celia14153, are you going straight to 17.5 or doing a modified DSNS? I am doing a modified DSNS. Started it on Monday and walking twice a day, PMR pain free so far. Good luck on your journey, put that smile on your face. 🙂
I wasn't sure whether the slow tapering started a bit lower. How do you run modified DSNS?
celia14153, one the other members gave me the idea and I think it is great. Instead of 6 days reduce to say 3 or 4 and do that. I am using 3-1, I also split my doses. Like now 20 is 15 in morning, 5 at bedtime. 17.5 is 13.5 in morning, 4 at bedtime. Schedule as follows:
1 day new dose, 3 days old dose
1 day new dose, 2 days old dose
1 day new dose, 1 day old dose
1 day old dose, 2 days new dose
1 day old dose, 3 days new dose
And there you have it a 16 day schedule, if it too quick you can increase the days, but I will stop if I get any PMR pain and back to the dose where my PMR was undercontrol.
Hope that helps, smiling. 🙂
That's really helpful Mich - thanks so much. I feel you've done all my work for me! Definitely don't want PMR pain back - or steroid withdrawal pain. Good luck to you - and you do make me smile - although I'm worried your cheeks will ache 😄
celia14153, I think it is easier to smile than to frown. 🙂🙂
And you are welcome hope it helps.
Don't frown!
😄😄😄😄😄😄😄😄😉
Celia, I modified DSNS by dropping.5 mg for first half of a taper, and then dropping a further .5 for second half, at the same time making the first "new" dose my new "old" dose, so I was never dropping by more than .5 mg at a time. Started that at about 7 mg. Now I only drop .5 for the entirety of each taper, currently at 1.5.
Thanks Anhaga - it's good to have these options and work out what's best for the stage I'm at.
That sounds like another good idea Anhaga, I will put that in my bag of trick for when I get that low.
Thanks 🙂🙂
One question Anhaga are splitting one mg tablets to get .5 mg? Maybe when I get that low, but now I don't know!
😂
Hi, and Welcome: Even if it's not a great reason to be here, you have come to the right place for information and advice. I have had PMR for 16 months now, and when I started I had no idea about PMR or Prednisone until I came here. Eileen is great with information and also a lot of good support here.
As for you age, lot of rubbish, some Dr's and Rheumy's need to study and update their information.
I have spoken to many ladies on the PMR support page on facebook and they are in their late 30's etc. Some had been told you are to young to have PMR to find out a year later they do have it. This make me so mad.
I am late 60's so I accepted that I had it.
I wish you well on your journey and many pain free days:
I split 1 mg to get .5 mg. I also found splitting 5 mg and adding appropriate 1 mgs useful for other doses.
Thanks Anhaga, the 1s look so small, but I do have a pill cutter and works good on the 5s, so I should be okay. If and when I get that low. But I am smiling.🙂
What Anhaga means is that down to 2.5mg you can cut a 5mg tablet to get a 0.5dose - adding uncut 1mg tablets to make it up.
Off topic!!
How's the weather in your part of Italy? Are you bracing yourself for the heatwave?
We have been lucky with regard to heat - we have had about a week at a time of low to mid-30s temperatures and it has always cooled overnight to about 15/16C. Down in Bozen the nighttime temps haven't been below 20C for a couple of weeks at least and daytimes have been up to 37C. However, we have had "Unwetter", mostly in the mountains a bit further south and it has just missed uu but last night was particulalry bad and several roads are closed after mudslides. A village about 10 miles away had over 4 inches of rain in a very short time overnight and the village has been hit by massive mudslides - no-one hurt though.
It is 1pm and I'm sitting at the computer watching an approaching thunderstorm with the lights on it is so dark inside. Don't think I'll be sitting on the balcony today - it's coming from the west so could soak the entire seating area, it's already 3/4 of the way to the back!
I assume you're now in Bozen then? Did you find a good camping place?
No, very much still at home yet - for another 10 days, then nearly a week in Halle in der Saale all being well. Then it all happens medically speaking.
EileenH, I doing that for the 3.5 now. She was mentioning a .5 and with the way my fingers are I don't know if I can do that. But I had a nice walk met some nice people on the way, didn't get rained on stopped in a carport. Big smile. 🙂