Need help with SVT

Can someone please message me, I need reassurance about SVT I am currently waiting for an ablation but the wait is quite long. Some wise words from people would really help me right now as I feel my life is ruined I'm only 23. Thanks everyone x

     We need more information from you, XxaimxX, before we can offer you more detailed words of "experience".  That said, and written, many of us have experieced the "ruined life" feelings after onset of SVT, only to eventually experience much more of the many joys of life.  If your SVT isn't atypically complicated, you can expect an actual cure from ablation.  You then may well feel the exhiliration of being shot at and missed ( so well expressed by Winston Churchill). 

     Please try to understand that your feelings now are normal. A misbehaving heart deeply frightens most people.  Try to be as kind to yourself as you can.  We all wish the best for you. 

I'm 55 and lived with SVT until last year not knowing I even had it. (Diagnosed as acid reflux in my teens). I just dealt with my episodes until one wouldn't stop then I went back to the doctor (40 years on) . I take medication but still get the odd misfire or fluttering . I'm very active being a post person and it hasn't stopped me from doing anything . We are all different though and have our own way of coping and dealing with it.....

The good news: I'm almost 45 and life still goes on! I've learned to work with my SVT thanks to this forum. There are some great people here who can help you with specific questions. It helps to understand ways to shorten the SVT episodes, but also finding ways to cope with the stress of an episode. It's often the lack of control over the situation that causes me stress.

How long until your procedure?

I lived with it from age 19 to 40, before getting a successful ablation.  When an attack occurred I'd swallow a Varapamil pill, but would otherwise not medicate for the condition.  Perhaps you haven't had many episodes yet?  The fewer a person has experienced, the more scary they probably are.  My episodes were typically infrequent, maybe two or three a year, but lasted for a couple hours or so. I started getting them much more frequently after the birth of my child, hence the decision to get an ablation.  Remember that SVT is no indication of heart disease and is not life threatening.  Good luck with the ablation procedure.  For me, it was much less dramatic than I had imagined.  

 

Thank you for replying.

May I ask how long you have has SVT for? I've only had it 1 year so as you can imagine I'm still awfully scared. Last night I was just sat watching tv and my heart started trying to go into SVT it was skipping and fluttering and I dialled 999 straight away but I never pressed call, I sat and got my breath and relaxed and it never progressed into SVT, I'm on beta blockers and since September when I had to have adenosine to reset my heart I've only had the odd flutter.

I have been referred for the procedure but haven't heard anything yet, I saw the cardiologist a couple of weeks ago and he said about 3-4 months as it's the nhs and there's long waiting lists. What do I do when I get one? Or if I feel it's going to start? My partner is working away Monday-Friday so I'm home alone with our little girl and I'm scared to lock the door incase something happens to me and nobody can get in

How do you do it? My partner wants to go on a family holiday but I darent get on a plane sad I'm glad you are doing well with it, I wouldn't wish this on anyone it's truly awful to go through x

I've probably had SVT for a number of years, it was often explained away as panic attacks. However about two years ago I had an episode that lasted two hours with a heart rate over 200 bpm. I ended up calling an ambulance (I was alone at work) and had adenosine administered to get back into rhythm.

I find laying on my right side often helps reduce the episode and sometimes stops it. I rarely sleep on my left side - it seems to trigger an episode. Also I'm on a low dose beta blocker.

Hope this helps! :-)

Thank you!!! I'm so happy for you how does it feel to be 'normal'?

I had my daughter February last year and mine started in July last year, I know people say it won't harm you but it really feels like it will. I seem to get an episode every 2-3 months. I've been doing really well I've gotten myself a job to help provide for my family but the SVT is scaring me I'm scared it will happen at work, in the car, in the bath. I'm not living life to the full because I'm scared. I really hope they can cure it for me fingers crossed!

Yes they kept telling me I was having panic attacks but I knew I wasn't!! It took me over a year to get diagnosed as my heart was beating at 240bpm I had to have the adenosine and that's when they advised the ablation as the cardiologist could see how destressed I was.

Sometimes laying on my left starts my heart fluttering so I try to avoid that. Even getting excited about things sets it off it's like I darent be happy anymore. I darent run about after my daughter either and that's not fair on her sad I'm on a beta blocker too I think it's helped a lot just not quite enough for eliminate it so I'm having the ablation

I need to schedule a second ablation - I didn't give myself enough recovery time so we'll have a second go of it. I wanted to get into better physical shape first, so I've fixed my diet and am about to add exercise into the mix.

I'm flying to Mexico in February - but I've done a flight and road trip to the US already (I'm in Canada) and did fine. Meditation might help, sometimes we get into our own head with thoughts that add stress we don't need.

Amazingly I didn't have any major episodes on my previous trips - and now I'm on the beta blocker so we'll see how Mexico goes!

Hi, Our son had scars in his heart when he was 19 years old. That has been 24 years ago. The Dr. was going to do an ablation on him. However ,we prayed very hard. The preacher and his whole congregation all prayed for our son. When there is a lot of prayer it is powerful and I believe God listens closer. They were unable to map the scars , so could not do the ablation. Thank-God because we learned later that this certain Dr burned a hole in a kids heart. I am not trying to upset you. That was a long time ago. The Dr.s have become very more learned about this procedure!!!  It is done quite often. Ask your Dr. how many times he had done this procedure. If he is good the ablation should help stop V-Tach if this is what you are having it done for. Just trust God and he will help you! Just think how nice it will be when your heart works normally. It usually only takes one ablation to fix the problem. Please do not be afraid. I know you are young. But medicine has come a LONG WAY since our son had these problems. I wish his problem had come up now so they could help him with ablation. His heart is in too bad a condition now for them to do it. May God bless you and assure you it will be ok. Trust in the lord with all of your heart. He will help you.biggrin

you need to tell your travel insurance if you do decide to go on holiday. ive been on long and short flights. It isnt nice when it happens but you wlll learn to deal with it. Please dont let it ruin your life. 

That's my travel insurance going through the roof then sad I was suppose to go to Benidorm this year but I cancelled it because the anxiety I was getting building up to it, it's not fair I ant of my family putting them through all this x

      XxaimxX, I only received the first two lines of your message to me.  Could you please resend it?  I'm very pleased you're receiving so much support and encoragement from forum members.  We have lots of empathy for you and are looking forward to hearing good news from you.  Take care.

This has happened to me at work - most of my co-workers are aware of it. Worst case I lie down until I can get it to move on. Once it was going on and I walked to my specialists office so we could capture it for the record. Good times!

It's a relief, for sure.  Every once in awhile I'll get a couple fast beats, like it's starting again, but it hasn't in the 17 years since. After my procedure I said to the doctor "thanks for giving me a new life", which it really felt like at the time.  He obviously appreciated the comment, and replied, "it usually works that way".

 

Have any of you with this SVT asked your Dr.s about the drug Sotalol ??? It was experimental when my son was put on it many years ago. Now he has the defibrillator in him and also still takes sotalol. For this SVT. If you are not taking it, It wouldn't hurt to ask your heart Dr. about it!  God bless each and every one of you. I do understand what you are going through with son having it 25 years now! razz

Isn't that so nice Alaskan? See things get better. A lot of the time God knows what is best for us even when we are a bit scared!   confused

I feel for you there's nothing worse then feeling scared ive been having attacks since i was 16 im now 43 i used to have them every couple of months and when i was 32 they stopped until i was put on anti deppessants a few months ago and something in the medication set them of again i just started back at work also and look at it like you might not get one for ages so deal with it as it happens or you wont live your life hun i wish you well and theres nothing worse then fear