Hi everyone hope your all ok today :-).
I had a cold 3 weeks ago & the infection went to my lungs & I started to cough up blood which is normal for me, I also coughed up a lump of tissue that was sent to the lab, when I got the results back I was told I have MRSA but they didn't say where. Has anyone else had MRSA due to Bronchiectasis? I have read on some sites you are more often to MRSA with Bronchiectasis & it can be ongoing & dangerous if in the lungs. Any feed back would be gratefully received :-)
Dave.
Oh i just hope you get better soon
Hi Dave Brown,i know when i went into hospital a few years ago,i was tested for MRSA,,what they did was was poke a swab up both nostrels ,now you have me worried ...as ive got problems with nose (both nostrels) blocked and bleeding ,have had it for a good six month now i dont know if it is to do with Bronchiectasis or MRSA,....DOCTORS FOR ME I THINK ....how does MRSA present itself..do you know ...???
Hi Denise, I had MRSA back in 2013 which was found after a routine pre op check, I didn't know I had it & didn't have any symptoms at all. It was found after a swab of my mouth & nose. This time they found the MRSA after I coughed up a lump of tissue that the doctors sent for testing.
If I hadn't of coughed the sample up I wouldn't of known I had MRSA again as I had no symptoms at all. From what I have read 1 out 3 people have MRSA & don't know they have it. The only way to find out if you have it is to have swabs of the nose, mouth, groin & under the arms sent for checking. There are loads of sites with info about MRSA & bronchiectasis like NHS choices, thoracic site & on here.
I would definitely go & see your go with the nose bleeds to be on the safe side Denise, better be safe than sorry. Main thing is don't panic or worry as it could be something easily sorted. Hope you get it sorted soon Denise, let me know how you get on plz.
Dave.
Hiya Dave Brown...Thanks so much for your reply,ive learned a lot ,i dont know that much about Bronc,hiectasis,was diagnosed 2 years ago, and i dont have a great lot of support from my GP, ive just been getting info off here , and other sites,i will be going to docs this week though, and maybe they will sort this nose of mine out..lol....Thanks again ...Stay well.
Hi Denise, I know how you feel with no support from your GP. My GP doesn't have a clue about bronchiectasis & I had to tell her what antibiotics I should be on when I get a infection ! Luckily the SR nurse at the GP practice is studying chest infections & knew all about bronchiectasis so she is going to try to sort things out for me. I was diagnosed with bronchiectasis on the 24th of February this year after a CT scan, I went to the respiratory clinic at the hospital to get the CT scan results & the doctor just said & I quote "you have bronchiectasis in both lungs, I don't have any leaflets here & my printer isn't working" she then wrote bronchiectasis on a scrap piece of paper & said "this is what you have, when you get home google it & you can find out about it, I will see you in 6 months" !!! Thankfully there is this site & other sites that have help me try to understand this condition & what, to a degree, to look out for & what to expect. It's almost like they don't care as it is one of those conditions that people don't see or understand. Other people look at you & think there's nothing wrong with you ! It's just great to know we're not alone & we can all come on here & share our circumstances & our knowledge. Good luck with your nose lol. Take care & keep smiling :-)
Hello Dave, I have broncoectasis and pseudomonas. I think they are part of MRSA.This means all year round chronical infection as those MRSA bacteria are resistant to most of the antibiotics... It is therefore easier to catch other things like for instance the flue, bronchitis or whatever virus...I take twice a day antibiotic wich I inhale since the last four years.. My immunity system has gone down beause of all that antibiotic and now I am seriously looking for a solution. Untill now I had not found a treatment that kills those bacteria but I'm on a good track now to a treatment that could be efficient....i will keep everybody informed about it....
Good luck and I advise you tou eat very healthy in order to keep your body clean from toxic food and lots of exercise....
Hi David, I was diagnosed this past March. Like you , i got the "see you in six months" , and "don't panic when you go on the internet". Thank God I found this site or I would know nothing.
I have no advice for you but I really hope that you get some relief and feel better soon.
Hi again Dave Brown,well went to docs today,saw a doctor i had not seen before,and i was so supprised to hear he knew quite a bit about ,my condition ..Bronchiectasis,and "yes" he did say that my nose problem could be an MRSA bug and gave me Naseptrin to try ,and if that doesnt work he will try something else to try and get rid of the bugs,but at least something is being done, and i might be able to breath at night ,not being able to inflate my lungs is bad enough ,but when your nose is block aswell.....well it doesnt make for a happy life ....but now i have a doctor who knows what he is doing is a great comfort to me,i now dont feel like i have to manage this on my own . Thankyou Dave Brown for all your info.Hope you are well.
Hello Denise, The doctor found out that I have MRSA because of the infections I had all the time. I'm on inhaled antibiotics ever since(2 a day) since the last 4 years.....I don't understand why in the U.K. you go to see the G.P. instead of being sent to a lungspecialist. G.P's don't know so much about this serious disease.....in your case I would go to see a specialist! Good luck Denise and let us know how you are doing, Christianne
Hi murphs, it makes you wonder about some GP's when they treat you like that. Your right tho, this site & the people on here have been a life line that have really helped with advice so yes I agree thank god for this site & the great people on here. Hope you are ok too & you get the help you need from your doctors.
Hi Denise, that's great news about your doctor knowing about bronchiectasis, fingers crossed you will now get the help & treatment you need with no fuss. Let's hope the naseptrin works for you & stops the bleeding, you can't go on suffering like this.
Please don't thank me tho Denise, I'm still new to bronchiectasis & I have learned a lot from other people on here & it's been a great help talking to them so they deserve the credit, if it wasn't for the other people on here who have so much knowledge about bronchiectasis & have passed it on for us all too read most of us would be lost. It's these that deserve the thanks Denise :-).
I really pleased that your finally getting the help you need & hope things start to improve for you. Take care Denise, stay strong & keep smiling :-).
Hi Christiann, sounds like you have been suffering really badly over the years but it's good too see you could be on the right track now with the new treatment, hope it works for you. My symptoms are nothing compared to yours so I'm really lucky.
Good luck & take care, would be good to hear if the new treatment works for you so yes please keep us all informed :-)
Thanks Dave, I hope too this thing will work out after several years having tried many therapies and alternative treatments....
I wOuld love to hear from others how they manage MRSA and if someone has to take antibiotics every day to keep those bacteria under control...
thanks for your kind words! As soon as I have some good news I will let you know...the best to you..Christianne
Hi Christianne, when I had mrsa back in 2013 they gave me a 5 day treatment which was a shower gel for head & body, a cream you put in your nose & a talc for under the arms, the backside & the groin. I had to use these everyday for 5 days then do another swab test. I was told that I would have to do this this course three times & be clear on three swabs tests before I was all clear of mrsa. This time my doctors have just given me a antibiotic called doxycycline which can help with both the bronchiectasis & mrsa. I have a pre op check on the 17th June for a knee op on the 29th June, my doctor has told me to notify the hospital that I had/have mrsa as they might want to re swab me & start me on the wash, cream & talc again before my op. I'll keep you informed as to what happens when I get tested again :-)
Hey Dave I know you wrote this a year ago but I thought it can't hurt to reply back still so I have a very similar problem I happened to get phemmonia recently and once they looked deeper into it cause I was so bad they found I had developed Mrsa in my lungs as well they had my on all kinds of antibiotics but after researching I found there is no antibiotic out there that can kill off Mrsa but I did more research & discover Raw Manuka Honey & scientist are currently working on it being a possible cure for Mrsa so I've been taking 2 1/2 tablespoons of honey a day for 2 days now and I can feel relief already but I did start coaching up blood here & there I thought it was possibly from the honey killing the Mrsa in my lungs/blood but since you had that symptom I'm curious as to why now so my question to you is do you know why you were coughing up blood? & my advise to you if you still have it which I'm sure since it never fully goes away try Raw Manuka Honey you can find it at your local vitamin shop or supplement store it's a bit spendy but totally worth it and don't get the pill make sure it's actual manuka honey k & I know I'm a late replier but I hope you still get this & it helps your the first person online I've found that has what I have and if I come up with anything else I'll be sure to inform you hope you can do the same😊
I am actually writing this message to all Bx patients. Most GP doctors are not familiar with Bx so they don't give good suggestions for keeping it calm. Once in awhile you may find a foreign born doctor who is more familiar with Bx since it seems to be more common in the poorer countries. I happen to have recently gotten an Indian GP who has given me better info than any doctor so far, including my pulmonologist. She gave me doxycycline that finally cleared up my infection. In addition I am using the nebulizer one to two times a day. I feel that it is the most important thing you can do to keep infection out of your lungs. By using the nebulizer and the flutter valve, I feel cleansed and relieved. I make sure I do the nebulizer and flutter valve always before using my asthma inhaler. If you do it the other way around, the saline solution dilutes the inhaled med. I wish someone had told me that sooner.
Most of all, I continue to pray for a procedure for those of us who have Bx and asthma. The asthma meds are so destructive to the rest of our organs. I now have Osteopenia and lots of bone issues. Of course, steroids can harm the skin, kidneys and liver, among others. I am not sure how much it had to do with my thyroid cancer, but now I don't have a thyroid and depend on meds for that function. I try to eat a healthy diet and as little meat as possible. I am eating more organic veggies too.
There are so many procedures out there now for pain management of bone problems like degenerative disks. I just hope and pray that research for lung procedures will come shortly for us, since heart procedures have come so far in the last 40 years. I hope we will see stents or whatever for our underperforming bronchi, if that is what it needs to repair our disease.
I encourage all of you who have or know someone who has Bx to put this in your prayers: a procedure to bring back the function of our bronchi.
I continue to pray for those Biochemists who are developing new meds for us who have Bx, Asthma or MRSA and the researchers who are working in the labs with new techniques to regenerate our lungs. Blessings to all of you who struggle with this disease, asthma and MRSA.