i woke up one morning and found i could not walk, i was in so much pain.
When i went to see my doctor she reffered me to the hospital, and test was done, and i was told i had suspected bone cancer.
After the longest two weeks of my life i was told we think it could be something called PMR, well i can tell you i could not tell you what i felt, i just thanked God .
We all have a story to tell, and as Eileen says we do not die from PMR yes i know we have pain etc, but we can cope with this.
At the moment i am on Mtx, not for pain relieve, but RA and i am having tests done, as they have found modules on my lungs, and also my white blood cells and red cells dont look so good either, so it might be about time i came off it, i am waiting to see the doctor.
So Lynda while PMR drives us mad with all the side effects, we are alive, and i can move now, even dug my garden , and planted winter plant, but suffered next day, but what the heck i am still here, and can watch my lovely grandson grow(waited 10 years for him)
hope you are all well.
Excellent attitude~ Wish I had found this site a year ago!
Thanks Margaret, I needed that little reality check! You are soooo right. We can, indeed, live with pmr, prednisone, and all the side effects. Sometimes it's easy to get into a "pity party", especially when you're having a particularly bad day. But in the whole scheme of things, .....well, life's pretty ok! I'm so sorry you had to go through that "C" scare (sorry, but I don't even like to say the word as it's been a life long fear of mine). That must have been terrifying for you. I can't Even imagine. I'm sooo happy it turned out in your favor! Again, thx for the "kick in the butt"! Lynda
Hi LYnda, I have had my sure of moaning, and when we start on the pmr road it's scary, I found that were I live not many people have heard of it, and it was my doctor fresh from A&E who knew all about it as she had patients with it and knew about GCA.
we have a lot of lovely people here who have more knowledge than any doctor I have meet.
i go to a hospital that is really good regarding PMR and asked my doctor to send me there,, thanks to Eileen during one of our discussions, my doctor did not want to send me as it was not in our catchment area, but I insisted and was really glad I did.
i wish you well.😀
I agree as far as all the information you can glean from this site...far more than the amount afforded to me thru my doc! I think most importantly, it's enabled me to ask alot of questions I may not have thought of (much less, been aware of) to my doc! Being well informed is Always a "game changer"!
Question?? I've heard many people refer to thinning skin. I'm not entirely sure what that means, but I've Really been noticing how "baby soft" my skin has become as of late. On the one hand, it Feels Great, so smooth. But now I'm wondering if I've been "duped" by my own body, and it's really just a sign I've now got thin skin😭. Ahhhh! Good times!
I keep having blisters forming if I get a bruise which can become quite nasty. Also I get purpura and I just have to rub my arm for example and the skin comes off.
I have not had thinning of the skin so sorry unable to help you there, but as someone will come along and help I'm sure.
When I showed my doctor all of the rashes and sores on my arms and legs, he informed me that steroids tend to thin the skin. If I bump myself or scratch a mosquito bite, the blood comes to the surface. Then, if I were to bump on of those spots, it bleeds something awful. I wish I could send a picture! It isn't pretty!
Good girl Margaret, give them HELL! That is the spirit, with all the pain and the Pred side effects, I think I will take the PMR journey, with a smile and a positive attitude, ☺️