Hi Bethanne. So sorry to hear you have FS...isn't it pure hell. If you go onto the Adhesive Capsulitis/Frozen Shoulder board on here, you will see lots of posts from me with some more background to it all and how I believe it is linked to hormones.
Briefly, mine started with an aching left arm in May, and I noticed other joints/tendons popping and hurting - my elbows and arms were sore, I was so stiff in the mornings I felt like I had turned to stone. I felt like I had turned into a 90 year old literally overnight. I am 50, and had noticed missed periods and knew I was perimenopausal, and probably almost menopausal. I had NO other symptoms at all, no sweats or flushes and was a bit smug, thinking I had escaped lightly, when bam, hit with this terrible joint and arm pain. Went to the doctor, but I still had full range of movement then, and when I described this terrible pain with certain arm movements - almost passing out pain, and feeling sick for am moment, I didn't feel doctor believed how bad it was, and he certainly never picked up it could be the beginning of a FS. I really began to worry I had some awful progressive disease it was that bad, and felt like I was getting no help. Then I noticed in July my shoulder was freezing up more and more by the day, and similar pain in right shoulder was starting too. I could hardly move my left arm at all by September and was in complete agony all the time, no sleep etc. Then I started feeling in in my upper back and neck (probably because I was using muscles trying to dry hair etc, to compensate for the shoulder.) I was actually 'diagnosed' with menopausal tendonitis on the off chance while having a smear done by a practice nurse, who did the subject for her thesis. She made me go to a female GP who was open to her suggestions. Not a lot of GP's know or accept it, but some Gynaes do know a lot about the link between ovarian changes, and the subequent sudden lack of estrogen. In some women it leads to acute and sudden onset tendonitis which if left unchecked, can progress into severe frozen shoulder/tennis elbow/hip problems etc. But it is nearly always the shoulder. Estrogen keeps the tendons supple, and some women are just more prone to this being the worst symptom of meno - and they tend to be women who showed no other symptoms! This is well known in Japanese women (where there is not even a word for hot flushes, as they never get them) and FS is the NO1 symptom of meno. Lots of research needed to find out why that is, and why we would be similar..diet maybe? Who knows.
FS and acute tendonitis is also a well known symptom in younger women who are on treatment for breast cancer, as they are of course on estrogen supressing drugs. So the link is there...but most GP's are clueless. You would think when a women of a certain age went in with FS they would put two and two together...it can't just be us!! Anyway....unfortunately, as you obviously know FS cannot be reversed once it had adhered - but I firmly believe my HRT stopped my right shoulder from getting worse. I went on Prempak-C lowest dose for a month which made no difference. I then asked for the higher dose, and by day three I kid you not I felt changes for the better - AND in my bad shoulder too. I now feel like I am on the 'way down the hill' in this journey instead of slowly climbing up and it getting worse day by day. I dread coming off HRT as I could not face going through this again in a few years, it has been the worst experience of my life, and I thought I had quite a high pain threshold after giving birth a few times!!! But I have been told that after five years or so on HRT, the body recognises that it has gone through menopause, and the adjustment is not so bad the second time.
Just a note...Prempak-C is a conjugated estrogen which is made from...pregnant mares urine. I personally have no moral or other objections to taking it, I would take warthog poo if it made me feel human agai
My advise to you would be to pick a female older GP who knows a bit about womens health, have a chat and and get on HRT asap.
best
Lesley