I have just started rituximab. No result yet. Still on 25mg of metho by injection. You OK on it?
Surely KR is immortal?
Oh, didn't get the joke, sorry. Not very familiar with KR but, drugs, yes... Immortal? He probably is, as is BN, as they're trapped forever on celluloid and vinyl.
Are you in the UK?
As far as I know, 'the weed' is available on the health service now if you can prove you want the cannabis oil for pain relief. Or even if you can't, possibly.
I've been moderated to purgatory. No idea why!
Maybe it was the mention of innocent 'weed' oil that now is available on the NHS for pain relief. Let's see if they moderate this away too!
Hi I intially went to the Dr. because I did have slight swelling in my right pinky and whole hand for awhile. I had been doing a daily workout with push ups planks and burpees and wanted to know if they were damaged. He said it sounded like RA and not injury so I was tested and got the results. Maybe its a coincidence and I am lucky to have caught it early.
Hi Sara thanks for your reply. Your experience sounds like mine. I went in for pinky and hand swelling after what i think is injury from vigorous workouts. Your experience sounds awful with meth. Your on injections still feel terrible for a few days and am in pain. Does not sound promising.
Hi Sia, I will keep you posted. I was referred by a nurse from the UK that took her own sister to this guy. She had been diagnosed with RA but did not think it was so. Dr. Virat is especially good as diagnosing hard cases and finding misdiagnosis. Im hopeful that I will get the right on from this DR.
Haha! Is that true? How come I didn't know. Would it help RA? And tell me is Rituximab working for you?
I want to thank all.of you for taking the time to reply to me. This seems like a great community of support. The more I think about possible symptoms the more I think that I could possibly have RA. I have been having tingling i my hands for a few minutes upon waking, no pain or stiffness but it it still is a symptom I believe. I am supposed to start a new teaching job at the end of August and restart my University work as well. I woukd not think I could do this if I had to start treatment as I know it will take me time to get used to the meds and the stress alone will be enough, nevermind teaching and uni. I am. contemplating telling my new employer about the pending Dr. visit. This really does suck on all levels.
I am so convinced rituximab won't work for me my sister asked what percentage it was successful for. Any idea?
Thks Fire. I'm sure you will be fine! Don't worry too much as you are not alone . I know it's easier said than done . we are all the same hoping for the best .
Huge thanks Sia!!!!!!!!!!!!
Hi there i started with symptoms 3 months ago, when I was in pain in my knees and my leftnknee swelled?....now I'm not in pain except for stiff hands and burning at night only. I have no RF but low CCP I don't want to take drugs either...ruemmy gave me a month on predisolone... Says I have probable RA .... I haven't taken them yet.... Don't want too!!!! I've started on oil of evening primrose meant to help. My ruemmy says though if I take them it could in the eearly stages reset my body and maybe halt it forever.what to do i don't know?
Hi Emily, yeah I have no idea what's going on. I will have the tingling burning for a few minutes upon waking in my hands then it goes away in a few mjnutes. When i lie down at night it seems to come on but its my entire back side of my body head to toe for about 10 minutes. Its almost as it happens only when i lie down, weird. I have no stiffness or pain. I have the usual little pains here and there. I initially went in because o thought my pinky finger was swollen and my hands would feel slightly swollen in mornings but i attribute that to the intense pushupa plank ans burpees i was doing and im sure my form was bad. Unfortunaty, i did test positive for the rf amd a high ccp so thats not good. I absolutely so not want those drugs. I know they have given people their lives back but i feel fine, except for the mental anguish I feel all day wondering if I have this disease. I love that your rheumy says mayb you can stop or turn it around with evenimg primrose i am going to start those today.
Yes it is working for me.
And yes, that stuff helps with pain relief. One of the safest actually. Ask your GP.
OK I will ask my gp. How long did it take for bio to start working? Should I be feeling something after 6 weeks? Its so frustrating not knowing.
Yes. Rituximab has done me grand so far.
Good luck with yours!
Yes, you should be feeling something after six weeks. They say between 4 & six. But you may be a late starter.
Don'tt give up hope!
Please don't make any drastic decisions about your job and studies. Everyone responds differently, both to the disease and to the drugs, so hang in there and wait and see. You might find you can handle your work and your illness together quite well.
There's a fim I saw not long back with Clive Owen and some French woman (name forgotten - Juliette Binoche?). Title something like Pictures and Words. She's a teacher and has RA and she's bitter – a great example of how NOT to let RA affect your life.
We mustn't let our nasty malady make us angry and bitter. Rather use it to grow as human beings...
Your symptoms are I exactly as mine, the entire back side of my body burning except my hands are stiff also. It wasn't my ruemmy who told me to take oil of ebening primrose I'd read a lot about it and heard it was good. My ruemmy gave me one month on steroids...predisolone but I'm not taking them ...at the moment anyway ...he says they may reset my body....I'd be interested to know how long you have had this and how you get on...my started suddenly 12 weeks ago and nothing prior.... Take care x