Cinnamon apple, probably any apple tea, most berry teas or fruit teas, lemon-ginger combo ,,, am not at home, trying to think what's in my pantry. Honeybush, which like chamomile is a bit soporific. This is all I can think of now. Pear tea, or ginger-pear, is good.
The unsweetened flavored waters which I get, Hint brand, are more bioavailable when chilled than just my ultra-filtered cold water.
I keep meaning to say - do you see an optician regularly? If not most high street opticians (I only know about UK) can check your tear break up levels and do a test to see what the mucin levels are like on the very surface of your eyes. Mang with Sjögren’s will only notice that there eyes are very dry because their meibomean glands are blocked or because their vision is off/ blurry. Many feel their eyes are extremely dry due to drugs like Amitriptyline and other antidepressants or pain meds or ageing.
But actually lots of others won’t even be aware of how dry their eyes are until they are thoroughly checked out using special dye and a magnifier.
Most with Sjögren’s will have 3 different kinds of eye disease goug on but could be pretty much unaware of two of these until corneal abrasions occur and start to impact on their vision. So you might be thinking your eyes aren’t dry or may have had Schirmers show normal levels of tears. But only a good optician or ophthanilogist will be able to really tell you.
Wow, Christine, that is very troubling. I assume that you've looked up all the fucidin side effects? Here in the States I'd ask the pharmacist too as they sometimes have more detailed info.
We here are inured to rheumos blowing us off but I've not heard of ENTs dismissing folks with swallowing issues, sore throats and low grade fevers. Who first used the word hypertrophic, you or a doc?
I use Clarinex, Elestat (eyes), saline spray followed later by Nasacort for all the regular allergies and keep Benadryl in reserve for severe allergic reactions &/or whole body itching. I've also had it IV in hospital for contrast medium allergy on CT scans, & so I could have steroids.
The doctor said the lymphoid tissues I have at the back of the tongue are remnant from my tonsils that had been removed 12 years ago. Right now I saw another walk-in doctor for my swollen throat. He was puzzled, he says he has never seen such swollen glands in his life. He says I need to see an allergologist. He also suggested I might have Mikulicz Syndrmome which is very rare. I'm in despair...
Ladies, Today I have a very swollen throat. Been to a doctor, he was puzzled he says he's never seen so severely swollen lymphoid tissues at the back of my throat. As i don't have a diagnosis yet, I don't know what it can be. I run a low grade temp with this. I want to attach a picture I don't know is its not appropriate the moderator may delete it. But would like to know if anyone ever gets this swollen throat. I'm in despair right now.
I was just diagnosed with SS and lost smell with limited taste. Did you get you taste and smell back? If you did, how?
Thanks much!
Linda
I was justs diagnosed with SS my primary care doctor, waiting to see Rheumatologist. I also lost smell and taste with very dry burning mouth, dry nose and post nasal drip maybe caused by GERD.
I am afraid I will never get taste and smell back.
Linda