Hi I have neuropathy and wish to know if anyone here has this due to medication. Thank you
I went to see a neurologist about neuropathy in my lower left leg four years ago ( Drug induced by Cipro and Fluoroquinolones but try proving it) It came one suddenly after having taken them only for a few days after initially having tendonitis from them. Do a search on the drug manes in the top right of the page and you will find many posts about the dangers of this family of drugs. Sometimes it lies dormant for a long time until triggered by another prescribed drug in my case Bisoprolol and Clarithomycin .
This is the first Forum link
https://patient.info/forums/discuss/fluoroquinolone-toxicity-syndrome-427305
mine just came on overnight toes to knees and both hands effected none stop tingling 27 months now
My neuropathy in my hands and arms came on after injury. I have recently been getting it in my foot and leg which I think may be coming from my back which I hurt from a fall on black ice.
thanks Derek. Flqs are notorious for causing muscle problems.
NIGHTMARE I know. have u been investigated for Vit B12 deficiency ?have u ever taken any fluoquinolones or opiates I believe opiates cause neuropathy as well as a range of other drugs. sorry. Fluoroquinolons cary aback box warning NOWre muscle and tendon damage. see floxiehope.
My lumbar spine pain came later. The neuropathy caused a change of gait that affected my back.
I had slight occasional numbness in in my lower left leg and foot for some time then one day I walked up to the station with my wife who was going out. It got more difficult the farther I went and I had a problem walking over the tiled surface in the station. Going home I almost fell a few times and was holding on to railings for support. In my case it is numbness without ant tingling or leg pain. I now use a rollator or a wheelchair. I've been to several neurologist and a neurosurgeon and had CT and MRI scans that do not show what causes the problem. I had tests for CMT that were unproven. That neurologist suggested it was from my lumbar spine.
No doubt Miriam our Floxie expert will add her expertise to this conversation. She did a presentation to the EMA (European Medicines Agency) inquiry in June. See the EMA web site for latest information on the drugs. She is also speaking to the MHRA on wording of the patient information going out with the drugs.
thanks Derek I am taking cardicor i m wondering if that is causing or contributing to the neuropathy?
The list is practically endless :-)
Cardicor (Bisoprolol) was what I first blamed for it as did another lady who posted here at that time. She had acupuncture from someone who specialised in treating neuropathy. I then realised that from other problems that it had probably triggered the Fluoroquinolone effect. The first time I was prescribed it was when in hospital having my aortic valve replaced and I had a prostate infection when going it that they treated. I came out with tendonitis after hardly having walked for ten days.
I find my hand(s) and arm(s) get numb, tingling or painful before I go to bed and stay numb through the night and even when this thaws out, pain and tingling sets in. Heat does help to soothes it.
First consultant I went to said there are 125 types of neuropathy we will never know which one it is. On my back he said don't let anyone operate on it they will make it worse. The first neurologist said idiopathic neuropathy.
Have you tried CBD oil. It helps some people but I've been taking it for about five months and can't really see that it has helped. My other problem is insomnia that started around the same time.
Hi I also have neuropathy though never knew that particular medicines could have triggered it.I have it in both feet.I am actually planning to attend pain clinic tomorrow but not optimistic.Takes some time to accept this condition .Good to hear experiences and support on this forum.
Has anyone heard of a patient being cured of it ? All that seems to happen is for patients to be given dangerous drugs like amitriptyline – also used for treatment of headaches and depression duloxetine – also used for treatment of bladder problems and depression pregabalin and gabapentin – also used to treat epilepsy, headaches or anxiety. If your pain is confined to a particular area of your body and you can't, or would prefer not to, take the medications above, you may benefit from using capsaicin cream. Capsaicin is the substance that makes chilli peppers hot and is thought to work in neuropathic pain by stopping the nerves sending pain messages to the brain. A pea-sized amount of capsaicin cream is rubbed on the painful area of skin three or four times a day. I use for pain in my knees when walking. It does not seem like arthritis as I don't have it except when standing or walking. In the UK you can again get it on an NHS prescription. It had been stopped for a while by the NHS.
Hi Derek,I had heard about that cream and actually got it prescribed but was fearful about using due to reports of further burning .So obviously,its worth trying.Will consider this then.Its worth trying.Thanks
Sorry..posted my reply in wrong place.
I first used it about two years ago and it seemed to disappear as another good one called Traxam has. I started to use it again recently. It may burn a bit for the first few days on sensitive skin. or areas. Make sure you wash your hands well as it takes a lot of washing to get it off and really stings if you touch your mouth or eyes. For some reason the NHS keep changing their preferred options and my GP says that this is now the favoured one again.