Microvascular dysfunction diagnosis

Hi I'm 50 this year, and have recently been diagnosed with Microvascular dysfunction. (Cardiac X syndrome/Microvascular angina) usually im a fit and healthy person, don't smoke, since starting the menopause I have gained weight.

I know that I need to change my lifestyle as I get breathless and have chest pain on the smallest exertion, ie going upstairs and this weekend I got out of breath dancing to one song at wedding! It's quite frightening and although I should.know what to do I've had no guidance from my Dr or cardiologist apart from 'take these tablets what has everyone else done to help their condition? Regards Francesca

Hi francesca

There is a group on facebook with lots of us with microvascular angina/cardiac syndrome x.

If you want to join let me know.

Theres an info page as well.

Not many cardiologists know about it.

We have alot of knowledgeable cardiac nurses and professionals in group

I'm trying to lose weight. Park further than normal from front door. I have increased episodes after I have got out of my normal routine and feel run down and it never fails I have severe chest pain. My cardiologist just increases my meds, no further testing or reasons for episodes. It's so frustrating. Good luck, I will pray for you as well.

My cardiologist says that I suffer from micro vascular Angina.

Could you please introduce me to this group on Facebook?

Thanks

Hi Sean

This is the info page link

If you send a message Annette will reply and ask to join the heart whisperers group. (Its secret privacy group).

I will mention it to annette.

Michelle

Moderator comment:I have deleted the links to the images as they went to a site unsuitable for inclusion in the forums. Users can upload images directly to this site, see below for more info.

https://patient.uservoice.com/knowledgebase/articles/402861-how-do-i-add-an-image-to-my-post

https://patient.uservoice.com/knowledgebase/articles/398390-why-can-t-i-use-formatting-or-add-an-image-to-my-p

on the following facebook groups many have both Coronary Microvascular Disease (MVD or CMVD)

& CAS Cornary Artery Spasm

'Coronary Artery Spasms' 'coronary artery spasm (prinzmetal's angina) support group'

 

Hi Michelle,

I would like to be added to the Facebook group - how do we make that happen?

Moderator comment: I have removed the email address as we do not publish these in the forums. If users wish to exchange contact details please use the Private Message service.

http://patient.uservoice.com/knowledgebase/articles/398331-private-messages

In cardiac prevention & rehabilitation i've been encouraged to walk 10,000 steps a day (work up to 10,000 slowly) and only walk on flat surfaces (i.e. avoid inclines) and the pace should be at one that I can carry on a conversation. It took about 6 months for me to comfortably get to 10,000 steps. I'm still not consistent - that is, I do not get 10,000 steps 7 days a week

Are you referring to the same Facebook group as Michelle?

Many thanks

all done

sean

No I coudl nto fidn the one she mention when I searched. These two are other oens I belong to. I have both CAS & CMVD

No I could not find the one she mention when I searched. These two are other ones I belong to. I have both CAS & CMVD.. I flip letters when typing

You wont find it when searching on facebook as the privacy setting is set to secrecy by the admin.

Thats why im having to do it this way.

I am a member of the group

Wow they can prevent anyone form seeiing posts but make the group information searchable for all the people all over the world to find it that suffer from disease.

Hi Michelle

I have microvascular angina, and would really love to join the Facebook group. I don't know how this is now possible if the link was removed?

Thanks

Hi Frances

I am the same age as you. My health changed just over a year ago. I have the same symptoms and issues as you also.

Since your diagnosis, have the cardiologist helped stabilise your condition, or have things remained the same?

Cardiologist often comment that people get better from this condition. But I have found that my medication can stop working at anytime. I'm hoping to join the Facebook group. It's a comfort speaking to other people that understand what you're going through.

Regards,

Hi Frances

I am the same age as you. My health changed just over a year ago. I have the same symptoms and issues as you also.

Since your diagnosis, have the cardiologist helped stabilise your condition, or have things remained the same?

Cardiologist often comment that people get better from this condition. But I have found that my medication can stop working at anytime. I'm hoping to join the Facebook group. It's a comfort speaking to other people that understand what you're going through.

Regards,

hi michelle plz can i join this facebook group i have this microvascular angina nd am struggling with this at the minute

Hi. Il pm you the info.

Hi Michelle

Can you please do the same for me? Thank you