Oh I am feeling so much better, no meds since yesterday morning. Feeling better this afternoon than this morning. For me the meds have been worse than the TN....but I need to find a compromise between the two
The pain of the TN for me is to bad so the side effects of the meds is something I will have to live with hope you find what ever works for you
Im new to this site as of yesterday. I'm so glad your off your meds but, be careful. I did the same thing.
Now, the pain is constant with no relief. I'm still trying to get it calmed down. Haven't worked fo 6 months now. I'm praying it works for you.💕💕
I feel for you. Besides rashes and mouth sores and other side effects....I could not stop crying. I am going to slowly go back on gabapentin
I also get really tired and dosey on them as well as light headed and dizzy etc but all of the side effects are so worth being pain free 80% of the time 😔
So pleased to hear that you are feeling better! It's such a relief when you get some sort of remission. I hate the way my meds make me feel(Carbamazepine 200mg 3 times per day, Gabapentin 300mg three times per day and Amitriptyline 50mg at night) and honestly sometimes they don't really do anything anyway! I feel lethargic, dizzy, and have a tendancy to fall more often when I'm on the full dose - I fall enough as it is due to having had polio as a child, so I can do without more falls...Lol!!
Also I find I cannot drive when I'm on the meds which makes me feel so depressed. I love driving and I can't use public transport to go anywhere, so I'm hoping I can get some other treatment for the TN pain. I'm waiting for the results of an MRI scan to see what treatment might be suitable.
However, I love to hear of someone getting some respite from this horrible pain, it gives me hope!! xx
For me the meds are worse than the pain. I do not know if that will hold true in the next few weeks, but I definitely have a low tolerance to all of these meds...in fact to any meds. My mother was the same way. I am on the list for MVD surgery next spring or summer....and my mri did not show a compression, but apparently that is not uncommon.
That's interesting about not finding any compression showing on your MRI scan but still offering MVD surgery. Not sure how I feel about surgery, I've had a LOT in the last three years, two mastectomies and an ankle fusion...I was hoping to avoid anymore for a year or two...Lol!!
I am back onto gabapentin 100 mg bid...so far so good. If I take a mid day dose I am out of it for a couple of hours. I just can not tolerate the side effects.