Hi everyone I really hope to hear from some people. As I am currently wishing to end my life. I have two children very young and also only 26 myself.
I really struggle to go to the toilet and can be sat for hours. The stool is there it just gets stuck, even when stool is loose I had to strain. I find the more formed my stool is the better. I have been told a muscle in my bowel has lost support and they is nothing that can be done about it surgery wise. I can hardly even wipe inside my bowel because they is so much descent, honestly feels like my bowel has closed off it this makes any sense to anyone. I can't find anything online about these actual problem's. I have been told by doctors I will just have to find a way round it and life with it. But its extreamly embrassing as I don't know if they is stool in my rectum or not because I be walking then I feel something is there. I am not aware of stool being inside my rectum or not.
I tried pelvic floors and found my descent got worse, I also have a small rectocele. I taking prucalopride which does not help wuth my problems. I been giving biofeedback which does not help either and got to the point I just want to tell all the professionals I don't want to see them because I am wasting my time with them.
Have you seen a surgeon who actually specializes in rectal problems or have you mainly dealt with GP's. In my opinion you need a referral to a Colorectal Consultant. Good luck with it all, how distressing for you at such a young age.
Hi Susan thank you for replying.Yes it was the colorectal consultant who said nothing can be done surgery wise. I had the camera up the bowel and they seen something and thought it be a prolapse/even said next time I see you it be for surgery.I had a xray done on the bowel which showed I don't empty properly, also a small rectocele and bowel descent. I was told my stool will always get trapped and I will just have to cope with that. I told them I can't cope no more, I never go out. I can't go back to work because of this. I would actually jump at the chance of having a stoma bag the way things are going. Don't think they would offer me one.
Ruby please DO NOT end your life! You need to find another doctor, you do not need to live like this.
I’m not a doctor or counselor but I find that reading the stories here helps, and people are willing to talk and help.
By the sounds of ur problem you should probably have a colectomy. You need to talk with annie76946 here on the forums. Look for the discussion “colon removal” by annie76946.
Please reach out for help
Thank you for your help I have found Annie post.
I am just having a very hard time coping, crying all the time I can't even hide how I feel anymore from my family because I am so emotional about it all being told to just get used to it by the colorectal surgeon. I think I do need to see a different surgeon or demand they run other tests, even the same as I already had done as my problem's have got worse over time since.
Ruby I’m sure your very emotional and that’s to be expected. I can’t imagine trying to hide ur feelings. Stress is a huge deal when it comes to these issues, holding your emotions inside will make things worse. Your life is important, don’t take no for an answer from the doctors, demand better care. You can always vent here. Take care and keep up the fight
Thank you for your words you are right! This is my life and I feel the doctors are the ones not doing enough to help me.
Hope everything will get better for yourself too. I am sure I be back here to vent the next coming weeks.
try colon irrigation;
there is surgical treatment but you may not like it
How are you doing Ruby? Just checking in
I tried suppositories and work great but don't want to make my matters worse if they not willing to do anything surgery wise.
What kind of surgery would you say is available. Thank you
Hi, Thank you for asking. How are you? I am at the doctor's next week and seeing the physiotherapist. I am feeling better in myself, trying to stay positive that my life won't always be this way.
I happy to hear that you have appointments next week, it always helps to have something to look forward to.
I’m hanging in there, I’m counting the days until surgery, 17 days to go. I know that the days ahead are going to be hard but like you said it won’t always be. Trying to stay positive!
Good luck next week hopefully you will get some answers.
What surgery are you having? 17 days will fly, keep yourself busy if you haven't been.
I never get answer's just more confused professional's lol. Hopfully that change.
I’m having a resection and gallbladder removal. I’m trying to stay busy but it’s hard to do most anything due to my pain and being medicated most days. That’s why I spend so much time here. 
You can read my story if you want at
https://patient.info/forums/discuss/waiting-for-surgery-my-story-618392 ;
It's nice your supporting people during your pain, I tend to feel sorry for myself instead 
Oh no Ruby. This is my same problem. Had one pelvic floor therapy session. I was hopping this will help if I have enough sessions. Now u have said it's a waste I am worried. My life is horrible cause of this. I use an emena bag everyday to empty myself. That's not a good long term plan but it gives me relief. We both need some advice. Anyone?
Hi Nancy, try and stay positive and keep with the pelvic floors. I still do mine, but I do feel I got worse for some strange reason. Don't think I am relaxing properly, always tense. I constantly look pregnant because of the bloating. I tried to keep off the emenas, they do help. I use them every so often just so I can take my children out. It is no way to live
I think we should stay in contact about our treatment. We could help each other?
Do u wake up every morning with the urge to go? Burning and pressure sensation in the anal area? It's like waking into the same nightmare everyday. I am looking for some relief from this condition and hear the Cleveland Clinin in Ohio specializes in this. I am looking into finding a new health insurance that would cover this. Yes u and I seem to have similar issues. Gotta keep each other up on anything we find that will change this lousy merry go round. What does the physiotherapist do for u?
I don't get a burning pressure in my bowel and I lost the urge to go most the time. I am almost unaware if I let out some stool.
My physiotheraphist actually has this, she has soiled herself before, she just said she did alot of pelvic floors and when she got the urge to go she will sit and hold it off and do some pelvic floors. Maybe you could try this.
During appointments I recieve biofeedback, she checks my pelvic floor strength. We also talk alot mainly. About how everything going, different medication I could try. She personally believes I should just have surgery. The rest of the professionals are following what one person says who carried out the investigations I had done. I had a xray done on my bowel. Thats when it came back I had rectal descent and obstructive bowel defecation. Also a rectocele.