After suffering chronic olp from two years I have finally seen a brilliant surgeon at guys London turned out I had extremely high thrush count too so I'm on Nystatin and flixonase which I mix together with 10ml water and swish for 3 minutes for three months to keep both problems at bay and my mouth is pain free at last all ulcers and soreness has gone hallelujah !!
Wow Mary that’s great! Continue healing YAY 👍🏼🎉🙏🏼
I thought flixonase was only a nasal spray?
It's the nasule drops he said to empty on pipette in the water with the nystan for olp ! It's working anyway xx he said if you use just steroids for olp it will give you oral thrush that's why I'm using both medicines he's the first doctor who I've seen who seems clued up !! I'm so happy to be out of miserable daily pain I hope other people may try this and find relief god bless you all xxx
Thanks Julia my thrush count was 10,000 (mega high) no wonder my.mouth was red raw !! I took 14 days of flucozanol first to flush it thru.now the other two meds should keep everything calm gotta see a haematologist to see why my white cells are so low !? Xx
That is awesome!
Thanks for the great info. How did you get your referral, GP just says nothing you can do just keep an eye on it, for the last 7 years !
This sounds amazing Marypooh - was the specialist your local doctor or were you referred especially? I’m so fed up of seeing my doctor and just being given the same thing over and over even though I’ve said it doesn’t work!
I just said to doc I'm fed up and can't carry on with pain so she referred me to guys the Dr cook I saw is an expert in olp he said there's no cure but at least we can keep things calm xx
My local doc referred me because you need a specialist in this field local doctors don't really know enough about olp !!
That is fantastic to hear! So, so pleased for you x
I meant to add, what is the doctor's name? x
Dr. Cook he's brilliant and has a lovely manner xx
Dr. Cook he's brilliant and has a lovely manner xx
Where is this Dr Cook? In the United States?
No he's in guys dental clinic London UK !! Xx
I doubt my gp would be able to make a referral to him, we are in the West Midlands!
I wonder if my dentist would refer?
Well I'm from Kent so it's a fair train journey for me but well worth it ! Maybe there's a dental surgeon at your local hospital that could help ? I just want everyone with olp to get a treatment that works for them . I didn't even know I had oral thrush it was only coz they did a saliva test at guys !! Wishing you luck x
Yes they should be able to xx