jan went to neurologist for about 10 years had numb side of big toe on both sides. but the pads on the bottom of my feet were now getting to feel solid, had emg on left than in april had it on right. blood work. he said it was neuropathy from both diabetes and high levels of b6 in my blood, i dont take b6 supplements. also my a1c has never been above 6.4 accept once in the fall it hit 7. i am thinking this is something worst like als . all blood work accept for b6 is good, even had an hiv test. how can i rule out als without looking like a loon
lots of unknowns i had my numbness in two toes started in 1999 and loss of muscles in feet, them legs then and now almost all of arms gone. 9 neurologists in 4 states since 2006,,,plus many other doctors wheelchair and homebound neurologist in UTSW just said ALS but she does not eally know. see my videos
only high level in blood sample only test showing any abnormality
good luck much can not be explained or treated
Moderator comment: I have removed the link(s) directing to site(s) unsuitable for inclusion in the forums. If users want this information please use the Private Message service to request the details.
http://patient.uservoice.com/knowledgebase/articles/398316-adding-links-to-posts
http://patient.uservoice.com/knowledgebase/articles/398331-private-messages
I was diagnosed with idiopathic pn 5 years ago. I came across neuropathy solutions which had helped me to reduce the complications in the long run.
Moderator comment: I have removed the link(s) directing to site(s) unsuitable for inclusion in the forums. If users want this information please use the Private Message service to request the details.
http://patient.uservoice.com/knowledgebase/articles/398316-adding-links-to-posts
http://patient.uservoice.com/knowledgebase/articles/398331-private-messages
If you have had als since 1999. That's a pretty long time