Muscle Twitches

Brain and nerves
1

Hi, everyone over the last 3 months or so I have been getting more and more muscle twitches.  I know this can be a common symptom, does anyone else get these.  My G.P. has prescribed Baclofen, does anyone else take this and does it work, or do you know of anything better.

Many thanks in advance

Tina

2

yes, think most ppl with ME/CFS have these muscle twitches. i don't take anything for them.

Caitlin

3

Tell my wife about it. My twiches were frequent, every night or afternoon nap and quite major movements. Neither of us slept through them. In those days we were on our own.so never took the problem to the doctor. We knew of no one who had a similar disease or even that other people might have the same.

I also had a more distressing happening every few days. While sleeping I would suddenly sit up with a huge gasp as if I had been holding my breath. I also had a feeling of strong alarm. I seldom had more than one such event on any night.

4

Thanks, it was my G.P. who suggested when I told her that I woke up with my right eye twitching and it twitched all day and I had to tape it down to sleep, and I woke up with it twitching again, awful feeling!  Same applies to my left arm.  Good job we don't all stand together because we could start off a new dance trend! LOL Tx

5

Hi georgeGG, I am glad my husband is not alone.  He too has to put up with me twitching.  As for the holding the breath feeling, similiar happens to me and I end up coughing and like I am gasping for air.  It is really peculiar how this dreadful illness effects us in so many ways.

Thanks for sharing

Tx

6

It is indeed a very dreadful disease and cruel to all the household. It is terribly compounded by the way it is dismissed as a severe and chronic disease and the sufferer blamed. I read with dismay how CFS/ME sufferers are still urged to take more exercise or even do strenuous exercise as one doctor urged me 20+ odd years ago.

Still, some progress has been made with some doctors.

7

St Vitus stole a march on us there. That syndrom can be fatal.

8

I had muscle twitching for about two years and mine stopped after about 3 months of taking magnesium l-threonate.. i stopped taking the magnesium recently and about three weeks later the muscle twitching started to return, so i am pretty sure in my case this is effective. 

9

I wish I had known.

10

I can only imagine George .. at least now with the forums we can help each other with current symptoms and people newly effected by cfs/me

11

with the health reforms & austerity, any progress made with ME/CFS diagnosis/symptom treatment seems to have regressed. certainly, less sympathy from the medical world with a lot more dismissive & 'questioning' severity attitudes sadly.

Caitlin

12

that must be awfull Tina. mine's not quite that bad. it seems mostly in my arms n legs. i call it 'symphony' time when it starts earnest. will up my Magnesium. thanks Rachael.

Caitlin

13

Yes...I read re the aid that magnesium helps with muscles, and started taking same....".twitching" eased up....now have other problem with legs in that the Muscles seem to go numb after lying down for more than 1/2 hour, so now use Support Stockings/Tubigrip, as it increases the blood circulation....don't quite understand all and why, but as other probs that I noted were the increased pain when in air-conditioning, and feel that it does have a lot to do with our oxygen levels in blood stream....many thoughts on this issue, but certainly understand the frustration of always twitching/shaking...Bron

14

hi Tina;  no I havn't tried Baclofen, but would be very interested to know if it does help, as I now take Valium and magnesium....but if one less tab can work, then yes, let me know.  Thanks.   bron

15

very sad. Back to my day of space age virus, take more exercise, you just need to go back to work, it's all in your mind . . . All that hard won progress pushed back 20+ years.

16

That is why I follow CFS/ME. AS in almost everything to do with this terrible disease one feels so helpless. The main helps to recovery are still SLOW DELIBERATE PERSEVERENCE. these three seem common to recovery. There are also  a distracting variety of personal goodies. But these tend to be very individualistic.

17

What the heck...I thought we had moved past this stage...who is telling you that in today's medical field...I went through that stage in the late 1990's early 2000's....talk about regressing....

18

Hi Bronwyn,

I will keep you posted, but after only a few days my twitches do not seem so bad, so fingers crossed.  Tx

19

Thankyou for that...sounds promising...if it continues to improve; I am going to see if available in Austalia, and if so, will ask for same...Bron

20

Oh, yeah, I twitch.  I twitch especially in bed prior to going to sleep.  It is mostly in my arms and legs.  I don't take anything for it.  Sometimes the twitching wakes me up from sleep, but I just flip over and go back to sleep.  I don't think my twitching is nearly as bad as yours.  I would consider twitching a minor problem in my life compared to some of the other things this disease has given me.  I hope you find something that will work for you so that you feel better.