Hi all
I`ve come to ask advice as last night I had severe nausea a few times during the night. I was retching but not actually sick! I`m pretty sure my thyroid levels have gone over- active at the moment as I`ve got the `old ` symptoms of hyper, sweating, hungry, needing the loo a lot. I`m taking carbimazole 15 mg a day but I`ve not had a good day yet since I was diagnosed over 3 months ago and put on carbimazole. I`ve got an appointment with my endo on the 10th Sept to discuss what`s next- but in the meantime do I need to be worried about this nausea?
Many thanks
Joy
I have hyperthyroidism now 6 years and on ptu for 3 years. At the moment I feel awful so presume I have gone hyper again. Nausea, back pain, pain and numbness in my left arm, numbness in left of face and left neck pain. I feel out of it and very tired. Sneezing a lot and sore throat and upset stomaxh so maybe a virus triggering this. Regardless of ptu and propranolol I feel awful and can't work or dre as my vision is blurry and i get panic attacks. This illness is never ending and i feel like hell. Docs say they have never seen hyperthyroidism go on this long as thyroid normally burns out. I also have adrenal maladaption, borderline vasculitis, mycotoxins, high coproporphyria levels and multiple chemical sensitivity but docs don't know why. Am testing for lyme and co infections just to rule that out as doctors think there's an underlying cause but don't know what.
I have been battling hyperthyroidism for a year and a half now and I get nausaeous all the time. I was on Methimazole until it started making me sick to my stomach. I had gone off all my medication for 2 months trying to figure out which one was making me sick. (not smart) When i finally saw my doctor he put me on Ptu and i have now only been on it about a week or two. I can sorta see a difference, but I still get nausaeous. I have thrown up a lot of times too. A lot of times when I feel nausaeous its when im standing up; I start to shake really bad, get so sweaty that it is like someone has dumped a bucket of water over my head. Sitting down sometimes helps, but not always. Hope this helps.
Courtney
Do you get pains in your chest, arm and back like heart attack pain. This is what really unnerves me as I feel faint, dizzy and nauseous at the same time
Not really. Though i did get back spasms for a while when i was off of my medication, which i had to go to the ER for cause my back killed me. I have not had as much pain as i did before. When i first started the methimazole i would have muscles cramp up on me like no tomorrow. Now my one arm (think there might be a loose tendon or something) likes to try to come out of the socket sometimes, which hurts. And yeah i get faint, dizzym and nauseous at the same time too, it's effected my job performance soo much. I was a cashier at a department store so i was on my feet all day. Our peek week I was shaking but so bad that i felt sick, but the next week it was like someone flipped a switch. I was faint, dizzy, and nauseous( and throwing up). I get so warn out. I could probably sleep all day sometimes. I can sleep at night a good sleep and get up and hour or two later i'm ready for a nap. It drives me nuts, i feel like im an 80 year old woman having to take naps to get through the day.
Thanks for your replies and sorry to hear that you`re both suffering too- this is a horrible disease! I was a smoker but gave up 3 months ago when I was diagnosed and as this week has progressed I`ve become aware that my sinuses are draining, which is making me nauseas? It`s making me feel unbalanced/dizzy which I`m assuming is the sinuses draining too? So I`m not sure if its this or the thyroid?
But as for the aches and pain- sheesh my back is in spasm most of the time. I have an old sacriolliac joint problem and right now this is worse than its ever been. As I ended up with Afib the doc put me onto warfarin so I can`t take anti-inflamatory meds, which of course is not helping!! I`m seeing my endo on Wednesday and hoping I can quit the warfarin and hopefully make arrangements for RAI. x
Hi all, I'm new to this thread but thought I would share my Graves disease experiences with you. I've been diagnosed for the last 20 months or so and been on Carbimazole since then. In the early days I started to feel better, mood swings stopped, put some weight back on, the endo guy at the hospital told me I did't need to take beta blockers anymore..... but you must have another blood test which I had late last year. I heard nothing from the surgery so I went down there and a receptionist through a piece of paper at me and said " your levels are normal ". In February this year my dad became very ill with cancer and died within 7 weeks, having been told my levels were normal I stopped taking the tablets for some weeks and put everything with myself on hold to help dad die at home which is what he wanted, the day after his death I got a call from my GP saying your levels are not normal and you need to keep taking the tablets...... moral of the story is perhaps don't get fobbed off by a receptionist. Since then and mourning my dad's passing I've lost even more weight than I did before and am on tablets for depression and been off work now for 4 weeks and may lose my job. They have upped my thyroid tablets so we'll just have to see how it goes. I've never felt so low in my life, it truely is a horrible disease, wishing you all well, Steve x
My sincere condolences on your fathers passing. My father died from cancer almost 10 years ago - I can't beleive it's that long already, and there isn't a day that passes that I don't think of him and wish he was here. The stress you are under now is probably causing your symptoms to worsen. It seems a lot of us with thyroid disease suffer from adrenal problems too and stress really affects them. Try to relax and sleep as much as possible - hopefully rest will help a little. Wishing you all the best.
Nausea does appear to be a side effect of the Carbimazole as I feel sick all the time without ever being sick.
Hope you feel better soon. How did the Endo appt go?
Thanks for your reply David, yes I discovered myself just recently that the carbimazole causes nausea. I`m not sure if my nauseas the drugs or my sinuses clearing after too many years of smoking. The symptoms of face pain and headaches plus mucus draining are all pointing in that direction. I dunno?
I hate going to the doctors as I don`t think thay realise just how poorly our thyroid are making us, so I`m loath to go with anything else.
Anyhow, my endo appointment went well thanks, I`ve been recommended for RAI as the endo seems sure my Graves would return - and to be honest I`m relieved. As someone else said to me `I can`t be bothered to faff about with this anymore!` lol. I`m 63 and want my life back, not sit about and wait to see if things improve with the carbimazole!! I`m due treatment within the next 6 weeks, I signed the consent form, so I imagine I`ll just get a letter with the date and time and turn up?
How are you coping with your Graves David and what have you had done or are having done treatment wise? Whichever, hope you`re feeling well?
Joy x
I've never smoked so can't help you on that one 
I get the feeling the Doctors don't really understand too. Mine isn't too bad but she's not there this week i've found out today, so i'm seeing someone else.
Well, that's good you've been offered the RAI - i've not officially been offered it yet. You should get a letter or phone call at some point shortly.
I'm struggling a bit after an initial improvement. Diet is a big concern for me as read lots of conflicting information. I can't get by on Cauliflower and Cabbage lol
I'm on Carbimazole at the moment. I'm not too far out of range and my technetium scan was ok. Back to GP tomorrow to discuss work, although as mentioned, different GP and also have bloods taken ready for Endo apptmnt next Thursday, so hopefully an improvement even though I do n't feel great.
I hope you get on ok with the GP David.
When was yours diagnosed - mine was late May- and after 3 weeks of carbimazole, I felt much better. I hadn`t realized just how poorly I`d got. But then I swung underactive and I struggled badly being underactive. Yes I can`t imagine existing on cauliflower and cabbage lol, but I suppose our diets will all depend where we end up after treatment, whether we`re hyper or hypo?
Good luck with your Endo next Thursday, I hope they can suggest something so you feel better. It`s hard to explain but even though our levels are supposed to be `normal` we often still feel ill. I`m hoping the RAI puts and end to that!!
Let me know how you get on,
Joy
Mine was April.
I felt better initially, but now feel terrible. Hope i've not gone Hypo. I had the sore throat and the urgent blood test back in June, but all was ok.
This is why people don't understand and I guess people can't unless they have been there. Hopefully RAI works for you and it comes through soon - let us know when it does!
I am searching for some answers and it looks very familiar to what you have written. Nausea, back pain, numbness and tingling down my left arm and up my neck tired all if the time. I went through all the heart attack tests and they were normal. Noone ever told me about hyperthyroidism. Is there treatment?
Hello Jeanette
How are you doing with your thyroids?
Hi Robert
Did you find out if it was your thyroid or not?
I am suffering so bad from this right now. My symptoms are exactly like yours, I feel so alone in this..can you tell me if your feeling better now? The doctors want me to have my thyroid taken out but I've heard so many horror stories that im terrified. Also I have no support. I am hyperthyroid. The doctors tried a fee different medications but my body reacted badly to them so I had to stop them.
Hi I was diagnosed last week first at my doctors appointment then I was rushed to the ER I’m so tired all the time I see the thyroid specialist on Tuesday I’m so happy to have found this form no one understands how I feel 😢 i’m hungry all the time I lost so much weight so irritable I’m dizzy can’t go back to work I’m scared to drive 😩
Hello guys, I haven’t been diagnosed yet (my appoiment with the endo is next week) my hand a legs tremors sarted almost 3 months but they got worse after I got the flu. I went to the doctor one week ago and the doctor noticed that my thyroid was large. Besides the tremors I feel sick in general, my body weak, my muscles sore and nausea that comes and goes. To my family this is not a surprise since my mom , sister , some aunts and some cousins suffer from thyroids too. Please tell me I won’t feel this miserable for ever? My mom seems doing just fine. But reading some of your comments stating that medication doesn’t do a thing worries me. I’m 38 years old and sick sorry of feeling this way for be rest of my life 😪