The pain never ends, results come back clear and everyone around me thinks I'm complaining about noithing.....I need help, I need a diagnosis, I'm so tired of this.....doctors keep telling me it's a functional problem mixed with fybromalgia, excuse my french but BULL**IT! Not sure what to do next but one thing is for sure, I can't live teh rest of my life like this...
Hi again Jon, I cannot help you with your diagnosis, because I cannot help myself, but I can sympathise and understand what you're going through. I am taking the therapy the doctors precribed me, but that's treating thr symptoms and not the cause. I think I lost even more weight and I have yet again diziness, tiredness and confusion. This is most probably due to some serious malapsorption, but as with you: all my results are clear. It's very frustrating!
Hi Jon,
I have seen you on the same threads as most of the people I'm beginning to "know".
I do feel for everyone who has pain every day. It's so depressing! I'm going through a bad patch again at the moment 
my bone pains are being blamed on calcium defiencey and fibro. Only painkiller they'll give me is the amitripiline like dreamy82 I do everything the Drs ask of me. Do the FODMAP diet, take the amitripiline, eat low fat etc but nothing seems to work.
I think my case my be slightly different from everyone else's as I know I have a dysfunctional gallbladder now. And I know that is triggering the pains on my left side, which are driving me CRAZY at the moment!
Can I ask what ur symptoms are? what tests have you had done etc
Gem
My gallbladder function has not been tested yet :-( what therapy (if there is any) are doctors suggesting for that problem? Are they going to take it out?
I'm presuming it could be the problem in my case too, since my pain has initially started on the right side and then moved to my left.
I'm hoping they are gonna take it out! It's been causing me endless problems over the past year and a half. I see my consultant on 6th October, I know I'm gonna have a fight on my hands but I'm the one who pushed for the extra tests as I didn't believe it was IBS. I'm absolutely petrified of going under general anastetic
I saw the cardiologist last week and he recommend I come off the mini pill as it makes gallbladder issues a lot worse. I have another appointment this afternoon to see my dr about my options. I knew estrogen could cause gallbladder issues but at no point has anyone told me to come off it?! He said they see lots of women who think have heart issues but it's actually their gallbladder a playing up. My GP also said to me that she will looking at her patients with OBs a bit more closely in the future to see if they have symptoms like mine so she can refer them for further investigations.
It's a good job I didn't just take what my dr and consultant were telling me and doing a lot of reading! Else is still be suffering everyday with no relief!
It's the pains on my left side that are driving me mad, there seems to be no end to them. No matter what I eat, or don't eat, the pain is always there
It's frustrating isn't it. 6 years of it for me. Been referred to gastro specialist for 3rd time now!
I knew that there was a connection between hormones and these symptoms, I just couldn't make sense of it!
I wish the doctors could connect this, instead of me doing research on my own. I swear that I'm a few steps away from getting the medical school diploma :-)
Anyway, I guess I could go one more time to the GI and ask for them to evaluate my gallbladder, although their looking at me like I'm crazy...and also, I'm back to Norway, so tough job!
i'm new to this subject.
i've been trawling my way through gynno forums looking for answers for 4 years.
i too am totally degected..
ibs or chronic pelvic pain was my diagnosis.
so lets have a bit of your story and try to compare notes.
how did you get around to thinking this is your site.
are your symptons different now from when it all started.
when it all started with me, igot a fever and then intensely cold.
i got terrible indigestion and heartburn and a stabbing in the left ovary.area.
it lasted for weeks.my hair started falling out and i l
ost 10kls.and my poos were sludge.
now i,ve put the weight back on but i still suffer with the gastritis type pains.and of course the beastie which i believe is causing the problem,.
so if it was acute, now its chronic pancreatitis,
ct and mri see nothing wrong with it.
whats happening with you?
I feel your pain. Literally! My story is very similar. Had gallbladder removed due to sludge..but would've thought they were lying if I didn't have the scars from surgery...bc I was still in a lot of pAin...making frequent trips to the ER. Had 1 dr tell me I had "Tracy's version of irritable bowel" another said "gastritis" or "hyperalgesia"...& ER trips in btwn where they treated me awful & accused me of being a drug seeker bc all my blood tests & scans came back normal. (Enzyme levels only showed high a few times at the beginning...& now they never change...which is very common in CP but unfortunately it's also common to have the Drs not know that...!!) had MRI's ERCP's CT scans. All normal. After switching Drs a few times...& at that point...having suffered for two years..& them not finding anything..I started to think maybe I was crazy..or that I was just a wuss..& had a low tolerance for pain. & while the dr was 100% sure it was not CP...there was only one test left to do.& that was the EUS. Dr didn't want to do it bc it was a little more invasive..& could cause an acute attack. But I begged him to do it bc I needed to know. & I think he agreed bc he thought by proving me wrong it would shut me up! But he was the one who was wrong! it is a terrible thing all around you are going through. & I am sorry that you are. What tests did you have done so far? & from my experience my advice is..find a good dr. If you're not happy with the care or the results. It's your body. You know it best. Do some Research find another & repeat as necessary. There are so many horrible things that come along with this illness...& I think the key is having a great dr. Good luck.
I sure understand pain on multiple levels,, I have RA, Chronic Pancreatitis, and Fybromyalgia plus variious other things,,, Have they checked you for Fybromyalgia? I know it causes wide spred pain and does different things to different people. Also there are many forms of Arthritis maybe you have a diffrent kind. It took several years to figure out what all was wrong with me in fact 6 to be exact. I was where you are now. ER kept telling me I had a virus. My family I think thought i was loosing my mind. Don't give up!
Though if you don't mind I may suggest, trying to see multiple kinds of Drs. Not just a Reumotoligist but maybe a internal medicine Dr. as they are fimlair with multiple conditions. I wish you the best and hope you find relief soon. you know your body better than anyone. If you know something is wrong go with your gut and seach out the answers. I only have one other small thought with CP I have a lot of aches and pains from malnurishment my body fails to asorb many needed vitamins. You could also have some kind of nutrtional deficiancy. I am by no means a Dr. but I feel and understand your frustration. I really hope you find relief soon!
oh gueeze i have to appologize to you I misread... CP is very hard to diagnose in beginning I have had it about 15 years they figured it out just years ago...... Have they done an endoscopic ultrasound? Or an Mri or an ultra sound? Mine was finally found on an MRI after i had withered down to under 100 pounds...
I did all the tests there are to do: CT with contrast, MRI, MRCP and EUS...and NADA! The doctor told me: fuctional problem...however he said, in early stagea of CP you often can see nothing on the imaging or blood tests. He couldn't confirm the diagnosis, but he did give me Creon, which I'm incredibely thankful for. My pain have significantly reduced since starting taking them. I am however kind of malnourished and feel tired or dizzy most of the time. How do you get your vitamins with CP?
I am thinking also about checking my gallbladder function, because that could have been the onset.
I take vitamins mainly D, B complex , iron , folaic acid and on top a multivitamin + probiotics... I am glad you can take Creion I can not makes me cramp badly and throw up. I had CP for a good 10 years at least before they. Found it. It has been 6 years since my diagnosis. Now I have sever scare tissue and calcium stone formations. I actually had the Dr.s tell me to give up. But I am bull headed not gonna happen. Still smiling through the pain. I wish you well. A low fat diet is so important. I am on no more than 20 total grams of fat a day. Keep on hanging in there they will figure it out I am so glad they started you on creion before worse damage was done.
Thanks a million people! For me, since 1 year ago:
Endoscopy - pancrease 'didn't look right' so suspected pancreatitis was diagnosed.
Moved hospital to get a 2nd opinion:
MRI - all clear
CT - all clear
PET scan - all clear
Blood work - all clear
Liver Biopsy - all clear
72hr stool test for fat - all clear
Multiple blood tests - all clear except gamma GT
Symptoms:
Chronic abdominal pain, mainly left under ribs
Back pain mid, left
Headaches, diziness
Stiff hands, knees, neck
Groin pain, lower abdomen, all left side.
Loose, oily looking stools
No energy, need to sleep.
I just lost my job as a result of all of this, an absolute nightmare - I'm desperate for some answers. My family and frineds tell me it's all in my head as do pretty much my doctors!
Hang in there all of you.
It is not in your head . my doctors said I had a virus. The pain you are describe sounds like CP. So hang in there I went to 7 different hospital's not including Dr. Visits before I got my answer. It took 6 years for them to figure it out. Try a endocrinologist. Just don't give up. I too am now on disability for life.... Best luck to you and sending positive thoughts and wishes your way that you find your answer soon!!
Hi Jon,
Have they not done a colonoscopy or sigmoidoscopy? With your Lower abdominal left side pain I think that should be an option and also a HIDA scan to rule out gallbladder dysfunction. GGT rise points to liver issues? So it might be relevant for them to check your gallbladder. My consultant also ordered a SeChat scan aswell but as they found my gallbladder problem she cancelled that so that is another thing to possibly check. Have you had the usual h.plyori, IBD, celiac stool/blood/biopsy tests done?
Gem
Hi Manda,
I've seen your posts on here and want to say how sorry I am that you have CP and are in pain with it
Sending you positive thoughts! Stay strong!
Gem
please tell me about the pain on your left side.
mine is always there.
i thought it was something to do with growing fibroid disrupting my digestive system.
i have become paranoid researching dr google for answers.
i have no faith in the doctors.
although i've had countless tests i still think they've missed a vital link.
so i've just taken my first dose of pancreatic enzymes prescribed by myself and and hour later i dont have the indigestion after my meal.
but the lower pain just above my pubic bone to the left is still there.
all in all i.m exited i might have made a breakthrough.
so any idea what i say to my doc.
how low down is your left sided pain?
Hi Chica,
Amongst many of my problems I do have endometriosis so the pains I have in my lower abdomen I cannot tell you if they are related to my gynaecological problems.
My pain on the left side is an almost constant dull ache in my ribs in my back. When I eat it aggravates the pain to a stabbing which goes across my ribs at the back, along my ribs at the front, in the middle of my ribs cage (epigastric), then I get an aching burning sensation in my upper back. I also have 1 vertebrae on my spine that is very sensitive to touch and aches a lot and is made worse if I bend over.
I too have a fibroid (5cm) in my upper uterus but they don't think my pain is related to that.
Gem
How long were you having troubles before the EUS diagnosed your cp? This is only test I haven't had. I've had upper left pains that go through to back and stab under left breast, left side and back, feeling of being full right up to my throat and having to wind myself! General ache and gnawing pain always on left. Never bad enough for a hospital visit and no loose stools, vomiting, pale, oily stools at all. In fact I'm mainly constipated. I continued to drink until last year or so as I didn't associate the pains with alcohol until the last year when I realised they are worse the day after. In this case after 6 years of symptoms and continuing to drink would something of shown on one of my tests? I've had tons of blood tests nothing ever elevated, stool sample, ct, endoscopy, ultrasounds, colonoscopy and quite recently an MRI specifically to look at pancreas as this was my main concern but it also looked at gallbladder, etc mrcp I think it was. They said pancreas and all ducts are normal and discharged me with ibs. Reading stories like yours make me worry so much that something has been missed! I just can't relax and trust them until I know for sure but worried I never will! I'm 33 yr old female this all started at 26 . I've had enough!