I am down to Clob once a week and three months of use altogether. Overall I am feeling ok but today I feel a little itch (nothing unbearable) and I think there are a few white spots that weren't there before. Should I apply Clob a little more frequently right now or continue with the once a week? Sorry, I am still a little confused. Thanks!
I'm not surprised that once a week is not enough after only 3 months. Try twice a week. Maybe after a year is it's really calm, you could try once a week.
Thank you. The doctor said at least twice a week but I was trying to use it as minimal as possible. Sometimes I think I am reading too much online and don't really know what to do.
Here is the schedule my doctor gave me to use. 2x a day for one month. Once at night for 2 months, twice a week for 3 months. After that he said if it came back start over. I use very, very little. I use gloves to apply because I don;t want it to seap in more than necessary. After stopping the sugar and drastically reducing my carbs I am down to 3 times a week at night. Always apply at night because that is when your body will let it work. Think about it, your not sitting on it, not rubbing it. Your sleeping. (Hopefully) I hope this helps you.
Thank you. I feel like last week I slipped. I wasn't watching my diet strictly and I used my ointment but was slacking a bit with checking myself and using the coconut oil plus I had sex last night so I think the mix of everything has me off this week. Thanks for the input!
Barbara, I'm a bit confused re the gloves and also the not wanting to seep in more than necessary. Is it your fingers you are worried about getting the steroid seeped into? I never thought about it.
I do use my finger and rub the cream in for a good 90 seconds but I do wash my hands well after.
I also use gloves. I know that a side effect is thinning of the skin and my finger is not effected by ls so I use a medical grade glove with application,
I must be having a brain malfunction lol ..... If your finger isn't effected by the steroid anyway, why use a glove as you are wanting the cream or ointment to be well rubbed into the white patches yes? Feel I am missing something here as I am still learning how to manage this.
Does everyone here wear gloves and I missed the memo?
We all look up the side effects of topical corticosteroids as soon as we get the prescription. But we're using a miniscule amount on a few square inches of unnaturally thickened skin.
Something to keep in mind is various parts of the body have different thicknesses of skin. Eyelids are super thin, fingerpads are thick. We don't need extra things to be anxious about.
That may be true if it is only in the one spot. But mine has spread front to back and down my thighs. So I am using more than perhaps others. Still as little as I can get away with but more than those who only have it "there".
I am not sure what anyone else does. I just know that at only 33 and possibly maby, many years applying this junk I will be wearing gloves as precaution.
Hello everyone
I have had this disease for 20 years & my Dr. has never told me to use gloves & I have to say my fingers are fine. Everyone is different though so whatever works for you. I'm sure if my Dr. thought I needed to wear gloves he would have informed me to do so.
Thank you for your post. I feel like a freak as it is and comments made me feel more so. I'm at a low right now. Food has become the enemy. Don't know what is safe. Especially since I go from ls flare to yeast. Tired of the pain. Scared of more surgery.
Stay strong. I go from accepting to feeling low and scared too. I have cut all gluten and sugar and have lost a good amount of weight in a short time. I was small chested as it was and now basically have nothing so on top of "losing" my lady parts I am losing my chest. I am also a big runner and my energy levels are a little low with my decrease of carbs. I am also being questioned from family and friends about my weight loss.
I am still trying to figure this all out. I am just thankful you ladies understand.
Remember you are not a freak. You are strong and a fighter! We might have to do it in silence but we are doing it. And we are all freaks together! 
I used Betnovate (betamethasone, same class as Clobetasol) over large areas of my arms and hands for many years with no side effects. Except when I quit cold turkey I had a huge year-long rebound flare.
I was at the same point, except unexpectedly started to lose my labia around my clit. They were just melting away and at an alarming rate! I had noticed before that they seemed thin and curled at the top, so I laid off the steroid for over a week and continued to apply emu oil faithfully, spray with soda water and apply Vaseline at night. Things improved and I have had no further melting. No itch, and my labia skin is getting fuller, although the missing parts have not returned. I was not recommended a maintenance dose by my doc, but had been applying one since it seemed to be an effective method for keeping the condition at bay. I tried a maintenance dose again a week later and things got irritated again. It has been 2 and 1/2 weeks since I have applied clob. I have very light white patches that did not fade completely though use of the clob, but only one area itches occasionally and not very badly at all. When it does, I clean it well to make sure nothing is on the skin to irritate it and apply emu oil. I think that the clob is so helpful for reducing a flare, but perhaps sometimes it can irritate/damage the unaffected skin. I check daily for changes and follow all other maintenance suggestions here and I am basically symptom free. The hard part with this disorder is that everyone's case is different.