Questions, if you had significant digestive issues with your withdrawals, how long did it take before any significant relief, and what were the symptoms. I am right at 6 months, and still having significant cramps and pain. Any response will be appreciated.
Thanks,
David
I still get issues once in awhile. I'm trying to figure out if certain foods are giving me issues now. Ie. More acidic foods causing problems. I usually get pains on my left side only, so I'm going to get my gp to look into it. I find that the smoothie drink helps me in the morning when I'm usually feeling the worst with the stomach pains. How this helps out. Congrats on getting past the 6 month hurdle.
Hope... Not how.
Hi David,I thought you were in Hostpital.
nice to see you back.x
No Norma, if I had thought that it would have done any good I would have. I know that I have no idea what pain is with regard to what you are going through. But i can say that it has been almost unbearable. I had been a little better, but with mirt wd, until you are all the way out, good days are there to remind you of how bad the bad ones are. I really appreciate the thoughts and concerns of everyone. I have been in a dark place for a few days. Today, this afternoon to be more accurate, has been a little better. I send you and your hubby my prayers and best wishes. David
David did you have a cat scan on Friday .i was told you were very poorly.
I also think as far as stomach problems were both as bad.
Im Haveing some Kefir off a lady,it's a live Probiotic,I've been told very good for stomach issues. I also rang the help line at the hospital I'm under,and the head nurse told me Mirt was a nerve blocker,and she tried to get me to go back to 30mg,but I refused. She's getting back to me next week with some help I hope. I left you a couple of messages but there probably meaningless now. I was told you may have had a mini stroke.
glad your back.
I did have a mini stroke. I was to have an MRI of the brain Friday, but had to reschedule it until next Friday as I was too sick to be in the MRI tube and risk vomiting in the tube. Good luck on the probiotic. I have tried several, no luck as of yet. They just give me gas and cramps. David
Just another problem then David. I hope your alright,would you put it down to Mirt?
Norma, since stopping the mirt the first time 1.5 years ago, I have had one thing happen right after another. I decided because of the side effects of the mirt, I would get off them. I talked it over with my doctor, he gave me a taper schedule, which went from 45 to zero in one month, after almost 8 years at 45 mg. The problems started then and I have been in the hospital a number of times, and spent literally weeks in bed sick from one thing or another. So put it down to mirt, maybe. I have had strokes in both eyes, but still had vision enough to drive. That was probably mirt as well. I have a reason to hate the stuff. Well it is getting late where you are, so I bid you a very good night. Take Care Norma. God bless you my friend! David
Same as me then David,I've been on it 8yrs at 45mg. I came off it once easily for about 3mths,then I was taken in Hostpital unconscious and was on a life support,when I recovered consciousness,I was too ill to know what was going on and they put me back on Mirt. I'm now down to 15mg but like you down to GI problems I can't get any lower. So I agree wholeheartedly with you that most of my problems have been due to Mirt. Plus other Meds I've been given over time.
Gosh I wish I could go back 10yrs and know what I know now,things would be so different. You probably feel the same. We'll get there one day David. Positivity the answer. Hugsxx
Norma, do I understand that the mirt wd is what put you unconcious in the hospital?
David
No David,sorry I probably didn't word it right. I had been off Mirt for around 3mths with no problems.
I have Ephesema and I had a chest infection and couldn't breath,that's what made me unconscious,they told my family I wouldn't see the night through,anyway when I came round I was really poorly,to the extent I just wanted to die. They did not give me any of the meds I was already taking for other health issues,they were just concerned with my lungs.
So when I was due to come home,I was like a zombie because one of my meds was similar to Mirt,you can't just stop it,and they had,so they put me back on Mirt to pick me up. And I've been on it ever since.
If they had been giving me all my other meds while I was in there,my frame of mind would have been alright.
I hope I've explained myself better this time. By the way I no way blame the Hostpital there concern was keeping me alive.
2yrs on when I had an heart attack and was taken to Hostpital my hubby made sure they gave me all the meds I was already on ( including Mirt)
and my frame of mind was fine.
I don't know if your like me David but I get sick of trying to find answers to feel better.
Norma, you are right, I do get sick of it. The problems that I was having before all this crap was due to mirt side effects. The first attempt at stopping failed, and left me with a real problem. They had stopped from a 45 mg taper to 0, when I had to go back on it, it was done by my GI doctor, but she only put me back on 7.5 mg., which left me 37.5 mgs short of where I was, so the withdrawals kept going, just not as bad, and after a year of feeling like hell most of the time, I just stopped the 7.5 cold turkey. I would have been better to taper it, but thats water over the dam. I figured I would either get off the stuff, or would need to go back to the 45, and taper down as far as I could, and stay there. I don't know what I am going to do about these cramps and pain. I don't know how much longer I am willing to go before trying to taper up the mirt to a point where the painful cramps stop. I would hate more than you can imagine if that happens, as I have a heart rhythm problem that is aggravated by the mirt, but I will do that before spending the rest of my life in pain that I can do something about. My mother has been on 30 mgs mirt for years, and at her age she is still doing great! I just had a short prayer for you and Malcombe. God bless you sweetheart! Your Friend in Christ, David Norma, I though that I was a strong man, I guess not!
Norma, I have a form of IBS called SFS Splenic Flexure Syndrome. Are you familiar with this? Also, do you have BM difficulties? David
So ended up going to the hospital last night. Stomach issues were too strong. They did a CAT scan which turned up nothing. Original thought was that it might be kidney stones or appendix. Results turned up nothing. So frustrating as I've been making good progress being off the Mirt for almost a year now. Next possibilities is Gall Stones or something similar. Doctor gave me Buscopan for now.....see how that works. I think a colonoscpy is the next step.
Ryan, I only have 6 months, but have had two CT scans, one with contrast and one without. Like yours, nothing. According to my researce, there is as much serotonin used in your GI as in your brain. I wish you the best of luck. Have you lost any weight? David
Hi David. I had no idea about the serotonin levels being so high in the intestines. I have lost some weight and I don't sleep well lately. My wife is the one that seems to hold me together. I think the next step is to look at an ultrasound or colonoscopy. Whatever the case things need to improve for me again. Keep positive.
If you don't mind my asking, your age, any family history of colon polyps, passing any blood? Bright red or black? Any Fever?
I'm 39. Caucasian. My grandfather on one side had colon cancer (at age 92) and my grandfather on the other side had polyps / diverticulitis.
No distinguishing shape / colour /consistency. I had a black stool awhile back. No fever.