o hunny it sounds awful. I didn't ha e my 1dt till I was 22 and they ruin my life in in a constant fear of another starting. I am petrified of going blind. it's ruining my life with my husband and my kids cause I'm always down crying scared right now I'm lying in bed after a row with my husband I just feel like I have no patience cause I'm so scared x
So sorry to hear that. Feeling so stressed by the auras must be horrible. Ok my auras make me feel like I've been body snatched for 3 days, they make me tired and achy and, if they're left sided they mess up my emotions but I've always felt like they're a safety valve of some kind for my brain when it can't cope any more. It feels like hitting reboot and I suppose I trust that my body must be doing it for a reason. They are strange and can be really worrying even if you're used to them but they always go when they've run their course. x
thank you so much I really wish I wasn't scared of them. I worry it will leave me blind or it's doing some damage to my brain. I feel like my husband and family r fed up of hearing it but I'm just so scared x
Please, please don't be. When I started getting a lot of auras myself I read up on everything I could to try and understand what's actually happening. The migraine sets off an electrical wave across your brain on whichever side it's going to affect. This makes your blood vessels squeeze a bit then relax as the wave goes across your visual cortex and that causes the weird vision for about 30 minutes and then the headache if you get one. So I know it won't take my vision away and I've had so many that if they were going to cause brain damage I'd know by now! I've had both hemispheres go into migraine on the same day and been ok afterwards so I trust it to go as it always does. Hope this is some help, hate to hear of you so frightened by them. x
Oh, Anne...you poor thing. I could not imagine having to deal with something like this as a child. You must have been terrified and so confused. I only started to get menstrual migraines 7/8 years ago. It was 24 hours of intense right sided pain, but that was it. You seem so calm and accepting of your situation. I'm sorry you have had to manage this condition for so long.
thank you so much for you kind words. I'm trying my best I just want to live happily for once xx
The silly thing is I wasn't terrified I thought it was normal. Only when I got older did I realise other people didn't have problems with patterns and light. Actually finally getting the auras was a relief as now I had an explanation of why I still have to iron striped shirts with my eyes closed!
I read a post some time ago from a woman who always had auras with her migraines since she was young. She just assumed that everyone who had a migraine experienced an aura. And, here I am a grown woman scared to be alone, or drive, or work because I had three of them.
The difference being that she'd always had them, had grown up with them and they were normal to her. You had got used to your migraines (which would be frightening to someone who'd never had a migraine) but then they changed to something totally unfamiliar so no wonder you were scared. My scintillating scotoma auras are familiar to me now and are just a part of me and I'm sure the same will happen for you given time. It's a lot to get used to but you will get there. x
Yes. I suppose, in time, mine will be part of me as well. I just find it fascinating how the same event can be perceived so differently by individuals. I am very thankful for this site and for kind people who willingly share their experiences. Without caring people like you and Kimberly, my fears would be unbearable.
aww lovely least we all in the same boat x
I am looking for some advice on the auras I have been experiencing. Many years back I remember getting an odd one. Recently I am having them every couple of days. I am 44 and they were around the time of my period at first so I wasn't too worried as I was linking them to my period. Now they are every couple of days and so cannot be linked to my period. I am now really concerned it is something sinister like a brain tumour. I don't know anyone who has these and when I mention mine you can just see look on face as if to say "really you get flashing zig zags that block your vision". I was hoping they were linked to maybe perimenopause as I am 44 but nothing I have read states that in fact they say the opposite that with perimenopause you may get general migraine without aura so that cannot be it. Any advice or help would be greatly appreciated.
Many thanks
I started my auras at menopause. The weird thing about mine is that I get them seasonally. |In Sept/March and again in March/April. I just had one last week. It lasted about 20 minutes.
The thing is, is that I never get a headache after, just the optical aura.
I do have daily facial pressure that also plugs my left ear and makes me all off balance. Neuro says its a type of migraine. So frustrating to have this awful feeling usually daily that comes on around the same time of day
hello lolasmom when you said you started getting your aura at menopause was that when your periods had completely stopped or in perimenopause . I am 44 still having periods and getting these terrible auras.
I am by no means an expert. All I can tell you is it happened on the third day of a heavy period. When I saw the neurologist, he said that he sees lots of women my age for the first time. This gave me the impression that it is related to hormones.
I didn't have a headache with mine either. Mine struck completely out of the blue. I had never heard of an aura before it happened to me, so while it was happening, I was terrified. I have been experiencing head pressure as well and have dizziness. I actually posted a few days ago about vertigo. I woke up, turned over in bed, sat up and the whole room was spinning. My whole life has been turned upside down by all of this nonsense.
Mine started when I was passed menopause, BUT I am not surprised you are having this in peri. Because mine are just the ocular episode, I feel very fortunate not to get the headache after.Most not so lucky
Staci, from what you explained that really sounds like BVVP.. I get that seasonally too.|Again in the spring and fall.
I knew which ear it was and tried everything to avoid it. |It would last 2-4 weeks until the crystals settled. It is the worst feeling ever. \i finally last spring went for physio for have the testing and then maneuver to put back in place. Not sure why I waited so long.So far so good for this spring that \I have not had an episode There are many videos on line showing how to do the maneauver......but \I would not suggest doing this on your own. The thing is those crystals that have come loose can be from about 4 different canals. Depending on which canal they are dislodged will determine which maneauver is done.Only a qualified person can do the testing to determine this, and then do the proper maneuver. The testing is done with googles, and they throw you into vertigo and watch which way your eyes shake. |Depending on which way your eye shake will determine which canal is affective.
PM me if you would like any other information
Oh, my! I could not imagine doing something to cause the vertigo! Just the thought gives me anxiety. A few people have suggested BVVP. I was gardening the day before and was bent at the waist with my head down for an extended period of time. Maybe that caused the crystals to move out of place. Migraine auras and vertigo...it is too much to handle.
I have no idea why my response was deleted. It didn't have any links or medical advice or anything odd. Basically, I said my migraine auras started six months ago at 43. I am still in perimenopause.