Hi,
I've never joined anything like this before and I'm not really sure what I do with it. However, I was only diagnosed with UC in the last 8 months, it was a long process with many missed diagnosis and even the thought that i was a drug addict. I have found it difficult to come to terms with everything. I'm hoping that by joining this forum I am going to find out some more about the condition and hopefully I wont feel so alone.
Catherine
Hi Catherine please dont feel . the great thing a you have a diagnosis! I got my diagnosis in January and found that accepting what you have means your half way there. Take care of yourself xx
Hi Catherine,
Welcome to this forum, you'll find it a great place to understand your condition. It's all about big and daunting at first and you'll want to read everything. This is a good place to start.
Wishing you well.
X
Don't worry you'll do great! It will be one of the most hardest struggles you'll experience, but eventually your life will be close to normal! Just takes dedication and time! Take control of the disease, don't let the disease control you!
I'm about 8 months along with UC, it's been hell in the beginning, but doing things to help your body and mind is worth it!!
If you are in UK then try and get a referral to either St Marks Hosp London or John Radcliffe Oxford as they are the Gold Standard for IBD, UC or Crohns. The treatment maybe a bit trial and error at first everywhere you go as each person is different in their reaction to meds and degree of ulceration etc. The charity and this forum is useful as they give you tips and empathise so you don't feel so alone. Good luck to you.
Hi Catherine, everyone on here knows UC is a rotten disease, I've been diagnosed about 2 years now and coping lots better than I was. At first I didn't think it would be that serious or affect me that much but then I landed in hospital with a nasty flare. The best thing I did was buy a good book on the disease, as much as the internet is good for info, get a book - it consolidates everything and makes it much easier to understand and get your head round. Steroids work for me to get me out of a flare, but unfortunately immunosuppressants gave me pancreatitis. But definitely invest in a good book - you can even download good ones straight to your kindle if you've got one - get reading and take control!
Good luck with it and hope you get/stay well
xx
Thank you.. I think I have finally started to accept that it has happened and I can't change that fact, I just need to learn how to live with it and not let it take over my life.. Xx
As having UC, for while 7 years or so, have found drinking a water high in silicate really calms down a flare, I always drink the sort filtered through layers of vocanic rock. Last flare I had before startng on the water the coloitis team said have some vaccinations, then we'll put you on Azatthioprine. Kept on drinking the water, and threw the scrip away! So I didn't have the jabs after all. Don't know, will it give you hope?
hi cathrine, aww dont dispair love, it can be tough thats for sure, i had a hard time myself having to go private to find out what was worng with me cause my GP didnt give a dam, i had no clue what UC was, id never heard of it, nor did i want to know what the next 6 yewars had in stall for me, i was in my late twentys at the time and now 55 yea a few years have past, but you know youll be suprised at where you get your strengths from love, i never thort id survive it all and nearly didnt on a couple of occatoins but here i am i duno how many years later tow boys later, 26 and 18, am working full time, minimum 50 hours a week, u no what sweetie, lifes good you will get through, use all the support thats offered you, try and think of possitives rather than negatives sounds easy yea a no but can be atchieved, ok i may have to live with a pouch and not have normal bowel functions, but it saved my life, i wouldnt be here without it so i accept it and just get on with my life, sray strong look in the mirror, smile and love what you see ive only just recently joined the forum dont get nuch free time to get on here but its nice to be a part of somthing others also have, and hopefully give somthing back to people that are finding themself going through circumstances similar to my own, keep talking to people, get out and do things when you can, and are able, your not alone sweetie, hope this little rant helps, take care x
Hi, I'm newly diagnosed too..it all seems so sureal and scary. Looks like this forum will give us a boost just curious to find out what you all do about working I currently work in an office and am struggling to stay sat down as so uncomfortable any ideas old be greatly received. Take care all x