Hi,
I have been diagnosed with severe form of gastroparesis. I have literally tried everything medicine, all liquids which is what I’m on now. I am still extremely sick. I am severely anemic and vitamin deficient . When I throw up or have a bowel movement it is like fireballs coming out. Nothing helps. I was supposed to have surgery but my insurance came back and said that I’m not covered for that and they won’t cover me even though it is medically necessary. I have notes from all of my doctors saying how critical it is that I have it. So I just do not know what to do because my body is declining very rapidly. If someone has any good ideas please let me know. Thanks!!!
Hi, I don’t struggle with what you have (only diagnosed with gallstones, I’m 16) but there’s a YouTube channel I follow who deals with severe gastroparesis and other illnesses. Her name is Chronically Jaquie and something on her channel may offer you some guidance on what to do.
If I may ask, what were your symptoms before getting diagnosed? I know I only have gallstones and have had no other major testing besides blood tests and an ultrasound, but I still have a big fear of having gastroparesis. Besides that, I hope you get to have your surgery soon. Feeling awful everyday is no way to live.
Can you change your insurance company?
Hi,
Thank you for advice . In answer to your other question my first Symptoms were extreme nausea and pain that just never went away. Then I started vomiting anything and everything it did not matter what it was. Then I started having severe diarrhea and I also noticed that every time I throw up or had diarrhea it was like fireballs and it never goes away. Those are some of my main symptoms and worst but the list goes on forever.
I wish it worked like that but no unfortunately I can’t . I am on my dads insurance until I finish getting my doctorate. I did however look into that but no insurance company will touch me because of my health. Well at least the ones that I need that would cover the kind of surgery I need . But I appreciate the thought. Thank you
Thank you for telling me. I hope you get the surgery you need soon so that hopefully you can find some relief.
Thanks The surgery not so much about relief any more it’s about survival now. I hope I helped because no one ever deserves to feel like this or live this way.
Would your dad be able to pay for your surgery? In Great Britain we have a free NHS and private care too. On occasion, I have opted for private care and my dad has paid for it. Since you are desparate, you could always ask him.
No unfortunately he can’t. I wish he had 50 to 100 grand laying around but unfortunately he doesn’t.
Try going back to your doctor for further advice. Maybe they will know how to get through this impssse.