To cut a long story short I have had pain since I had my son last July it varys from back shoulders to hands feet ankles legs hips etc they have tested me for everything all they have found was low iron low b12 low vit d and folic levels so I was put on meds for that and also zapain for pain well nothing worked so went back to doctors about two months ago who gave me 10mg of ametriptilne not right spelling soz anyway that does nothing and nor do the pain killers they told me next step is oral morph which I don't want as I have a baby well 3 children altogether the other factor is that I'm always tired even after sleep ! Is this norm of fibro ? Got docs again in a week and I need help is to what I should be asking for as they don't seem to have a clue ?
Hi Sadie, poor you...unfortunately, fibro varies from person to person. Have you been referred to a rheumatologist? That is the first point of contact to confirm fibro. It's not easy with children, I understand how you feel. I have been suffering for over 20yrs but only diagnosed Aug 2014.
Getting stressed will not help need to pace and deal with a day and a moment at a time. Also ask your GP to refer you for CBT (Cognitive Behaviour Therapy) it's a helpful to mindfulness of the thought process.
Gentle hugs and many others on this forum will give you support and advice. 
xx
Hiya, welcome sadie...this is what this drug does for me..maybe you need it increased..it certainly does take some time for it to get into your system and start working well. But the dosage is really important some take higher than I do..probably some take less..although I haven't read that I don't think, also:
Amithriptilyne . is a Nerve-pain blocker..with sleep assistance and minor anti-depressant)..
Amithriptilyne is the only med I take for Fibro...gives me a great pain free sleep..- no pain..still feel a tad drowsy waking up...but that sleep is what makes this Fibro manageable for me..only get flare ups now..once it was just constant pain almost everywhere and sleepless nights..I take it 7pm before bed..it really does work wonders ( for me..that is,) we are all very different..I take 25 mg...never had it increased either ...started on 50mg but I was like a zombie...all the next day..dropped to 10mg for a while-still not too good but 25 mg is perfect for me..it is actually an antidepressant that works excellent for pain..it numbs the nerve ends and stops the pain from jumping on to the next nerve..hence a very painful body...the antidepressant is probably a lil bonus as most of get depressed from time to time..yes it does knock me out to give me that great sleep which is just sooo needed, to be able to deal with the pain etc the next day..but once I'm up and dressed..I'm fine.....Its great...16yrs down the track..have to be woken up in the morning..but once up and about I'm just fine.....when I was first on them I was like a zombie..but it's like a miracle med for me... it takes a while to settle in. ..also, please remember that less stress is the key to Fibro....be blessed..have a lovely day..:-) xxx
No not yet she keeps saying she will but still hasn't she said last time that's it's fibro but after a year of crying in pain most days you would think that she would do something sometimes it's that bad I think I can't do this for the rest of my life as I'm only 34!
Thank you for your reply it's so hard to get any where with doctor I've been in pain for a year crying most days to be honest it's like she doesn't no what to do about it the ametriptilne just make me feel dirty and moody like I could kill someone lol so at the mo I'm just taking zapain and diazepam but nothing helps I'm in pain daily some days I can barely walk here are some of my symptoms
Stiffness
Tired all time even after sleep
Pain if get poked
Hate loud noise
Periods last ages
Puff eyes
A stone put on
Confused can't get words out
Headache
Numb legs
Most of that is daily I'm only 34 and can't see myself dealing with that for the rest of my life
Hi Sadie Dr should refer you to a rheumatologist for a proper diagnoses. everything about fibro is trial error its finding what tablets suit us and what doesnt. if tablet isnt working for you then you have to tell your gp so they can try you with something else. your gp can refer you for cbt a pain clinic. some areas offer free accupuncture for 12 weeks, some areas offer hydrotherapy for so many weeks. get as much help support as you can and aids to help you. your gp can advise on what help their is for you. also see if your area has a support group at all. Tiredness pain are two big factors in fibro its something we all suffer with.write everything down so you dont forget anything when going to see your gp. fibro is bad enough to cope with when your on your own but even harder when you have children. take care gentle hugs
Thank you for your reply to be honest my doctor is rubbish she keeps saying she will refer me but doesn't so I have appointment in a week so I will be saying she needs to do something as I can't take much more it's horrible this is my daily pain
Stiffness
Tired all time even after sleep
Pain if get poked
Hate loud noise
Periods last ages
Puff eyes
A stone put on
Confused can't get words out
Headache
Numb legs
I can't do baby's popers on sleep suit I can't carry him down stairs thank god I have a very helpful 15 year old but I feel he is becoming more of a carer than a son
Hi sadie... I am 38 n mom of four and just been diagnosed with fibro after four years of suffering almost daily. I have been prescribed prozac and meptazinol(morphine based) after nothing else worked. I have also just been referred to therapist/counselling and rheaumatology dept... all you can do is keep going and through trial and error find a medication combo that works for u... everyone here is in same place, some worse, some better but i have found since i subscribed couple weeks ago that even just reading posts and replies can help my mind set cos i dont feel so alone... i wish u luck n prayers n hope we can help support u...
Thank you so much for getting back to me this means so much I feel alone as my partner says it's a lazy persons disease! Like me crying every day is lying ! I think I've had it since I was in a car crash in 2010 but since I had my son in 2014 my 3rd and 3rd c sec after 7 miscarriages it has really kicked in like most days I just cry as I just can't look after my baby properly it's horrible as I'm normally a happy outgoing person 😔
all are fibro symptoms the only 1 Im unsure about is the long period. I went through a phase where I was loosing for over 3 months at a time. I would have a word with your gp. would you be able to see another gp or even change to a different practice. its amazing how so many drs dont have a clue where fibro is concerned. having a good gp is esential to us with this condition. its normally a rheumatologist that diagnoses fibro, thats when all other tests have been done to rule out other conditions. paceing our selves is important as if we dont we can sometimes end up in bed for days or a week or more. stress worry makes our pain 10x worse. I cant take anything for pain I use wheat bags hot water bottle take care gentle hug
I've had scans on my womb and everything is normal so there unsure as what's going on I feel like I'm getting no where it's so depressing but when I go back next week I will be putting my foot down I'm also back to work Friday which I'm totally dreading! I'm scared x
Your never a lone on here sadie we are all here for each other and will support each other through this horrid condition. fibro is a horrid condition to have it affects our entire body from head to toe. the problem we have is a part from the people that have it. no one else understands it from husbands family parents friends, some gps specialists dont. It needs to be put out their more and on the same level as ms and me. its a very misunderstood condition. people want to try living in our shoes they would soon know what it was like. makes me angry peoples attitudes towards us, especially when it comes from a loved one. take care we are all here for you x
Thank u my partner is a wally lol he is 20 years older than me so he says I shouldn't be like a 90 year old etc I said to him yesterday u want to try and have it along with caring for three children cleaning a 3 storey house and doing daily shoping etc and I'm back to work this week men have no clue plus I have lots of vit deficiencies so I'm so done in !
Massive hugs back thank u x
My husband used to think it was in my head cos he would come home from work and i would be drained n crying n in pain but there were no signs of illness and if he couldnt see something wrong he couldnt understand it.. now though he has realised i am genuinely ill n that is because after four years of constant blood tests and dr fobbing me off a new gp started at our surgery... he listened n sent me to rheaumatology n for mri scans n xrays n talked to me and my husband explaining about possible triggers... he said people who have fibro usually find that a tragedy or shocking trauma triggers it... with me it was my father in law dying in 2010 in the year my first daughter should have been 11 but sadly i lost her at 3 months old...as he was the father i never had at same time as police reopened the murder case of a close friend 20 years ago which meant me reliving a traumatic part of my past and the death of my sister/best friend... all these events contributed to my fibro as according to dr ur mind is unable to cope as its in so much emotional mental pain that it manifests as physical pain to try help u cope... i am really sorry about ur miscarriages i truly understand ur pain... have u ever had counselling for those tragedies or talked to anyone... it will hopefully get easier as u learn to understand ur condition n i hope u will remember if u need to talk i will be here to listen as will everyone here
loosing as you are wount be helping things,, that needs to be sorted out. I had the same problem nothing was done for me it finally sorted itself out. I wish you had got a better gp than you have. you have 2 issues going on the fibro and the period both need sorting out seperatly. where working is concerned their is pip and e,s,a. Im not clued up on benefits but I think you can still get pip and work especially if you went to part time hours. Alot of us have had to give up work because of fibro. those that do work struggle. just take a day at a time where work is concerned see how it goes. if you cant manage it look into what benefits you could claim. none of us have liked doing that claiming anything. but to survive we have had to.. we are here for you will support you help if we can. x
I never had counseling for it which I should of I was just given sleeping meds and diazepam along with pain meds for a previous car crash I drank a lot to to try and forget the pain but it always came back I thankfully fell pregnant again and had my 3rd son last July he was a twin but the other baby passed away in the pregnancy but I'm great full for my little boy I just can't enjoy him when I'm in pain I felt the pain first of all was due to no sleep but this was obviously not the case as he sleeps now thank goodness
Thank u xx
I'm only doing 16 hours a week but I'm a payroll admin and I'm so scared I'm going to no to mess the pay up especially working in the afternoon as by 4pm I'm a zombie and I need sleep x
It sounds like you need some very serious 'Time Out'....No kiddies for a day or two. Rest, sleep and lounging between sauna's, thermal pool/s, AND MASSAGE.. gentle one and doing no cooking or cleaning for that duration. Allow others to do that. Then see how you physically feel...
Your young, with some tension and probably some stresses.. Can you at least take time out, Hot bath soaks, massages and some good rest and sleep?
The last thing you need is for issues to 'turn into a Fibro condition'...if you haven't got it already...
Feel for you sadie... Big hugs..
I wish I could have a break my mum normally has children once a month so me and partner can have a night away which I do relax a little but I feel bad as I'm just tired all time and my partner wants to spend time and all I wanna do is zzzzzzz lol if I could I would go to bed at 7pm every night
I would see how it goes, but I would look into claiming pip if it is you cant carry on working. also ask for your gp for vitamin d tablets I was low in vitamin d so gp prescribed vitamin d tablets for me. x