/bad/no change. Straight away zeros for vertigo and I’ve had none since. H/p started to improve by the second week and tinnitus had returned to my normal by the fourth week. Unfortunately I had moderate/severe hearing loss prior to Meniere’s so my normal is different to yours. However I manage fine with hearing aids and my latest test last week showed little change so that’s as good as it gets for me.
Amazing thank you.
I’ve not had vertigo as such, I don’t have nystagmus and I’ve only had 2 ‘internal’ spins (if that makes sense).
The 16mg stopped that but I’m still having some unbalance and tinnitus so happening the increased dose will help me further.
Have you had vertigo since?
Also how do you manage with your balance now? Any tips for me?
Sarah x
Also do you or have you experienced any neck pain with yours?
I get really bad pain/aching in my neck a lot of the time x
No I haven’t had any vertigo this year. I was stable on 16 x 3 but my gp told me to cut down to 8 and that’s when it all kicked again. Hence the private consultation with a specialist so my gp could be guided by an expert. As for balance the neurotologist checked on my first appointment by getting me to walk in a straight line placing one foot directly in front of the other. I could do it one way but not the other so my left side is slightly compromised. I cycle play squash and do Pilates so my balance I thought was pretty good. So I practice standing on one leg eyes shut. Work in progress! Exercise definitely helps.