Does anyone else experience walking probs I am having heavy legs tingling in bottom of feet balance problems when walk 100 metres or more
Yes, yes and yes! One of the many symptoms of this horrible illness. When it's like that I know it's time to rest well and look after myself.I try and potter about the house and do some stretching. It doesn't usually last for too long these days, maybe up to a week and then it's back to the old physio exercises for strengthening my leg muscles.
Afirmative!
Just like you said and also I just walked around a bit to do the washing and when I got back to my bed I was out of breath and panting as though I'd run a marathon!
It's not always that bad though and I'll message you something that helps.
Agree with the marathon bit, think we go into, is it aerobic mode? Brain not working too well today, anyway the lactic acid build up really hurts!
I'll look up aerobic mode. Thinking about it because it takes us so much more energy to do a little bit physically it probably is a bit like aerobic exercise for us.
How do you know when it's lactic acid hurting and worsening brain fog?
Well I do remember back in the day when I used to do tap dancing, swimming and aerobics every week and remember the "burn" as they used to say especially in the aerobic class, it's very like now on a very bad day climbing the stairs for example.
my toes fall asleep when I walk. pinched nerves? Not sure the cause, let me know when you find out 
Mine is happening everyday well this is fourth day driving me crazy
Thankyou georgia I thought oh god not something else going on it's not allowing me to walk very far it's driving me crazy my toes are locking as well a cramping
Sometimes my feet go between like a wobbly sensation like I'm swaying an trying to balance over waves underneath me lots of other times almost. Daily I'm sitting upright on sofa an my toes on left leg lock an cramp it's horrible sensation heavy arms when I try and lift them so many strange symptoms I've given up trying to explain to family friends although my family esp husband is fantastic, I just don't want to be known as the person who bores everyone going on about herself that's why I find it so good to talk on here as ppl going through more or less same things and can relate
Yes, there's no point trying to explain our symptoms to family and friends because they can't understand, it's impossible because they haven't experienced them.
It's brilliant that we can talk in here and other places.
What do the physio exercies entail?
Yes, and I just fell again. My balance is terrible. Funny, my regular GP doc just told me yesterday how much good it would do me to start some vigorous walking for 30 min per day. I didn't have the energy to explain why that wouldn't work,
Yes. I started having walking problems after a relapse 3 years ago. I now have heavy legs and a feeling of partial paralysis when I walk. Sometimes, I almost have difficulty lifting my feet up to walk. I also have neuropathy symptoms, like tingling, not just in my feet, but sometimes throughout my body. I also sometimes have burning sensations and, occasionally, shooting pains. I had a nerve conduction test done that came back normal. From what I've read, I believe that the small nerve cells in my brain have been affected, causing all these symptoms. My doctor suggested a brain biopsy could reveal a problem. No thanks on that!
i have polymyositis and that is how it effects me too. i am looking into getting a house cleaner and someone to wash my hair; my arms are so tired. I have no family, and most of my friends have died, I have to tell folks if I am going to get help. I hate being so weak and helpless.
I am mostly very isolated, i can't get out much do to the exhaustian. At bed time I am so sore and tired that I pray that I be taken away. I don't have a lot to live for. herumph
I used to be a speed walker and weight lifter, now I can barely stroll down the street. I walk my little 14 pound dog and she has made me lose my balance and almost fall. It is so hard. It is hard to explain to anyone what it is like unless they have experianced it.
The pain and weakness is debilitating. 😭
Awww that's awful made me feel so sad when I read that are you in the uk dee
16 years I was diagnosed with transverse myelitis imflamation of nervous system which affected me for a long time took away the strength on my left side I can no longer run rush jump dance etc I had burning sensations tingling pins needles in all parts of body electric shock like pains in lower back for several years because of what I am feeling now I'm scared I'm having another attack of tm. I was tested for ms but diagnosis was tm
I'm sure we would all love to be able to do some vigorous walking for 30 mins a day sometimes I feel when they say this they just aren't grasping the concept of what we are telling them
It's one of my greatest dreams, to go out walking!