Nephrotic Syndrome

Kidney and urinary tract
1

Hi,

I am 50 years old and have had Nephrotic Syndrome for the last 3 years.

Over the last 3 years Doctors tried me on 60mg a day of prednisolone for 3 months. I gradually got to 10mg then relapsed so back up again to 40mg plus cyclosporin. That treament got me back to 10mg of prednisolone but then I had a relapse. Then tried Levamisole, that did nothing. The last thing we tried was Cyclophosphamide(chemo). That was not very nice but after 8 weeks treatment I have no protein leak at all and no swelling. I am down to 5mg of prednisolone and will gradually come off them completely. I also take just 10mg rampril a day for blood pressure and adcal-d3, but no water tablets. This was in October 2014 and I have now finished the Chemo. I still have my hair too and feel great, like I used to three years ago before I was diagnosed.

Has anyone else had chemotherapy for Nephrotic Syndrome?

2

Sorry to hear life is hard . I suppose health is a kind of balance really.

Never thought I would end up with Nephrotic Syndrome, probably because I've never heard of it ! I've had it for almost a 9 months I think.

Did a 5 mile walk yesterday, and i'm feelings the effects now.! Knackered !

I want to hear your getting better please ?

3

Hi Eric,

Well done for doing the walk. How are you today? Yes I feel gresat as no protein leak for 2 months now. What medicines are you taking?

4

I take 20 mgs of Prednisisolone, 2.5 mgs of Bisoprolol Fumerate Lansoprazole .

And a few other things. Also I have minor blood -clots too, treated with Warfarin.

I'm trying to renew my kitchen , which means knocking down a wall. I'm just taking kitchen units to the tip at the moment but eventually will have to start with the sledgehammer and drills. But trying to be positive !!

5

Yes stay positive and keep up the good work of kitchen instalation. We just did ours so know how hard it is. I follow the Alkaline diet, that helps alot. I notice a massive difference if I dont follow it for a few days.

 

6

Now forgive me if I don't know something I should , but I've never heard of Alkaline diet ! 

Generally if people talk about Alkallis  they mean Ph's in eccess of 7 or more. 

Reducing the Ph of food is something that the digestiion does in order to make food available to normal body processes. 

  Thanks for your reply will look - up Alkalis in foods.