Does anyone else have a burning sensation. I only feel this way after being in pants for an extended amount of time. Not much itchy just red,inflamed, and burning.
I have had burning. Im still not sure i have ls as none of my doctors agree. I also have vaginal atrophy which can affect the vulva,so that can caus it also.
I too have terrible burning sensation particularly when I get hot at night. I only ever wear cotton short nightdresses in bed but nothing seems to help. Like many others on this website I find it a very distressing condition to have to live with.
Yeah I used to have the burning sensation when I was initially being diagnosed with LS, this was in the summer and I was wearing a lot of tight jeans at the time (summer in the uk isn't very warm haha), but once I started using the steroid cream for a couple of months and doing some things suggested on this site it started to ease off and I haven't had the burning for a couple of months now
Hi, yes I too used to suffer burning and stopped wearing tight jeans etc, wore only cotton pants, the prettiest from M & S. Having been diagnosed with LS used dermovate cream, stopped using soaps for washing below and used only epidermis cream. My symptoms all cleared, no burning which was great and I became complacent and stopped using the dermovate - big mistake and now back to being vigilant and using cream every other day, instead of once a fortnight. Don't make my mistake and take care x
Used to live in jeans but can't any more. wear lots of skirts and leggings now. Bought some jeggings in M&S but they're as bad as jeans. I can wear them (and one particular pair of jeans) if I know I'm not going to be sitting down, but if I do sit, there's too much pressure and I'm sore after. Shame I really like the look of them. Ho hum... I'm a lot smarter dressed than I was before LS, skirts were only for parties then.
What other things did you do?
Along with the steroid ointment every other day, I use dermol 500 lotion to wash with, which was prescribed by my gp. I've also been using coconut oil when I feel discomfort and on the days I don't use any steroid cream. I'm also going to try the baking soda spray, but I haven't started to use that yet. I think it's mainly trial and error with this disease, it's best trying one thing at a time and seeing if it helps. I've been using coconut oil for the past two weeks and have found it really helps stop the itching, so I'm going to stick with using that for the mean time
I had burning also but treating it with steroid helped. Also, if I start burning, it's my signal to go to a better barrier, such as Vaseline, until my skin has healed. Seems I need a very effective barrier when my skin goes to that level of inflammation
Any specific brand?
The coconut oil? I just buy organic extra virgin coconut oil, I think that's the best to use on skin, I've also heard people use extra virgin olive oil as well.
i had the burning, but avoided tight jeans, horse riding (nearly broke my heart), hill walking or anything which caused friction or sweating, all soaps , bubble baths or anything other than lukewarm water down below. I also found it helpful to rinse my (boring white cotton) underwear after machine washing till the water ran clear. However, it did all settle down eventually, now Im back riding and hill walking, and in my jeans. Its a matter of being diligent with your steroid cream and being careful to keep up your maintainence schedule. Also, it can be worth using thrush cream occasionally, as thrush just loves LS damaged skin.