night time burning legs

Bones, joints and muscles
1

Hi, i really don't know if this is associated with RA or not but this only occurs at night from12 - 7am. I feel like my blood within my legs is on fire. Does anyone know what this is? Many thanks

2

Have you spoken to your doctor about it Emily?  Conditions like diabetes can do that but, so can drugs.

Are you taking any drugs?

3

Hi Emily,

my legs feel really hot and very achy most of the time, so it could be a normal thing with RA and Fibro, however, I am wondering if you take a particular medication before bedtime?  if so, maybe it is causing this awful symptom. 

4

I don't take anything I'm so baffled thanks for your replies

5

Hi Emily,I have RA symptoms(,not diagnosed) but I do have

degenerative disc disease in my spine.When I lay down at

night I get odd sensations in both legs.I'm just wondering

if it could be an issue with your spine somehow.Just a thought.

I hope you find out the cause soon

6

Hi Emily, I also have burning sensations in my lower legs and feet which are worse at night. It feels like the insides of my feet have sunburn. My hands and feet are very hot and dry all of the time which has been proved to be high levels of inflammation, this is not due to meds as I have had it long before the meds started. I find that putting a cream lotion on my feet and leaving them uncovered in a cool room makes it a little better. It also seems to be worse when my legs are elevated such as sleeping. The rest of My skin is very itchy too but not burning. Hope this helps, I find it gets less with Predislonone but I won't take that unless I have a flare where I have pain.

i am on 10 mg of Methotrexate (liver damage if I take a higher dose) and Cimzia biologic injection every fortnight. For a while things got better but now they are getting worse again, it's a horrid feeling isn't it? Hope you get some relief, definitely tell your Rheumy about the burning and if they suggest some relief, please tell me too. 

7

I wholeheartedly agree with Mary

8

How long a course of predisolone did you have? Did you have nasty side effects? Thanks for your input

9

Hi Emily, I have had several courses of Predislonone, one of 60mg which was a huge dose but at the time they thought I might have temporal artritis, it caused a dreadful feeling of rage, a huge moon face, massive appetite and huge shoulders! I have had several other much smaller doses over a short period while waiting for the MTX and Cimzia to work which have not caused the same problems and it's been great to damp down flares but I still won't take it unless I really need to, although when I do its with a feeling of relief that I will get some respite.

10

Thanks Mary for this what dosage was your smaller predisolone on 20mg?30 mg? How long was it for? Thanks again

11

Emily, I keep 1mg tablets in the house and usually take five a day for about a week so only a small dose.

You should speak to your doctor/rheumatologist as they may have other advice which can help, maybe antihistamines etc. good luck.

12

Many thanks Mary x

13

Hi Emily, I am also suffering from burning legs and feet.  It started with my first loading dose of cimzia 4 weeks ago.  I took my 3rd loading dose on saturday and the leg burning is still a major issue.  It is keeping me up nights and they bother me most of the day as well.  I am also experiencing muscle pains and tenderness.  It's hard to tell if the medication is really  helping my RA because the burning and muscle pain seems to be worse.  I talked to my doctor last week and he upped my predisolone to see if that would help but so far no luck. When the Cimzia nurse called after my first injections I told her of the leg burning and she said that she hadn't heard of that being a side effect of the drug. I would be very interested if anyone else is having the same problems!

14

Hi Zt bowlers, I am on Cimzia fort nightly injections too but my burning and hot dry hands and feet started before I was even diagnosed with RA. Even with all the meds I was taking my levels of inflammation didn't reduce so I was given a bone scan which showed very high levels of inflammation still in those areas. Talk to your rheumatologist, mine is getting worse at the moment and my hands and feet are showing signs of swelling, if yours are feeling the same then see if you can either change or up your meds to prevent further damage. Good luck.

15

Hi Emily I am facing these hot legs problem as I ly down on bed or about to sleep my lower body becomes very hot and I cannot sleep it happens on and off do you still have this issue did you try any herbal remedy or medication just to let you know I am withdrawing from amitriptyline so that a withdrawal symptoms please any tips to avoid thx

16

Hi,  I take one Amiltriptyline at night to help me sleep, they are classed as an anti depressant but work better as a muscle relaxer. I have not heard that you have to wean yourself off them or that they are addictive. My feet, ankles and hands are burning hot most of the time which has proved to be high levels of inflammation. When I took 20 mg of Methotrexate it reduced the heat but I have had to stop taking it because of liver damage and so the heat has come back (we can’t win!) I also take a biologic, first it was Cimzia then changed to Actemra but this has caused problems with Diverticulitis (back to not winning!) so it is being changed in January to another one which I think is called Orencia. I hope this one works better at reducing the heat. Hope you find some relief with the heat.

17

Hi Emily.  I get these symptoms so bad I am unable to cover my legs at night.  I also have them in my hands.  I am really coming to the end of my rope.  Have you been given a definitive diagnosis?  I'd love to hear from you.  

18

Hi there I had this dreadfully for four months I honestly could have cried but now I don't have it in my legs but my arms and back! Very strange I don't know if it's fibro or RA or a crash in hormones after giving birth I'm baffled myself if u give up gluten and coffee it really helps my pain xxxx

19

Hi Emily.  Thanks for your reply.  I've had this for months.  I'm 74 and widowed. I've been to the Doctor and She said that it was Raynauds Syndrome.  Given Gabapentin but not having any impact.  Going to make an appointment tomorrow to see another Doctor.  I'm not sleeping at nigh due to continuous burning.  Really bringing me down. Good news that you are better now..

20

Hi I'm really sorry to hear this have you tried nytol the antihistamine in it prevents allergies the doc recommended and worked for me the blue nytol not green one! Worth a try... take two it knocks you out and you sleep well but ideally only used for one or two weeks! Take care and best of luck I'm only 33 was was making my daily life a chore x