ive just been told by my neurologist that my saliva glands have shrunk, what do I do now ?
I know that only too well Maureen. Mine are beyond repair. It's interesting that a neurologist noticed this, do you have POTS or peripheral neuropathy as part of your Sjogren's? Have you seen a rheumatologist as Sjogren's comes under rheumatology, even if you have JHS like me! If you live in the UK I suggest you ring the BSSA the charity and if you would like to join FB I run a Sjogren's group on FB called British Sjogren's I am Pam Newman. The BSSA will be on the Internet, if you decide to join they have local groups and an annual conference
Hi Maureen, I underwent a procedure to try to widen mine and open up blockages. Do you feel the shrinking has affected their functioning?
Hi Shira,thank you for your reply, I have no saliva glands left, I just keeping water and chewing gum, I chew my food very slowly. But s/s
seems to be one of those things that you have to grin and bear!
Best of luck. 🍀
I think you ought to see your consultant
Are you referring to the main salivary glands (parotid glands)? I understand we have many different ones.