Hi....be interesting to hear people's , coping stratedgies and experiences of extreme muscle fatigue, accompanying cramps and pain,,,something i am finding very difficult to manage at present,,,i take noritrypti;ine, baclofen. and pregabalin....
Hi Guy
I have recently gone onto a completely gluten free diet as I have read that many of the symptoms of CFS can be caused by intolerance to wheat. Worth a try perhaps?
I hope your gluten free experience helps. It did nothing for me at all. I take a probiotic for my IBS issues and D3 and a B12 complex and that has helped me tremendously. I am almost at my pre-illness level for energy. In fact today I painted part of my bedroom. After that, I tackle painting the bathroom. It feels good to be back in control. I am able to keep my house clean, cook every day, and enjoy some family get togethers again. My wish is for all of you to feel better soon. Whatever it takes for your body, Just don't waste your money on all the light therapies and nickel tests and what not that they come up with. Just a great scam to suck sick people out of more money.......
Thankyou for your post Mary....Good luck with your diet...definitely worth a try...i think i have a mild intolerance to wheat but not enough to cause all my muscle symptoms.....it seems like benign muscle fasiculation syndrome.....who knows....keep me posted on your progress...Guy
Graet news Chloe...long may it continue for you.....did you get any of the above muscle symptoms perhaps?
with muscle burn -even after a few stair steps i sometimes use chalky only stomach settlers - they help. otherwise Q10 200mg dose daily and healthy eating etc. making a comeback but very slow and painful. Gluten free didnt help. More ME than CFS?
I thought ME and CFS were both the same thing? ME was once known as Yuppie Flu, don't know why but the symptoms are the same and thank goodness both are properly recognised now. I've heard Q10 is good. Does it help you Andrew?
Thanks Guy. Will do. I'm on day three of a totally gluten free diet. Not noticed anything significant as yet but it's early days and I intend to give it a full month!
Wow Chloe. That's very encouraging. I'm so pleased for you. I have heard that B12 can help. I might try some. How much do you take? I have just been diagnosed with low Vit and have started taking 1000iu daily. Enjoy your painting! I long to be able to go for long brisk walks again and look after my two lovely grandchildren. Just no energy for either at the moment! 😞
Hi MAry, Q10 i fond helps both ME adn HEart so... yes!. My GP goes with them being different as one is more fatigue related adn one is more inflamation type resposne related. It depends on who or what you read and i have tended to stay as an ME sufferer rather than CFS accordingly. and easy way of looking at it is if i do things i react stronlgy to that exercise, CFS seems ot be you are tired already... Also indeed both did come under Yuppie flu and yes basically a lot of symptoms overlap. stilll.. i cling to my lable 
Yuppie flu was known as such because it was that group of "high achievers" who burnt the candle at both ends and often in the middle too... it became split more when elite athletes started coming down with the same thing, yuppie flu then drifted out of use and CFS and ME were born.Similar cause people doing too much and not getting the recovery they needed though for very different reasons with those two groups. sadly i am in the elite type athlete group not the high achiever with loadsa money...
Hi Andrew...how are you eith muscle fatigue/pain?
you mentioning athlete group, i think thats how i brought on fm / cfs to myself , i was on a weight loss mission a couple of years ago and i exercised intensely for two years proper hardcore and im sure that is what started this condition i have aside from other health issues
Sorry for the vote keyed in thw rong place. I get what feels like lactic acid burn in muscles when i over do it, overdoing can be taking three steps on the stairs or walking 100m depending on the day. The next day i am just tired from overdoing and then the day after that i hurt with just physical pain. I find i cannot hold things as long before burn sets in. and indeed get fidgity when sat still for too long and have irratated legs than genuinely i have to go and walk around or my legs would go without me... the burn is like doing 400m flat out or a 10ish min sprint on the cycle but now happens as decribed above... as a47.2 400m 54 for the 400mhurdles 22 for the 200m and 10.7 for the 100m you can see my frustration (yes 20 years ago but was still competing up to 5 years ago)
could have been part of the cause along with other stress (dieting too hard while training and needing food but not getting in what the body needs) other illness flu, chest bugs.. Life stress job or relationship or family, etc Dieting very hard and training very hard are aoften starters for being run down then other bugs then our conditions...
i feel like my muscles are tight all the time , does this happen with you? it hurts just to sit down most of the time
im just coming to terms with the condition, i think i might have had it for a lot longer than i think, do you think it will ever be possible to perform exercise with resonable intensity again?
Hi Andrew. ...having to text with my fingernail...fatigue etc...thanks for your posts...I am bedbound and find it difficult to move without exacerbating neuropathic pain ...burning pain..shooting pain..pinsxand needles....rather challenging existence. ..lol....going to try opiates next week...
Hello Guy, I found a video on muscle tightness as I am becoming less and less flexible and quite distressed about it. It's dr Rowe on Neuromuscular Strain in ME/cfs
guy im sorry to hear that man, what are the opiates?
Hi Guy,
I am so sorry to hear about your muscle fatigue and cramps pain etc. I just take pregablin for mine. I must admit I have over the last few months though been reduced to tears with pain. At this stage I find hot water bottles placed on the offending area helps and relieves a little.
I think it is a case for each individual to "suck it and see" which works best for you. It is such a horrible, horrible illness.
Wishing you feeling better soon.
Take care
Tinax