Hi everybody I've been a MD sufferer for about 8 years and unfortunately after only having one attack in last couple of years I'm unfortunately going through it again, I've been taking betahistine since last wk after previously been told not to take them all the time the ENT have now said I Should be taking them ALL the time I'm on 8mg tablets two three times a day, does that dosage seem high enough to other sufferers? Also has anybody else on here tried getting a blue badge related to this illness as I've been told it is regarded as a disability in the U.K.
I take 8mg betahistine three times a day all the time plus 10mg amitriptiylne at bedtime to stop nerves tingling. I also take a paracetamol with my first dose of betahistine before getting out of bed & again at teatime. I would be interested to hear if it is a disability in UK I believe it is in U.S.
My Consultant regards anything less than 48 mg three times daily as little better than placebo. He bases his approach on the research of Prof Michael Strup, Munich, Germany Who has some patients on at least ten times the max dose stated in the BNF. I have been up to 64mg tds and can go higher if needed. Remember Betahistine needs at least a month to become effective.
Good luck.
Hi NeddyO
sorry for my ignorance but does that mean you are taking 48mg three times a day or a total of 48 a day? Just that I've just got back from Dr and have been put on 16mg 3 times a day which obviously totals 48mg a day, thanks for your input
I've been taking 3x32mg since march as previously on 8 and 16mg 3x a day,worked wonders for me,no ear fullness and no attacks since April,went to my ent last month and my earring in left ear nearly back to normal,Need to see ent to up the dose cos gp doesn't go above 16,hope this helps
Hi Steve
Thanks for the info so am I to take it the lower dose didn't really work for you? It's just that I've been reading a lot of comments people have posted and it seems that most are on the higher dose rather than just 48mg per day, I will get in touch with ent and see what they suggest then because if the lower dose doesn't really do much it seems pointless taking them
48mg three times a day and I have been on even higher doses in the past.