My One Year Since Getting Mono Update

Hello all! I wrote a post about a week ago but I had intended on doing one on this day for awhile now, so here goes.

Spring and Summer 2017 I had been pushing hard. I rock climb, its my passion (I currently work at a gym doing instruction and other things.) It is a very demanding sport, but I love it. Anyway, I was climbing about five days a week, often outside, in increasingly hot conditions. In July I started experiencing a weird sensation in my throat once every few days. A weird, vibrating feeling that almost felt like I was gargling. I'd never experienced a sensation like it. Thought, maybe its a muscle spasm or maybe I'm getting sick. Now I think it was the virus incubating or something.

August 1st, 2017. Its hot, there are wildfires messing up the air, I'm out playing disc golf before work. As I get to work I feel like my heart is beating faster and more noticeably than normal. I go in the cooler to cool off (grocery store) and feel slightly better. Over the next few days, I get dizziness, flu-like feelings, a sore throat and occasional bouts of a brief racing heart. Tacking it up to the flu or something, I press on. I go on a trip to Canada that I'd scheduled months before that I'd been looking forward to. Climbed for four days despite frequent bouts of dizziness, faintness, exhaustion after climbing. August continues on and I continue to experience intermittent symptoms like this. I go to a Naturopath and he thinks I have a combination of allergies and a low grade virus. I get essential oil blends for immune health.

September, sick feeling at times but still taking climbing trips and going to the gym frequently. October is the same. End of October I get a racing heart at work and feel panicky, fluey, unwell. Halloween I drag myself to the local climbing spot and manage to do my most difficult route ever, knowing it'll be rain for months after that day. It takes so much out of me I'm severely exhausted. I make an appointment to a GP and get tests done. At first all they can find is my blood pressure reads a bit high. I insist I get tested for mono because after scouring online its the only thing that roughly matches my symptoms and duration. A few nights later I wake up feeling very flu-like, heart racing, feel panicked and unwell. That morning I go to an urgent care, who have me go the the ED. I get my chest x-rayed and get an appointment with a cardiologist. I eventually get to wear a holter device for two weeks that takes readings of my heart. That came out normal, they said. Chest x-ray normal. They prescribe me a low dose medicine for blood pressure which I take for two rounds and then stop. A few days after the ED visit I get the results that I have a recent EBV infection and I have mono. I am relieved to have a diagnosis. I am granted a week off of work and then reduced hours for several weeks after.

The next few months I experience all manner of symptoms, I make it to work all but a handful of days, and I experience gradual, cyclical improvement.

On New Years Eve, I go to a movie with my girlfriend and almost have to leave because the dark room and loud noises from the theater overwhelm my system.

Mid February I wake up weak and lethargic, yet manage to get myself to an endurance climbing competition at my local gym and get second place out of over 100.

March I go on a five day trip to Bishop, California to climb. I am nervous to be away from my girlfriend and be camped out in the desert in case I start feeling ill out there. I feel very flu-like on the long car ride over and have visions of asking my friends to drop me off and let me catch a plane home. But it passes and I commit to the trip. I am weaker than I used to be outdoors but I still have fun and stick it out.

April I get engaged. I have mostly good days in April.

May I go on the Whole 30, eat very healthily for a month. I also quit my old job and started at the climbing gym. I feel mostly good this month too, just a few moments in a few days a week where the flu-like feelings come into my head.

June I eat crappily after all the diligence of May. I feel like my climbing performance is almost back to where it was the previous year. The one big bummer is I'm noticing I have a mysterious allergy in my living room of my apartment. We try everything, carpet cleaning, dehumidifier, expensive purifier, fans, cleaning every inch of the wall. Landlord swears we shouldn't have mold, its not an old building. No sign of major water damage really, and no one feels anything but me. I lived here for almost five years without this sensation. Its like mono exacerbated my allergies.

Then July. Fresh off another four day climbing trip, I continue the high pace. Its summer, its heating up. On July 4th, after ten days straight of climbing, I start feeling rather bleh. I try to take it easier, but it seems like my high pace and lazy diet is catching up with me. One night I wake up middle of the night with the malaise, which hasn't happened since like December or so. We have a heat wave mid month, and one day after work I'm driving home, its so hot and I feel so stressed, and I get the racing heart feeling again for the first time since November or December. Needless to say, I'm discouraged. I'm worried I overdid things and in combination with the heat suffered a major relapse. I call in sick one day in July, and barely make it through a couple others. As I realize the potential severity of what has happened, I scale back my climbing like crazy. I know it sounds crazy to you guys, but the longest I had gone without climbing this whole year was 7 days back when I first got diagnosed. The doctor had checked my spleen and said I was okay to exercise. So I'm back on the horse of eating healthier, and resting more from climbing than I have all year. The last two days I've felt a lot better than the previous three weeks. I'm rally hoping its just a bump in the road.

So as you can see, I've lived a pretty functional life this year, though I've had at least some symptom of this virus almost every day. It hasn't kept me from living life, but it has given me a lot of suffering and stress. I think I'm finally understanding the need to take it slow and look into the future, that I will have years ahead to give things my all, but I need to scale back if I want to be rid of this thing for good. I believe that I will get over this thing for good. I appreciate all on here who have given me encouragement. Anyone who has a question or comment I'm happy to talk to.

Thank you,

Nick

Hey nick,

It’s beautiful you have a passion, and im not sure how old you are, but for sure keep working hard and keep climbing because if you really love climbing then you can get really far.

Overall I don’t think that you climbing since the beginning really affected your setback right now, because you kept improving a lot over the months, but maybe you did overdo things recently, and got a setback, I do want to reassure you, it is scary I know, but I believe you will bounce back, and it can take time for you but remember it’s just a dip and a setback and your body will bounce back from it. 

I first got sick at the end of January, back then I didn’t have to miss school, and in February it improved a bit, March I started hanging out with friends again, April I started playing a bit of badminton in PE with my class, (without overdoing it though) and skating the ramps a bit. And in May I felt about 70% healthy but it all came crashing down and for the time since late may I have been getting worse and Im not improving at all and I am getting worse and feel worse than I ever have, so I’m really worried.

I am really worried I’m not going to bounce back from this. So I think that you should just take it easy and relax until you start getting back on track again. 

Thanks man. I was 27 when it started, just had my birthday this July so I'm 28. Yeah you make a good point, I did improve even with activity, but there were days I'd do it and feel good and right, and days I'd do it and feel breathless after each go and I think its those times that may have worked against me. I'm definitely not as bad as I was back in November and December, but really feel l like the thing went and reactivated on me. I'm hoping I turn that corner soon. My advice to you, at least my philosophy on things, is to keep moving in some way. Even if its just a short walk outside of your house, get out and catch the morning rays of sun. Also, all the worrying can definitely compound things. I found when I looked up stories of long bouts of EBV and CFS, it was depressing and full of people resigned to their conditions. But when I looked up, say, glandular fever rock climbing in google, I got on climbing forums of climbers talking about having mono, some for a year or more, who overcame it and still do the things they love. I think the cfs and mono forums tend to draw people who are chronically ill, but there are just as many out there who recover even after long bouts. Never give up hope.

Hi Nick,

wow I must say I am impressed that you managed to keep climbing throughout this whole thing! Clearly you are a very determined person and you don’t give up easily. 

When I was at my worst even thinking about going out for a walk scared me. I could barely walk to my washroom without getting dizzy, winded and feeling like my legs were going to collapse. Slowly though, I started to go out. At first just to the park to sit on a bench, then eventually a shorter walk, and now I can go on a decent 20 minute walk and feel not too bad afterwards. For everyone who is going through this, I think it is important to start building up your endurance very gradually and slowly so as not to push yourself too hard and go into a relapse. It can be difficult to give up the active lifestyles we had before, but the better that you take care of yourself in the early stages, the better chance you will get back to that lifestyle soon. 

Thanks Nick for sharing your story, it was definitely a more positive one and I know it definetely inspired me to get back on track. I hope this setback of yours doesn’t last too long but from your story it seems like you are a fighter and I have no trouble believing you will be back on your feet soon.

take care, 

Dominika 

Hi Nick,

Its is such a strange virus, when I get a little bug it feels like mono symptoms again.

I have heard it hides in B Cells and it makes me wonder if the immune system finds the viruses that are hiding and in that process we have mild relapses. Who knows with this virus.

Awe thank you, I’m glad I can be a source of encouragement to someone. Yeah I never really wanted to let this thing get me down. I think initially I should have rested a lot more and I underestimated it, but throughout the months climbing has been a source of healing and mental health for me. What are things like in your journey?

Hey monotoo always good to hear from you. Yeah I had read something to that effect somewhere. I’ve been taking this Monolaurin stuff lately which is supposed to be able to break open the lipid shell that the virus hides in. It has a lot of great feedback on reviews online regarding ebv.

Yeah I feel like it’s somethihg that you subdue but its still got embers burning and if you get another virus in you and let’s those embers kind of fire up again. The longer you go and not let yourself get sick from other stuff, those embers finally burn out for good. Hope you’re well, thank you for the kind words.

I had symptoms of Mono probably stretching back even to December but it came on so gradually I never noticed anything was really wrong until it really started to get bad, which was around March. I caught a horrible flu and since then everything was off. I developed strong anxiety, felt super sad for no reason,  had a weird off balance feeling like I was just going to fall over any second and felt sleepy after doing a lot of exercise. Through all this I kept going to school because I had blood tests done and only thing that was off was low iron so we assumed my symptoms came down to that. Eventually I just crashed in May and didn’t go back to school for the rest of the school year. Luckily sincd May my physical symptoms have only gotten better and not worse. I would say anxiety is my main issue right now that I am not so worried about my physical symptoms. This virus just makes you worry and worry about nothing and everything. 

 

Hi NIck,

Just want to say thanks for taking the time to post such a detailed and insightful account of your experience of mono, even writing that must have been painful thinking back at some of the real lows and times of worry and depression in the last year - but I definitely believe your story can help and support others going through the same. 

Similar to the other guys I am amazed you've been able to keep climbing - you've shown such courage and resilience to keep going this year, and yes remember that by resting or slowing down or taking a step back it's not in any way admitting defeat - in fact the very opposite I believe you will feel the benefit from doing that and if you even go with the mindset that you would if you have an injury that maybe would have you out of action for 6 months or something - a terrible blow and very depressing, but something that you know you will get back to once the injury has healed. 

Congratulations too on your engagement and hoping that can be the positive and lasting thing to come out of this tough year for you - I definitely believe you are going to get better and see your character and determination shine through in your message - hang in there and remember resting isn't quitting or giving up or being lazy - it's very much a key part of the recovery process with this thing, frustrating as it is when you're someone used to being so active and enjoying exercise - I was a runner and had to take time out when I had mono but I did get back to it after some time again. Hoping and praying things get better Nick and thinking about you!!

Craig

P.S. Have you ever tried Bowen therapy - that has helped me for sure with various ailments over various years

P.P.S. B100 vitamin and Co-enzyme Q10 are tremendous for energy levels

Hello Nick,

Congratulations that you got engaged. Its really great that you have been able to continue near normal life despite the illness. I really appreciate that you have decided to pace your self, which will surely have long term benefits. I too have been working through my tiredness and fatigue thinking it will go away one day. But it kept coming back. I too used to get good and bad days.

Anyways now I have also decided to take some time off of work and rest a bit. For the past two weeks I am feeling better but. I feel good about 80-85% most part of the day. But  sometimes there is this "something is just not right" kind of feeling even though I manage to cooking shopping etc. 

I try to be positive as much as I can even though it can be hard some times. I find mindful meditation very helpful to deal with negative thoughts. I take chamomile tea in the evening to keep me calm and relaxed.I also read and watch a lot of Netflix and listen to soothing music to distract my self from negativity. I believe positive mindset can speed up your recovery.

I am also going to get engaged soon. I wish and pray for you complete recovery.

Thanks,

RD

Hey RD,

That sounds like some really great advice and really hoping and believing that things will continue to get better and stronger for you - it is such a nasty and resilient virus this one, but eventually over time it does get beaten by your body and you get to a stage where you don't have that horrible 'something not right feeling' and you do feel like you can cope with doing activities without dreading how it will make you feel later or the next day or whatever.

Good luck with your engagement also RD and thinking about you and truly believing in your recovery - trusting God with that one and believing that the worst of this is by for you and healthier and happier times ahead. I reached that stage of being 80% or so and thought maybe this is going to be the best it gets and will have to adapt to a different kind of life, but want to reassure you that things over time do progress (that was my experience anyway) and with God's help I believe you will reach 100% or as near as again - hang in there!

Craig

Hey RD, 

Great words to nick, also I believe you are close to the finish line. Keep hanging in there you are getting closer and closer! You will take these final steps and become fully healthy again!

Hi Craig,

Thank you very much for you positive encouragement and support. I really appreciate your help and reassurance in this forum.

Thanks,

RD

Thank You Young Boy,

I read from you are post that you had a setback but please do not worry much and try to keep a positive mindset. Try to do some reading or some online course. When you recover from this illness you can look back at the dark days and still see the achievements you accomplished.

I pray for your speedy recovery,

I am also using a homeopathic remedy called echinacea 200C which was suggested by my mothers doctor. I cannot comment on it yet. But I feel some improvement after using it. I take 10 drops of it with water in the morning and afternoon. I am also taking 1000 mg C vitamin suggested by Craig twice a day.

Thanks,

RD

Hey,

Thanks for the reply and words of encouragement. Congrats on your imminent engagement as well, that’s so cool in a weird way, this illness may have helped me really realize how much my girlfriend means to me and how much she cares for me. I wish you the best in that. 

Yeah I have been a long time meditator though with varying levels of consistency. It can help the mindset a ton. You’re pretty recent compared to a lot of ya with how long you’ve been sick. It’s hard but really good to find that balance between determination to get better with patience in not knowing how long it may take. I wish you all the best

Thanks RD, I know it's so hard to keep positive and optimistic in the midst of this horrible illness. The dark days of this can be so painful and hurtful, but definitely once you are fully recovered you will be able to look back with gratitude and relief that it is behind you and be able to fully get on with your life again - that time will definitely come hang in there!

Craig

Hi all,

I’ve been reading these discussions and have found them extremely encouraging. I contracted mono sometime around the end of April. I noticed symptoms towards the beginning of June and have been off work since then. I thought I just had a cold or flu back in June but after going to urgent care and doing blood work I realized I had mononucleosis. I received a shot to prevent me from having cold sweats, fever and sore throat. On July 21st I went to do another blood test and found out I no longer have mononucleosis or at least it’s no longer reactive. It is now going on a month since I have tested negative for the mono and my energy levels have gone back up, I run/walk twice per day and even started to get back into the gym. I have headaches and suffer from the anxiety. I’m wanted to ask for those who have beaten this sickness, what were the last couple of days/weeks like before feeling back to normal? How do you know when it’s almost over? 

Thanks,

Chris 

Hi Chris,

So sorry to hear that you've had such a tough time with mono with last few months. Definitely empathising having went through a bad time with it many years ago. I'm glad that you are seeing some improvement now and starting to get back to normal activities, really hoping and praying things continue to improve until you feel 100% again - that will happen Chris, it can take a bit of time. 

I think everyone's experience of the virus is very personal and individual to them, so I guess when you're recovering or recovered you just go by how you feel and if your body feels better than before and with more resilience to cope with things that I know can be taken away during the virus. Remember still take things very slowly, even if feeling better, and manage activity because even when feeling better some symptoms and fatigue can try to linger if you do too much too soon or overdo it - so just be wise and patient, hard as it is I know when you just want to get on with normal life again! 

Taking vitamins and herbs helped me during my recovery, a good strong multi-vitamin per day, high doses of Vitamin C (1000mg-3000mg per day), B complex (great for nervous system and energy levels) and immune boosting herbs like siberian ginseng and echinicea and oregano. 

And most of important of all remember this virus does get completely better, and that you will get back to 100% or as near as again, even if it's only 70 or 80% or whatever now, things will continue to improve over time - hang in there and thinking about you!

Craig

 

What's opinion of the Monolaurin? Do you think it's working? I am almost 10 months in with mono. I was progressively getting better but got hit with a nasty relapse about 5 weeks ago. I started a monolaurin build up 3 weeks ago. I am holding out hope that something will make a difference and help me out of this hole. 

Hi Don,

So sorry to hear that this relapse is causing so much bother right now for you. It is so frustrating and discouraging, I remember a relapse at 9 months for a similar length of time, and it was after that relapse that things really started to change for me, about the 10 month mark, when I started to feel different and like things were starting to get better and recover - just want to let you know that sometimes a relapse like this can happen before full recovery, as if it's the last act of the virus and remember after each relapse your body is stronger and more equipped to deal with the virus, so hopefully this is it finally getting on top of it for you. 

Sorry I can't offer any experience or advice on monolaurin, I've read a few others on different threads who have taken it though and hopefully they can post and offer some advice and help. I know what it's like when things are so bad you are just desperate to take something or try something that can help and offer some new hope. 

Thinking about you and still fully believing you ARE going to recovery fully Don - hang in there for now and hoping things settle down really soon.

Craig