hi everyone
in the past few days my pain on my surgery site below the ankle ands side of foot has developed new pain I'd say a 8-9 that's caught me by surprise. Has any of you had this happen. I know with new physio treatments being more intense I'm thinking is the cause. I'm trying to get relief but even my Meds are barely touching it. Any suggestions, thoughts etc. greatly appreciated. Thanks ankle biters......
Hi, I injured my ankle 5 yrs ago, broke 3 bones the one in the middle right off, I had 63 physical therapy visits, 3 surgeries screw & plates, pain meds, I have a special ankle brace made which helps a lot, i ice it every night and also use heat, I soak it in Epson salt too, I keep it raised on pillows when I sleep and I rub it a lot too, keep the circulation going, good luck
Oh Dear Jannie, I hope the pain improves soon. I'm a good month behind you so have not much to offer. I got intense pain straight after they put the new cast on when they took the stitches out and manipulated the ankle. The pain was bad for well over a week, almost 2 weeks, but has settled now and improves each day. From what I've read on other's posts, it seems to me that every time we do something different - physio or re-casting, it can set off a new bout of pain.
In my 63 years of life, I've broken my arms many times, my leg twice, had a dislocating knee for years, a plate put in my broken collar-bone, a total knee replacement, ligament reconstruction, but this ankle stuff seems to be in a class of it's own with no clear guidelines of what to expect, what's normal, and the pain is different to anything else - it's often weird and scary pain yes? I hope yours settles soon Jannie.
Hi Tammy
thanking you for your post. I'm feeling like since Physio 3 weeks that my left outside heel ankle has smething digging. I'm seeng her today and will mention again otherwise I will go back to the surgeon. It hurts like hell and making rehab hard. I'm soaking, massaging etc so time will tell. Enjoy your day 👣
Hi Syneig
thanks for your kind post, God you've had your trials, yes ankles are in a class of their own. Who knew?? Im projecting a year as Paul has mentioned as with 10 weeks post op im hoping walking in a walker will be by spring?? Right now m just wanting to keep my pain down and Spirits UP. Your right wth new pain with each new thing happening. M tired f my feet taking centre stage perhaps d better get a costume for them..haha. Take good care, enjoy your day......👣💃🏃
Hi Jannie,
I'm so sorry you are experiencing that type of pain. I did have increased pain at about your time after physio. It was more pain than I'd had the entire time. I called and went back to the doctor. They xrayed it and told me to go back into the boot for 3 days. I think it's part of the breaking up of the scar tissue. You have been so patient with this and I know how wearing it is to have ongoing pain and then have it be worse. It will get better. Mentally, I'm finally feeling like there's going to an end to this. And physically I think I've made some progress, but I didn't go to PT at all last week so maybe it's because no one is pulling on it. Anyway, I evidently needed the break. Let us know what happens at your doctors appointment. Wishing you all the best!
Hey Jannie,
I was thinking of you and wondering how you are doing and how your doctors appt. went. Best wishes,
Linda
Yes Jannie - how is the pain now, after 7 days?
Hello Linda, syneid
im overwhelmed and thank you for checking in. I've been diagnosed with CRPS complex regional pain syndrome which explains my pain being up full time. It's from the nervous system and the pain throttle is on full speed ahead. It can spread and at this stage I'll be intense therapy in water, physio and pain management. I'm not sure how long it takes and if I can break the cycle but if you google you'll see there is no actual cure so I'm going have to muster up all my strength to move forward. I don't know what else to tell you but if anyone out there has heard of this and treatment I'd be happy to hear them. I'm going start a blog here on CRPS to see if there others on here. I can't tell you how much I appreciate you being here, hugs Jannie ✨ enjoy your day!
Hi Jannie,
I am so sorry to hear that. I don't know much about it, but I will look it up. Did they tell you to take the Gabapentin. I was hoping your pain was part of moving the ankle. Are there other treatments, like nerve blocks or ultrasound? Are you in extreme pain today? I'm praying for you and I have a feeling this is going to go away.
Big Hugs, Linda
Thanking you Linda, prayers always welcome. I see my GP next week for a plan it's pretty vague but nerve blocks, water, desensitizing, accupuncture, massage the list goes n. There is no cure but remission which is my goal. I'm pretty down today but know I'm rallying for better days ahead. I'm in pain constant but stress is definitely not a helper. Taking some homeopath remedies to support me right now. No gabbpentin but the cream may be up the road. At square one........you take good care, I'm in Facebook Janice Pawlik..........keep you posted as you.......xo
Hi Jannie,
I'm sorry that you feel down, but this whole thing has been tough and I'm sure having increased pain is overwhelming. Is the pain over any of the hardware? Just wondering if it has anything to do with it. My nerve pain is over the hardware and rotating my ankle seems to rile it up. Have you tried the lidocaine patch? I have been using it and it does seem to help. They can be cut in pieces any size you want. I looked for you on fb, but I didn't see a way to friend you on your site. My fb is under Linda Anderson Rebber. I'm watching the debate. I imagine you get a lot of our crazy politics. I looked up Kootenay and it looks beautiful. I've been to Banff, Canada several times. How far are you from Portland, Oregon? Wishing you a peaceful night. Hugs, Linda
Hi Linda
do you have lots of dogs on your fb dint know if that's you ? We're 12 hours from Banff - w.Kooten is 5 hours from Spokanr. We're planning a trip with our dog to Oregon next year. I'd love to talk about beach places, looking at Rockaway right now. My pain is under my hardware I outside ankles the sprained foot is also flared up. Been researching CRPS and just trying to get over the diagnosis shock. I've got a good team of Dr so go next week for a plan of pain mgt and treatments. I'll see what she says about the lidocaine I'm going try anything about now. Yes we get your debates too, and it's pretty interesting and scary at the same time. Look forward to taking again. Enjoy your weekend. Hugs Jannie
I would love to see up in your area, too. I do have a little doggie, but he's not on my page much. He is a 23 pound mini aussie. He has one blue and one brown eye with a mottled coat, quite handsome little man. His name is Quiqley, he's become our little love bug. My husband has had to do all the walking of late. I'm hoping I can go on a short dog walk myself. I cancelled my PT today, I was too sick with cold symptoms, coughing and runny nose. I haven't been in 2 weeks now. I have to say I have less pain not going there. Are you able to walk in the airboot? Can you take it off? I took some cough syrup with phenergan and codeine and I think it's making me tired. I guess I'll go to bed. Hope you're doing ok. LInda
Jannie I've been also reading up on CRPS in the last couple of days. I think you have the attitude to beat it. You might be down now, and go down periodically - that's just normal and part of the process, but I think you'll get there. Keep talking to us. lotslove. XXX
Hello Syneig and Linda
thanks for your posts and support. I cried all day after my diagnosis, now I'm just trying to accept it and find enough research on the disease which is an autoimmune condition used to go by RSD, now called CRPS. Treatments are varied and since my diagnosis is early there is more hope for remission. I'm having difficulty accepting that I'm unable to walk currently post surgery going on 3 months bum doing hydrotherapy every other day, exercises daily, massage and will probably be referred to a pain clinic that specializes in this.
Im trying to keep my wits about me and practise a very healthy lifestyle so that is a benefit. I so very much appreciate your support and love and will keep you posted. Please don't hesitate to check in with me I love hearing from you all.....much hugs and ❤️ Jannie
Jannie I wouldn't worry about 'trying to accept' it. You have a good cry, rant and rave and get angry, then depression for a while, then acceptance. It's just part of the process and goes up and down as well. Eventually, with your attitude, you'll get through all that quite naturally. You'll get there. And you've got us to moan and groan to and tell us what's happening.
Thanking you S, it makes me happy to see your post and know that there is little to no judgement like there is with friends, family and strangers......you gotta walk the walk before your allowed to talk.....people have a hard time out there, so I'm just focusing on the good people in my life, and the good people here like yourself and go day by day. I'm good at my own intuition and know what feels right or not.
Hi Jannie,
I don't blame you for crying. This has been so hard. Crying helps relieve the stress. I do have hope that it will go into remission. I experienced more pain from 10 -16 weeks. It sounds like you're doing a lot of good exercises. It does seem like a crazy long recovery. My nerve pain was driving nuts at your stage, but now it seems to be tolerable. I don't think the doctors really know what to expect. They wouldn't say anything to me about how long it would last. Hoping the best Jannie
Thanks Linda, I'm back at it, exercising, massage, water therapy, friends and husband being amazing.......how lucky are we? I'm keeping busy with planning our Oregon trip next year and I'm getting back at my art. I'll pm you as well....thanks for your caring support! Hugs ✨❤️Happy Valentnes Day.