New Research Finds Brain Inflammation Plays Significant Role in Pathophysiology of ME/CFS Patients

Brain and nerves
1

I signed up for this webinar with Dr. Jarred Younger held on Dec. 13 and posted the info for others who might have wanted to participate, but the mods wouldn't even post my discussion, for whatever reason. However, all is not lost — the host for the webinar, Solve ME/CFS Initiative, reposted the entire webinar on YouTube. I forwarded the link to my Neurologist and his associates to give them a better understanding of the science, current research and symptoms. I won't post the link, as I know the mods will remove it — I still don't understand why they do that. If you go to YouTube and enter: **ME/CFS Involves Brain Inflammation: Results from a Ramsay Pilot Study** you will be able to view it. I highly, HIGHLY recommend watching it, and sending it to your Doctors to help them understand more clearly the scope of the disease. Dr. Younger gives a presentation of his new research findings that indicate brain inflammation plays a significant role in the pathophysiology of ME/CFS. With pilot funding from SMCI’s Ramsay Award Program, Dr. Younger used a non-invasive imaging technique to measure temperature and other brain chemistry indicators in individuals with ME/CFS and control subjects. The results showed distinctly elevated brain temperature, indicative of inflammation, in patients. The involvement of brain inflammation in the development and progression of ME/CFS has long been an area of interest, but there has been a lack of direct evidence to support the connection. This seminal study further validates that neuroinflammation is occurring in ME/CFS patients and has the potential to point the way to an objective marker and effective medical treatments.

2

Thank you so much. I will watch this this evening.

Sarah

3

Thanks!!! Going straight there!

4

It's just the site policy not to post links.

5

thanks for re-posting the info

6

You're welcome! If you, like me, are tired of trying to explain the disease to your doctor, family or friends, send them this link and they may get a better idea. My mom just had knee replacement surgery, and her rehab specialists are real interested in learning more about it

7

Let me know what you think after watching. I'm very interested in others opinions on this matter.

8

Be sure and let us know your thoughts after watching.

9

Thankyou, it's good to spread education about cfs/me.

Beverley

10

Very interesting research findings,I dont know why the moderator will not allow you to post the link if it is of interest to people with ME/CFS , carers and other researchers.

11

I agree.

12

Yes, they don't let you post a link, so you have to tell it some other way. What treatments reduce brain inflammation?

13

You have to watch the video and listen to the questions at the end. There are still no treatments to reduce inflammation in the brain, but Dr. Younger and his team are working on it and they have a working theory. Reread my original post. I tell you exactly how to find the video on YouTube.

14

That it is, and I try and post everything new that is beneficial.

15

Heres another study that may interest you. As someone who arrived at cfs/me from a car crash, I am very interested in research that doesn't focus solely on immune system issues.

The biological challenge of myalgic encephalomyelitis/chronic fatigue syndrome: a solvable problem Jonathan C.W. Edwards, Simon McGrath, [...], and Andrew Kewley

16

Hi Beverley, I met a gentleman who developed M.E after a major heart attack. I will pass this on to him.

Sarah

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it's interesting to me that there are different routes into cfs/me. It doesn't change the fact that it's an awful condition but, I think explains some of the differences in symptoms? there was another report I read by a Japanese team that showed specific areas of inflammation in the brain and corresponding symptoms that occur.

Beverley

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Hi Beverley, it's unclear how it all started for me. No viral infections, no major physical trauma, although I did have emotional trauma in the unexpected deaths of my sister and brother in a car accident and both parents passing from cancer in the space of 14 months. My neurologist says that may have caused it.....who knows! I have read that brain inflammation can be seen on an MRI of which I have had two and nothing except a small bleed showed.
All research is worth reading and I'm willing to try most suggestions when it comes to trying to find a cause/cure.

Sarah

19

Although viruses have been attributed to causing ME/CFS ,there are other factors like stress and toxins which can affect the immune system. ME/CFS is and autoimmune inflammatory illness . Everyone would like to find some treatment to cure this illness, but how many people are prepared to try new, untested, treatment which may be the answer. You hear people seeking a cure and will try anything but will they? another question are you in the UK?

20

Hi, yes I'm in the UK. I tried various elimination diets after reading they may help. Exercise programs where you build up the amount you do. My Neurologist suggested pacing, 15 minutes of doing something (showering, getting dressed etc) then 15 minutes of rest. I've tried herbal and non herbal supplements. I've just started gentle yoga. I'm vegetarian and the only thing diet wise I wouldn't do is add meat or fish to my diet. Incidentally all blood tests showed no vitamin or mineral deficiency. I want to be able to spend time with and enjoy my four grandchildren so a cure is desperately needed.

Sarah