Mycotic Arthritis - Start asking your doctor about it.

I discovered a reference to this condition recently and it led me to diagnose and succesfully self treat my lower back pain and sciatic pain.

I hope it's helpful to others suffering from the same condition.

Mycotic Arthiritis is a fungal infection of the load bearing joints. (knees, hips and spine). The infection takes a long time to develop and degrades the joint, causing joint pain. In my case, the condition got worse over six years and also caused terrible paralysing sciatic pain. I couldn't walk, sit or stand for weeks at a time. The condition is supposedly a very rare condition and is not widely known by the medical profession.

I found out about it while doing some detective work and research on back and sciatic problems. 

It might be hard to believe, but once i'd made the diagnosis and self medicated(in a state of desperation), the spine stiffness mostly cleared in three days and the sciatic pains disappeared after 5 days and I was working normally again after seven days, 

The treatment that I took was an anti fungal prescribed medicine and coconut ( a natural anti fungal).

I dont know how it worked quite so well and so quickly, but I do know that it was the lucky combination of the prescribed treatment and the coconut that worked so effectively.

I really hope its helpful, and look forward to any comments or questions

Glad to hear it resolved your sciatica!

How did they diagnose it? Usually a culture is needed (synovial fluid) to determine what type of fungus is reponsible in order to prescribe the right medication? Did you have any other symptoms besides sciatica? Often those with compromised immune systems are susceptible to fugal infections and arthritis is not the first symptom. They are often region specific, so if you live in certain regions and have certain initial symptoms, this might lead one to ask their doctor sooner and get treatment before the arthritis can do its damage. Do you have any residual symptoms?

Hi Mastdoc

Thanks for your reply. 

I diagnosed the condition myself about 7 weeks ago self medicated. I asked for a prescription of terbinafine from the doctor and also consumed 200g boxes of Creamed Coconut. 1 a day for 3 days, less so after, coconut being a natural antifungal treatment. A bit unorthodox I know, but given the situation, being unable to walk or work for several months and facing financial ruin I was a bit desperate. Regarding the health service in my area. I have had no help at all over the past 6 years other than an Mri scan that took some persuasion. and of course, the offer of pain management and totally ineffective and pain worsening physiotherapy . The main clue to my diagnosis was that in 2010 I took a course of Terbinafine for a nail infection and in retrospect I realised that the back pain and sciatic pain had subsequently diminished and was able function fairly well for a year or so. The rest was guess work. The symptoms were, worsening severe lower spine pain and stiffness and immobility, paralysing sciatic pain, a slight bulge to a lumbar disc though not impinging on the nerve (MRI scan a year ago), a minor though persistant fungal toe nail infection, minor fungal infection to insect bites on my back ( a few years ago). A major clue was, I had some ostepath treatment including back cracking over the past 2 years and though it helped ease the stiffness and pain in the short term, the pain seemed to spread through the spine. I concluded that due to the spread of the condition that it must be an infection due to the joints being opened and exposed to the infection. Other linked symptoms in retrospect are, generally feeling not right, intolerance to dairy products and wheat (causing depression, 2 day lag time) and generally down and feeling a bit spaced out after rich food  and sugar. As of today, I am 95% ok, which mostly occured in week one of the treatment. If i sit badly, I get a bit of back pain, which I guess is the result of damage done to the spine over the past six years.

I'm not sure how I contracted the infection, but it's possible that a holiday vaccination (badly administered to lower back) , toe nail infection, insect bites (Sri Lanka) maybe the cause. Just guessing.

Re. Terbinafine and Coconut - On their own (individually) the effect is ok, but for some reason, and a buy pure luck, the combination was amazing. Literally less than a week to sort out the spine and sciatic problems. I was bed bound one week and two weeks later I was working agian like the past six years hadn't happenned.

Hi max21068,

Thank you for your message and the advice you have posted. Unfortunately, my back problems relate to rapid growth in my teens, 8-inches in 14 months, a prolonged growth cycle, as did not stop growing until I was 25, and a nasty back injury from tampolining when I was 17. Suffered with muscle spasms in my back and bouts of sciatica on and off for years, but it never stopped me from living my lifebiggrin I have broken my coccyx and apart from needing to sit on a cushion when driving or at work, it had very little impact. I then suffered a slip-fall when on holiday in Majorca which started back flare-ups once again. I then suffered from a herniated L5 onto S1 which caused pro-longed and agonising sciatica which refused to respond to drugs or a spinal epidural. I was on huge doses of Tramadol, Gabapentin and Diclofenac which did little to relieve either the spasms or the pain. The micro-disectomy I had in Dec 2012 was brilliant and apart from the obvious initial recovery and physio, I remained pain free, until I started getting recurring bouts of sciatica in June 2013. I was sent for an MRI which showed that the remaining part of L5 had prolapsed, along with L4. That was in September 2013. The referal back to the Consultant was sent on the 10 Oct 2013 but somehow got lost so it wasn't until May this year that I saw him again. Unfortunately, there is a significant narrowing which is putting pressure on the S1 nerve but the pain is different and the loss of sensation in my foot and leg have been a totally new experience. Have trained myself to look at my foot so that the brain connects to that fact before standing as have suffered a number of 'splats' cheesygrin The word 'Spondylolisthesis' was being used & didn't really know much about it until, like you, I did my research. It was an easy diagnosis from that point! Have had a guided HC injection into the hip and another spinal epidural, neither have been effective although there was a slight improvement in the consistency of the numbness in my foot. Having now had the standing/flex x-rays, it has shown a significant slippage of the vertebrae with the prolapsed discs adding to the fun. Have had the weekend to think about things, discuss with family etc. and, following these and a little more research, am opting to have the surgery. This is not a case of 'wanting' surgery, it is a case of favourable factors now rather than putting it off & suffering muscle degenaration and progressive loss of mobility. I am not kidding myself as I know this is 'major' surgery with medical 'Mechano', lamination etc'. but, as the Consultant has told me that I will have 75% immediate pain relief following the recovery period of 4-6wks, I'd rather have the surgery now with age and relative fitness being on my side!

Just as an aside to the above missive, I have been on a few courses of anti-fungal drugs in the past year and regularly consume coconut too. I am a big fan of natural substances and essential oils and regularly make my own face/body oils etc. I hope that you continue to be well and my thanks once again for the contact/info.

Best Wishes,

Kimb63

Great information. Those with this type of history should pay attention.

All the best!

I'd like to add an important point the my initial posting. I forgot to mention that I did recently see a back specialist on the NHS, and his observation of some tissue damage to an area near to the spine  was very helpfull in leading me to make a diagnosis. 

To Kimb63

Thanks for your posting. Your condition sounds very complex and more of a mechanical issue. I wish you good luck with the treatment. 

kind wishes

Max

Hi max21068

Was the tissue damage to an area near to the spine deep or superficial? MRI or cutaneous observation?

Thanx!

The tissue damage was under the skin. not obvious. though visually observed. I think there were some undulations on the surface. 

Adjacent to the spine and almost central.

Thanks max21068, glad you got your life back. Hope Doctors will pay attention as well. Although rare, you have given us all some great information that may save alot of pain and suffering.

Well Done!

Thanks Max, I'll update you following the procedure smile

Thought I'd put an update on the discussion. 

After my previous postings I had a relapse and this carried on for a couple of months. I next tried taking fluconazole, as being fairly easy to acquire and this seemed to do the trick again, though the effect was rather more aggressive,unpleasant and frankly a bit dangerous. My suspicions about the insect bite was correct, I believe. I've been applying Wild oregano oil to the insect bite area and the infection has been drawn to the surface of the skin and I guess will eventually dissapear. 

The trick to the coconut is that it needs to be hot when consuming. I small cup of hot coconut milk twice or three times a day seems to work far better than nsaid's for muscle and joint pain. I also take Wild oregano oil twice daily in a a glass of water.  This time the treatment seems to holding and am quite confident though also aware that these types of infections can be very hard to be rid of.    Try looking up a paper written by a couple of doctors about a treatment that they used on a patient. The key search words are 'Terbinafine Fluconazole combination' its interesting reading for fibromalia sufferers.

All the best

 

Hi, I have had sciatic pain for a few months and a fungal toe nail for over 10 years and now a partner of mine in South America has been prescribed a fungal treatment ..she had pain in the hips similar to me and her doctor to.d me to take anti fungal anti biopics for 3 days ...seems that my living in South America has not helped as I have picked up all the local health problems over the years .but at least they have the knoowledge and the medicine to treat them ..apparently this type of problem is common in South America.. 

To add a bit weight and credibility to my postings above, ( i didn't realise you could put pictures in) Here's a photo of my back two weeks after I took the fluconazole and used the oregano oil. It's not at all pretty, but clearly illustrates my previous postings and diagnosis. You can clearly see where the main infection is and also the secondary infections on the lower spine. What's really important is that there were no visible signs of the infection two weeks previously and an mri scan didn't reveal any problems. 

A couple of weeks after this photo was taken the problem was mostly cleared up. 

 

Thanks Antony. That's really good to know. It seems quite a common thing in North America also.

It does make you think. 

As a final update to this and other discussions that I’ve written on on this forum.

Firstly, I’m not sure if I’m still in the correct section heading. What started out as a back problems seamed to evolve into something much more serious, Though saying that, It was a back problem to start with, but probably near the high end of the serious scale. Just going by the symptoms that I experienced the problem also seemed very similar to fibromyalgia and the treatments that I used seemed to parallel some alternative treatments used for cancer, though, it seems that if you don’t get an official diagnosis then its not possible to have something. So I seem to be stuck with the official diagnosis of sciatica. 

Anyway, whatever it was, here is my final draft of my techniques and treatments to become well again. I avoided pharmaceutical drugs (fluconazole) in the later stages as the side effects were not too good and I discovered what seemed to be a less aggressive and more natural alternative.

Firstly, the best thing that I discovered was that basic old fashioned soap is the best and simplest treatment for tumour like things near the skin surface and deeper. The reason being, as I understand, is that opaque bar soap is alkaline and by applying it to the skin it reduces the acidity level of the skin and destroys infections.

Also, Think of soap as a preventative treatment. Glycerin soap is not the same as traditional soap and I avoided soap with propylene glycol as an additive. Soap with minimum ingredients is best.

Soap seems particularly good at relieving muscle pains and fibromyalgia type pains when left on the skin surface for 20 minutes or so.

What was really very surprising and affirming was that on reading the ingredients of soap I discovered that the main ingredients were coconut oil and palm oil. As in 'cocoate and palmate'  More on palm oil later.

For correct use of soap think 'Turkish bath' ie apply to skin, leave for several minutes and rinse. That's probably the most important lesson I've learn't from this whole escapade.  There should really be instructions on a bar of soap.  Also, it really isn't very good under a shower, as the soap is rinsed immediately and has no time to be effective. 

The following is my food method to get rid of tumour like things and other associated problems and joint problems.

A strict diet of.

Red meat, eggs, Block rye bread (100% rye), Rye biscuits, Oak cakes (ideally without sunflower oil),  Lots of Spinach and Kale (at least 200g per day), onions, porridge, soya milk, Raisins, sultanas, berry fruits (black and blue and others probably) , limes, coconut milk 75%, tahini, peanut butter(cheap variety, with palm oil), Nuts (most types) but not too many brazils,  a little beer (with minimum sugar content), 

Oils - Coconut and unrefined palm oil.

Herbs and spices - Most types but particularly Oregano/oregano oil and chilly powder.

I only consumed things that I knew the ingredients of, or were organic. 

Unrefined palm oil seems to have similar properties to coconut oil but much more effective.

Things that I avoided for the duration of the illness, though I can tolerate these things now to some extent.

Sugar and processed foods particularly.

All tree fruits. Peaches, plums, oranges, lemons etc etc, with the exception of limes and bananas and a few apples.

Anything that would be acidic, like pineapple, lemons and oranges.

Sunflower oil, where possible.

Alcohol, mostly. Wine in particular. 

I avoided alcohol sugar substances like propylene glycol because I experienced a very serious elevation of the problem from getting this substance on my hands in the workshop. (it seemed to be absorbed very easily through the skin)

As I understand, Propylene glycol is metabolised into an acid in the body, which could be the reason for such a bad reaction.

I avoided tooth paste also. Propylene glycol is present in some toothpaste, leading to delayed head aches, dizziness and lack of concentration.  and also processed foods, cosmetics and some soaps.

I also avoided similar sounding substances also, as a precaution. For no other reason other than they sound similar.    Polypropylene glycol (PPG), polyethelene glycol (PEG). for example.  I’m also very suspicious of glycerin, but this may be because it generally includes propylene glycol.

Simple food treatments 

The following recipe is the most efficient treatment that I've discovered to date. I’ve tested it over several months and it works incredibly well.

It seems like an alternative to fluconazole but much less aggressive and with no obvious side effects, It seems to be very efficient and subtle.

It seems to reduce tumours, ease joint pains and makes one feel generally better. 

Add a small glass of coconut milk (75% plus coconut) to a milk pan and place on a low heat. Add 1 level teaspoon of ground turmeric and 1/2 level teaspoon of unrefined palm oil. Simmer and stir for a minute or two. Pour into a glass and drink very slowly. 

(Unrefined palm oil is used in african cooking mostly and is bright yellow/orange in colour. Same colour as a very effective soap).

I did this twice a day on an irregular basis. Perhaps for three days and then a week later for 3 days etc etc. 

Add to this a 100g bar of high percentage (80% plus) chocolate every now and then ( maybe one or two a week) and additionally, jars of peanut butter with extra added unrefined palm oil (1 teaspoon) and sometimes turmeric and often raisins.

Note: The chocolate and peanut butter does have a small amount of sugar, which I could deal with during the recovery stage of the illness. I would have avoided any sugar in the really bad stages.

In these simple ingredients and combinations I found all the help that I needed. 

Side effects to date.

From taking coconut - It seems that when I take coconut now my near vision eyesight becomes a bit blurred. This clears up when I stop talking it. My eye sight is far better than a few years ago.  

From eating peanut butter ( one small jar a day for several days) -  This can give me some pain to my kidneys which stops when I stop eating it. The benefit seemed to out weigh the discomfort. Though It was a calculated gamble which seems to have paid off.

Loss of short term memory for a few weeks after taking Turmeric/coconut/palm oil mix. Memory has returned to normal now and no further problems.

I've not mentioned it previously, but I also had terrible pains in my lungs. I think this was a knock on from the problem/tumour I had in my back and spine.

I dealt with this by inhaling the vapour from heated oregano oil.

I would put 4 drops of oregano oil/olive oil mix into a cup of boiling water and carefully inhale a small amount of the vapour. I cant express too much how strong the oregano oil is. It's very caustic and can burn in high concentrations. One or two inhalations over a day or two seemed enough to ease the problems and pain.

Or alternatively, just put lots of dried oregano in your food and breath the vapours.

Also, the vapours of oregano oil are very good about the house, to kind of fumigate the living spaces. Again, not much is needed.

Oregano and olive oil mix also seems to be the most effective treatment for Onychomycosis. Going back a few years I applied it sparingly under the nail once a week until it was cleared up and it never returned.  The nail must be very dry, so it can be absorbed fully.  It did sting a bit as I remember.

In brief conclusion. (and in my opinion)

The causes were. (over the past 30 years)

1. The introduction of showers (making soap non effective) and leading to a less effective alternative to soap.

2. Badly designed bedding/mattresses using inappropriate materials.

The exacerbating factors were.

1. Penicillin based antibiotics

2. Sugars and sugary substances, particularly propylene glycol.

The preventative solution is.

1. Soap and the correct use of soap.

2. Well designed bedding with a changeable barrier layer over the mattress.

3. Careful use of antibiotics

4. Avoidance of certain food and product additives

Hope its helpful, Is taken eight years of helliish times to get here, but it all seems to have worked out fine, eventually.

 

Regarding the last part of the post. (3. Careful use of antibiotics) I dont mean to use antibiotics, I mean avoid pennecilin based antibiotics unless absolutely neccesary because they seemed to make the problem much worse.

Just another and hopefully final note.  Thank you very much to whoever came up with the idea of mixing black pepper with turmeric. The pepper does seem to up the effectiveness. The combination I use is. coconut milk, turmeric and black pepper. This seems particularly good for joints, and everything really really.

Beware of coconut milk with additives and E numbers and emulsifiers. particularly E435 and all the other sugar alcohol substances. 

Someone should have a really hard look for any connections between the illness I discribed above and Xylitol. Look at it as a triggering mechanism.

Xylitol, as is decribed mineralises the teeth and bones. The illness or ailment

tends to be drawn to the bones and joints. Maybe theres a connection. I think there is, but that's just me making connections and the problem did seem to start again after a visit to the dentist some years ago and advice to use a certain chewing gum product.

If after taking the coconut, turmeric and black pepper combo you get alarming bumps coming to the skin surface (this is a  good sign, its just the body doing it's job) the following combo, I found, sorts this problem at the skin surface really well. 

Coconut oil and oregano oil. 

Mix/disolve 4 to 6 drops of pure oregano oil in one teaspoon of cooconut oil at warm room temperature. try not to get the mixture too warm as the active ingredient evaporates. remake every 7 days. I apply 3 times a day and this works fine.

Just to clarify what I think about my previous postings and its relevance to the discussion of back ache and joints problems etc. I think what I have experienced covers many forum headings but particularly back and joint problems. I think they are all connected, but the symptoms show in different ways.

As regards back problems, I think one of the causes of back or joint problems is not so much the joints, but small infections or cysts within the muscles, which most people probably have by cause of life in general, that become broken when putting large stresses on the muscles. I think it is then that the poison or infection spreads about that area and causes pain and then infects the joints. 

With my experience and knowledge now, if I were to get a bad pain after lifting a heavy object, which I do all the time, the lifting that is, then I'd hit the problem really hard with the coconut,turmeric and pepper combo. This happened two weeks ago to my hip area and I reduced what a few years ago would have been at least a week immobile and several weeks in recovery to 24 hrs being immobile and 1 days recovery. 

That was very satisfting, knowing and proving a solution. The small joys of life.

 

Another point that I forgot to mention. 

Regarding pain levels as per the ailment described previously and comparison of pain levels.

Some months ago I had a road accident and smashed an important bone into three pieces. This was quite painful at the point of impact but in comparison to the pain experienced during the really bad episodes of the back problem it was frankly, just a bit of an annoyance. On a scale of 1 - 10 the back problem was 10 lasting weeks at a time and the broken bone was about 3. Several years of debilitating agony sort of ups the threshold a bit and I think the ambulance people were a bit surprised that with a visibly broken bone I could be so calm and with such a low heart rate. Another small and satisfying joy of life.

After the accident the ambulance people and hospital staff were absolutely brilliant in the way they dealt with the problem and bolted things back together. I am much indebted. Many thanks.

 

Here are my final thoughts and realisations on the subject and a few things that I found really helpful. 

Something that I found really useful following the taking of the coconut milk, turmeric, and black pepper combo, and why.

I found that consuming butter to have a cessation/stopping action on the effects of the coconut milk, turmeric, and black pepper combo.

As much as 40 grams of unsalted butter (good quality) at a time on rye crisp bread, which was quite a lot, and intermittently and over some days/ weeks, I can’t remember exactly, but just when I felt like it. Then just as normal.  (as a guide, my weight is about 13 stone/83kg)

Since then I’ve broken all my rules of not eating sugars and dairy have consumed packet upon packet of cheap sugary biscuits and milk to restore my energy levels and replace all the body fat that I’d lost. 

Additionally, in the latter stages of the illness I added a smallish amount of ground coriander seeds to the Coconut turmeric black pepper combo and whilst I’m still not 100% sure if it helped, it did feel like there were some additional effects.

 Why. As I’ve discussed previously. I found that taking the coconut milk, turmeric, and black pepper combo to be very effective at getting rid of infections/tumours, etc.

My original thoughts, which I wrote a few years back, on the effectiveness were that the coconut functioned as a delivery system for the included substance, either turmeric, oregano, terbinafine or fluconazole.

Since writing this I have reason to alter/expand on my thoughts. What I believe now is an extension of the idea that the coconut/coconut oil is a delivery vehicle and is that the coconut/coconut oil additionally acts, and as a major element of its usefulness, as a dissolvent of fat within the body.   

What I think is going on. I think that the bodies immune system, additional to antibodies and the like, uses fat as a physical and localised isolating barrier/line of defence against an infection. I base my thoughts on my principal problem solving tool ‘find the path of least resistance’ i.e. if the body cannot destroy a foreign body by reacting to it it must find the easiest and most economical method to isolate it and cut it off from the waterborne nutrients and sugars within the body and where an easily available substance to do this from within the body is fat. (fat being impervious to air and water). 

So, for example, there is an infection within the body that is maybe active or not and isolated/neutralised to a lesser or greater degree by a very localised build up of fat and where by introducing, in tandem, coconut oil and an anti infection agent (turmeric or similar) then the, quite fluid, coconut oil has the effect of dissolving more solid fats that isolate an infection and open up the physical pathways to enable the anti-infection agents to function on and disrupt or destroy the infection.

With this in mind, one could understand that by adding a strong emulsifier/solvent (a substance that joins/mixes water with fat/oil molecules) to the body it can be argued that the immune system is being compromised.

So, in my simplistic and practical view, that by adding dairy fat to my diet after my rather experimental self treatment I was putting back into my body the materials that the immune system needed to resume its full function.  

It seemed particularly dairy fat (butter) that worked well as I wasn’t short on other fats in my diet.

Throughout all my self treatment, whilst I was able to get rid of the bad problem with my back and spine, I had terrible pains in my hip area and foot which seemed to go away but returned quite often and very painfully. I eventually found a way to fully relieve the pains which was/is the easiest and with seemingly no down side. The method is a bit unorthodox  but works for me, which maters more than convention. The method being,  I apply a small amount (approximately 1/4 - 1/2 teaspoon, sometimes more) of my homemade coconut and oregano oil mix to my feet (particularly the soles and between toes) at bed time and in the mornings. It wasn’t an instant fix and it was perhaps a few days till the pains subsided but it seems to be a lasting remedy. I had to have a few goes over several weeks to get things completely right and continue to use the technique on an as and when basis.

In hindsight, I really wish I’d tried it earlier as it seems to work all over the body and with less grumblings from the internal organs.

Likewise, the same technique seemed to work well on a tennis elbow problem when applied to the hand.

In retrospect, and with what I understand about the causes of pain about the body, I think that tennis elbow is caused by the breaking of small encapsulated infections in the outer forearm area by excessive force and shock to the muscles, like one would experience playing tennis or using a hammer to drive a nail.

A key element to defeating this terrible illness and localised joint pain seems to be where about the body that the treatment is introduced/absorbed. 

I won’t be able to fully test my theory now, but perhaps the most efficient and least aggressive treatment for various pains about the body is by an application of coconut oil and active agent to the hands and feet.

Other amendments/updates

Raisins weren’t quite as ok as I thought.  Tolerable, but not so good.

Glycerol in food seems to have had a negative effect on my health. Particularly in biscuits and cake.

It’s probably ok at a recommended daily amount, but, that’s just a recommended amount. 

Also, Fructose doesn’t seem too good.

Standard sugar seems fine now, and necessary in moderate amounts.

Carbonated spring water is very very helpful. Perhaps a litre a day. Water with bicarbonate.

I don’t think it’s necessary to have a cover on a bed mattress all the time. Maybe just when you’re not sure about where you’re sleeping. Back pack holidaysLiterally, etc.

Keep cool. Literally…..  I found that excessive temperature caused major problems. This was particularly a problem when sleeping and getting too hot or sitting near a fire or heater in the winter. 

A bit contradictory, but I found that in winter I experienced circulation problems in my hands and feet after taking coconut oil. I suspected that the lower temperature of the extremities causes the coconut oil to solidify in and block the blood vessels.  Just something I became aware of. A hot shower seems to sort this problem out.