Hi I've been diagnose with CFS and things are up and down . Just wondering from those who have cfs does anyone else have numbness tingling ? I have it constantly in by outer left leg. Left arm and led hand and sometimes in my dad and tongue . Again I the left side . Would be interested to hear from others as generally not mentioned with cfs. I hsve had brain and a mri both showed nothing .
Hi, yes I get numbness, pins and needles but my neurologist said it's caused by small Fibre Neuropathy not the CFS. I had tests done to rule out large fibre neuropathy. Might be worth getting it checked out.
Yes, ive heard neuropathy is a common symptom. I have autonomic neuropathy, dysautonomia, POTS. But I think its strange how most of my other symptoms are focused on my left side. Tender lymph in left arm pit and left inner leg. Left arm feels weaker. Left jaw locks (prob coincidence with having braces) left tonsil has more inflammation and few whitish spots. I recieved my first and last flu shot on my left side. Im pretty sure my mecfs is caused by chronic ebv or some sort of strep/staph. Well I also suffer from heart pain if I do too much. Hearts on left side. Hmmm. Doodoodoo(twilight zone) lol. Oh and i did have skin cancer removed from left ankle a few years ago. But prob just a coincidence. Strangest illness ever.!! Best of luck!
Yes, I developed these symptoms after a relapse 3 years ago. My doctor said they have to do with nerve issues. I believe he mentioned the small nerve cells in the brain. No tests I had, including a nerve conduction test, revealed anything wrong.
Thankyou i was becoming a little concerned that I had not read anywhere about only one side being affected. I've heard of it bilaterally and random but never the same side . Thanks for sharing . Best wishes !
Thank you .
I get numbness too and always in the same places - left side of my face, left arm and bottom of my right leg. I was told it was probably due to nerve damage caused by the Glandular Fever virus I had when I was first ill. It always appears when I've overdone it and goes away when I rest. It used to get me quite stressed but I now see it as my body's way of telling my I've done too much and that I need to rest more!
Yes it's the same for me eorae when im really exhausted .
Yes I have all this too most of the time .
That's something to think about . Thankyou
Just want to jump in here. Hope that's ok. My ME/CFS specialist said that the pins and needles is indeed caused by small cell neuropathy. But he also says the small cell neuropathy is caused by the ME/CFS.
How are you now Elaine?
I have pins and needles in arms and legs/ sometimes face, and was diagnosed with M.E 8 years ago.
Did you have an MRI scan for MS?
Hi Ronda
I still get the occasional numbness in face, arm and leg and have it as I am writing this! It seems to come on when I’ve done too much or had prolonged stress which causes the muscles to tense up. I wasn’t tested for MS but the doctors ruled it out by my symptoms. I know a couple of people with MS too and although a lot of the symptoms are similar to CFS others are not. I had improved slightly before the coronavirus nightmare started but have now relapsed. I think the constant stress of it all plus having to change daily routine and extra cleaning/wiping things has taken a lot out of me. I’m currently trying to find a new normal that works for me.
Hope you are managing in these strange times. Stay safe!
Elaine
Thankyou for this Elaine that’s really helpful.
I’m finding the lockdown exhausting too.
I love having all the family at home but it does involve more work ( meals etc, cleaning..)
That’s reassuring regarding M.S
It does seem we share many symptoms but I did hear there are differences too.
I hope you get to take it easy soon.
I’ve eased up on the disinfectant..hoping the risk is minimal if I keep washing my hands!
Thankyou for this Jan.
It worries me when a new symptom appears - it seems that when one settles down another starts up!