My mother was diagnosed with severe actute Pancreatitis last month. Until then I had never heard of this condition. Mum was admitted on the Monday with severe abdomen pain and vomiting. The hospital quickly diagnosed Pancreatitis, at what stage was unknown. They immediately put Mum on a drip and pain relief although Mum said the pain relief was hardly touching it. Mum then had an x-ray and was then admitted to a ward. Tuesday evening she was admitted to Intensive Care as the condition had got a lot worse. By Wednesday afternoon Mum was placed on a ventilator as lung complications had started. By Friday Mum's kidneys had started to fail and the lung condition was very much worse.
Mum died on the Saturday - only 5 days after being admitted due to multi organ failure.
The only previous symptom Mum had was 9 days previously she had bad pain in her abdomen, she went to bed with a hot water bottle and the pain went. Until that fateful Monday, Mum had no other pains/symptoms.
More people need to be made aware of this disease. Perhaps if we had more knowledge, as soon as she received the first pain 9 days previously, we could have prevented her death ......
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My mom was addmitted into hospital with pancreatitis back in dec she too had multiple organ failure and then died due to developing septicemia whilst in hospital all of this was caused by gallstones and i feel thatr when you are diagnosed with gallstones then the doctor who diagnosed you should make you aware of the severity of complications that can occur instaed of just putting you on a waiting list and making out as though you are just waiting for an ingrowing toe nail to be taken out. if we had have known that gallstones could cause acute panceatitis and then death we would have gone private and paid for an immediate operation, and i think it is appauling that we were not given the option .
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The same thing happened to my father, although he was under the hospital for 13 months waiting for a gallstone operation to cure his Acute Pancreatitis. He was admitted to hospital 3 times before the last time when he died of multi organ failure. Once again the NHS made it seem as though he was waiting for an operation that was not important and had we known we would have paid for private treatment and he would probably still be with us today.
Last year I myself was diagnosed with Gallstones and immediately being a member of BUPA I was taken in within the week and had my gallbladder removed. I am ashamed to say that our NHS system are failing us every day when they cannot give this minor operation which is so important to save peoples lives. The NHS are denying responsiblity for their negligence in the death of my father.
I had an acute severa attack, I went to my doctors and they just said I had been overdoing it (as it was xmas), and told me to get some inidgestion relief. I told them that this was far more painful, and that I hadn't been drinking, they wouldn't listen. Later that day I collapsed and was admitted to A&E. I lost 80% of my pancreas and was told I was very lucky to make a good recovery, however I can't help but feel that my doctor should have made more of a thorough investigation in the first place. I was lucky, others may not be so lucky. Why aren't doctors more aware of this condition?
I agree. As a nurse myself working for the NHS, I whole heartedly agree that the NHS appears to have failed patients from the experiences written. I always treat my patients as if they were my parents as who knows one day they may be. It is very frustrating to have to watch this happen as us meer staff nurses have no power to do anything.
hi my dad died 8 weeks ago from acute pacreatitis, it turned out that he had gallstones, my dad was in icu for7 weeks, by the end he was a painfully thin but swollen man that could not move, speak or think clearly. the damage done by the pancreatitis was horrific and this needs more research to find a prevention.
when my dad deterioted in the high dependancy unit and the inflammation went to his brain he acted strangely and agressively. one nurse told me she thought my dad was having alcohol withdrawal, i had to defend my dad by saying he was not a drinker and was usually a gentle man, they refused to sedate him without my presence and my sister and i held him whilst they did it, i am disappointed that staff did not act to us saying my dad was acting strange and not coherent the night before, the nursing staff made it clear they thought my dad had committed an offence, whilst drs told us it was due to the inflammation on the brian and my dad was not responsible for his actions, this added to an already stressful situation for my family and of course dad,
i find it hard to forget the pain,suffering and delirium my dad experienced. i am only glad he is no longer suffering.
I was admitted to a&e 3 weeks after having my son by ceseran section at the age of 19. The pain is indescribleable by far the worst pain I've ever experianced! I was in a&e for 4 hours before being sent home being told the pain in my back was the epidural I had and told to go home. I felt like a stupid little girl wasting there time, I went home slept all day and felt a bit better. Within 24 hours the pain was 1000x worse than the previous day and called another ambalance. It was quickly diagnosed as acute pancritius secondary to gallstones. Why it was not diagnosed the day before I don't no! That mistake could have changed everything but thankfully it didn't. I was admitted to a ward for a day and quickly got worse and the diagnosis was now necrotting pancrititus, I was then admitted to ITU for 5 weeks, I had a sirs response (where the organs slowly shut down) my lungs were drained my stomache drained, NG feeding tubes, central lines, morphine pumps, gas blood lines, put on an oxagan mask fixed onto my face. The staff in ITU we're amazing and I'm so grateful to them. I'm currently waiting to have my gallbladder removed and psydocysts drained.
This is such a nasty disease and has no awareness! I hope that the medical team that turned me away will never do this to any other patient! I'm convinced my age and otherwise good health helped me get through this. Let's just hope the medics can recognise this early on.....
My husband passed away on 1st December 2014 from acute necrotizingpancreatitis having only been taken Ill on 28th November 2014. He had in the past suffered from (what he thought) was just indigestion causing wind and pain, perhaps this was an early pancreatitis warning. He had no gallstones, nor was he an alcoholic and also followed a largely healthy diet. There is definitely a good case for an awareness campaign. This is a disease that I had not heard of before this very sad outcome.
Very sorry for your loss. I pray that you find comfort and peace in the coming days and new year.
My mum too was fit and well before developing acute pancreatitis suddenly 3 weeks ago. She was diagnosed very quickly once in hospital but deteriorated so quickly that the hospital turned off life support only 5 days later. No reason, no explanation - the doctors just couldn't give me answers. She had no prior symptoms and she died from multiple organ failure. Its so sad and shocking and my heart goes out to you all.
So so sad for your loss. Its not easy. My dad passed away in May 2012, like your husband no sign of any illness just heartburn. He was admitted on the Tues evening and died of organ failure on the Fri. Such a terrible shock. We miss him terribly...all caused by acute pancreatitis.
I am so sorry and registered so that I could tell you so.I've lost both parents recently from cancer and it's absolutely heartbreaking my prayers are with you and your families. My sister has chronic pancreatitis and has survived 2 bouts of acute pancreatitis twice,once sepcis.she went into cardiac arrest once it took 8 minutes to get her back.she was in a coma for 2 weeks.we are very close and I didn't leave her side.thank you for sharing your stories.I have gallstones and will act promptly should any symptoms arise,and will watch my apparently very lucky sister like a hawk.
Thank you for sharing- we are going through this with my brother now. Exact same symptoms. We are on day 11- he is still fighting. Definitely was not aware of anything like this.
I am so very sorry to hear about your loss. Yes, more people need to be aware of the signs and symptoms of this disease. It is a daily struggle just to eat food. Please take care.
I know how horrible this illness could be, I myself been dealing with this problem for almost 25 (Im just 27) all my life I've been trying soooo many diets due to always having pain in my stomach, I lived my entire life thinking it was gastritis due to eating junk food( I pnly age what my mom gave me). When I got older and decided to turn vegan because I couldnt even drink water without hurting I still when to the doctor in pain and always got the same answer - stop drinking!, eat well, eat! If you dont it ypur stomach will hurt( total opposite) all my life people are been telling me its my fault that it hurts because im an alcoholic( can't strand alcohol) so when I finally weighed less than 50 pounds and theres was more grease in my toilet doctors told me it was due to me recuperating from having a baby......I looked super sexy like a skeleton, I finally found a doctor who finally told me it was genetic, not my fault but also it is too late after almoat 25 of damage to my pancreas and now it was just showing the results of no information or treatment for this illness, some other doctors told me if you want to live more than 3 years stop drinking, even I had a doctor who told me well you will die like in 3 years because of all the damage and because you dont have the money for ant type of treatmwnt because they are expensive you know so just eat healthy and enjoy your days......if it hurts people dont settle for pain killers and good diets, love youself and look for answers we know when something is not right.
I feel the pain of every singles person here, I am so sorry for the people who lost family members to this.
And most of all it kills me that people still dont know what pancreatitis is till this day, we need more awareness and see how we can help others.
Because I it is not just they pain is that if you have it is to learn how to live and deal with it in a daily basis, it is hard and it can take away your life even before you die.
Love and hugs to all you people.
I lost my wife at age 49 3 months ago to acute pancreatis ,she was admitted on the Sunday with vomiting and severe tummy pains and was in for two weeks and was we were told doing ok and it was gallstones that caused it two weeks later on the Saturday my wife told me during the night her pain was terrible and when I got to the hospital in the morning she was having trouble breathing and during the two weeks in hospital she blew up around the tummy very large but they still showed no concern and said she was doing ok ......I had to leave her at lunch time as no visitors during meals so sat in my car .....while I was away she had seen the doctor and text me to tell me and said she would tell me what he said in 30 minuets when I went back but all was ok .......I went back 40 minutes later and they were not letting anyone on the ward and all the curtains were drawn in my wife's bay .....as I went to walk to her a nurse stopped me and took me into an office my wife had got up to go to the bathroom and collapsed and they could not find a heart beat they got her breathing again and put her on a ventilator while I was in the office and not allowed to go to my wife her heart stopped another two times and then again and the doctor said it was no good .....I asked how long they could not find a heart beat for and they said 20 minuets so I obviously knew it was no good ..........my wife died within 40 minuets of my leaving her .......at the autopsy cause of death was general perinititis and
Acute necrotising pancreatitis , heart failure .....for years she had a poorly tummy and was always taking paracetamol and busopan ....when she went to our go he said she had an hiatus hernia witch when in hospital the consultant said she shows no sign of one at all and find not have one .........it looks like she had gallstones for years and was misdiagnosed ......a horrid horrible waste
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I had this same thing happen in November 2017. Curious how you are doing today?