Hey, i have lichen sclerosis since i was a little girl but was only diagnosed at age 19.
-Put LOTS of coconut oil morning and evening
-Find a pharmacy that can compound Traumeel in petrolatum 10%
You can can send my a private message if you have any questions!
Thank you! i am currently using a mix of calendula/lanolin/petroleum jelly on her in addition to clobetasol. I havent heard of Traumeel- will need to look into this, thanks!
Thanks for the clarification!
After being diagnosed with LS in 2015 after thinking I just had thrush it made me wonder if I had LS when I was a little girl as I often had thrush. Cotton underwear has been the only thing I have worn since since. Later when the thrush felt constant I looked at my diet which helped but didn’t address the underlying condition. It has been great to read that fissures can signal the beginning of LS which I had before diagnosis. I am now realising constipation is also related.
For me the way to ease the anxiety is the deal with what the body is presenting and keep focused on dealing with that as best I can and not wish it wasn’t there or would go away. LS is manageable and I just have to be more aware of “down there” than most people do. It’s wishing it would go away that can make it worse as it is kind of like being in denial and then I stop listening to my body when it tells me it needs cream today. Keep looking for the right doctors to support you or get them onto information to support them. It is really important for the medical profession to be aware LS appears in children and not to brush it off as just thrush. (I also have a girlfriend with LS who feels she had it when she was a little girl so there would be more awareness of this to share). I really appreciate knowing this and I wish you well in finding the best support possible for you and your daughter. xx
Thank you so much for your words. I agree, focussing on the issues that are presenting themselves and being as on top of it as I can be for her. I appreciate it