My urologist only does TURPs. The only investigation to my BPH symptoms have been cystoscopies and DRE. When I asked him if I can get a ultrasound to measure my PV, he said I didn't need it only a TURP. Since you won't investigate any further should I find another urologist?
yes you should !!!
Johnny
It seams to me he is just trying to get you into the having a surgery that you may not even need. Please get another doctor that does more options. That would be the best for you.
Good Luck.....Ken
Many posters on this site somehow believe that TURP is no longer being performed but patients on a weekly basis report being offered it in both the UK and USA. Which country are you in ? In the UK REZUM is supposed to now be the first choice for the NHS although I do not personally believe that.
If you need a TURP then have the Prostate removed now, as I had a TURP and within 12 months I was back to square one and had to have the Prostate removed. Now 9 months on have misery with Incontinence blamed on TURP done earlier and extra stitching required.
I find strange to do a TURP without assessing the size of the prostate. I underwent a partial TURP (ablation of the median lobe only) because I didn't want the problems associated with a full TURP (retro ejaculation and possible incontinence). The pain was so intense that I would feel waves of heat going up in my body with the pain while urinating and I was peeing needles for 6 weeks. The outcome was a very mild and insufficient improvement. Facing the necessity of a full TURP, I explored the various alternate possibilities. I had a PAE by Dr Bagla at the Vascular Institute of Virginia. Compared to the TURP, it was a breeze. I was back to my hotel room the day of the PAE at 12 PM, had lunch at the restaurant the next day and was visiting the National Gallery in DC the day after. The pain was very mild. I suffered mostly of constipation. If you do it, make sure you take 3 stool softener pills a day for two days prior to the procedure. The PAE was a total success. The heavy symptoms (reflux into the kidneys, recurrent UTIs), and the necessity to self catheterize every night were over within a month. It took my condition to were it was twenty five years before. Two and a half years later, my condition is still excellent. PAE works well with large prostates (mine was 90 grams). I won't hesitate to do it again if the symptoms return. My advice: explore the PAE before you have a TURP.
Hi. I'm in the UK and am scheduled for TURP on February 11th at the Lister Hospital, Stevenage. Because I live in Hertfordshire TURP is the only treatment available. If I lived in Bedfordshire I could possibly get HoLEP instead. As far as I know REZUM is only available at a handful of UK hospitals anyway. There is supposed to be choice but it all depends on funding and cross funding across the NHS trusts. Until all the NHS trusts in the UK get proper funding any treatment will continue to be a postcode lottery.
Yes yes yes. Emphatically.
Sorry if I've asked before. Any chance of your having an AUS implant for the incontinence. I know from experience how awful the incontinence can be.
You are entitled to have treatment where you want it. Google NHS Patient choice. Also look at the NICE web site. Your outcome depends on the procedure that you have and you need to fight for it. Is your GP not on your side on this ?
This is an NHS link to patient choice though it may get moderated so I will also PM it to you.
https://www.nhs.uk/using-the-nhs/nhs-services/hospitals/about-nhs-hospital-services/
Hey Derek
I feel he is being pushed into a procedure that he does not want. I know there are other procedure over there. Maybe it his doctor and only does Turp
There should be something he can do.....Ken
It sounds as if his whole area health authority only do TURP as is the case in several areas. That was the problem I had in 2004!!! Even then I fought and won to be referred from Scotland to Newcastle as did a friend from Inverness to London. The NHS even paid for his travel expenses for initial consultation, to go for the procedure and his follow up consultation. If all else fails he should contact his Member of Parliament.
Hey Derek
I think Grunthos should do that. Tell them that I don't want a Turp and be sent somewhere else. He should put up a fight. I know I have read for years that you guys have a lot of the procedures there.
Some of the best doctor are there. I have talk with some of them. He should be able to talk with someone that has more option. It kind of in the back ages. Take it or leave it.
Did you get your nap in yet. I'll be up for a while. Did get some of my doctor appointments done today
Have a good breakfast.....Ken
I wanted to go on a PAE trial in another County and asked my GP to do the appropriate referrals. The GP practice refused. I went ballistic and argued the point about choice. Luckily my Radiologist managed to get the funding from his County so I was able to have everything funded, not including my initial consultation with a Urologist in that County I had to pay for that. Subsequently My County agreed to follow up consultations, but they were hardly worth it frankly. My junior consultant had never heard of Gat Goren!!
Push the point, find out which of your nearest Counties have alternatives, particularly PAE, which is now NICE approved. Squeeky hinge gets the oil.
He should Google Gordon Muir and Tim Larner in the London area as they have been doing GL for 15 years. We had a poster or two from Bedfordshire who had HoLep. It is ridiculous that a few miles from home and he cannot get there. Sleep ? only from 1.15 to 4.15 and up and down since then. And this is one of the three days when I have to waken my wife at 7 am as she goes swimming. She of course sleeps like a log. We were not far from an earthquake once when on holiday. We were in the penthouse of the hotel and I felt my bed tilt as I was about to go to sleep and bits fell off the building but she slept through it.
Glenn, They are not prepared to look at anything until 12 months has passed as in their words " It could be alright then, plus as you have continuing urine infections that is possibly causing the problem, and you should not be having them now the Prostate is not there ! ", so just having to wait as I am afraid I don't know what else I can do .
David
Derek, I think this is only NHS England, not UK as had to pay for a second opinion in a different Health area in Scotland.
David
I'm not quite sure of your actual meaning. At that time in 2004 Scotland had to agree to pay the English health authority for the procedure. The Freeman in Newcastle accepted me as a patient but it took me over six months to get it done and most of that was waiting for the financial side to be sorted out. The Scottish Uro wrote to me that I was looking at it with rose tinted glasses and both procedures were simply boring a hole. When my prostate regrew over the next nine years my next uro in a Southern England TURP zone said that if I'd had a TURP in the first place that I would not be seeing him now. He tried to keep a secret of the fact that one of the kidney surgeons also did prostate laser surgery. I only found that out when seeing a locum.
Johnny:
Always best to get a 2nd opinion then, after you decide what's best for you, fight for the procedure You want done to Your body.
Regards, Raffie