I am 56 years old and I just had a prostatectomy nerve sparing hopefully. Incontinence looks like it won't be an issue at all now thank God. However down below there is absolutely no reaction and I fear no hope and that scares me to death. It is deader than dead and shorter I might add , all of this I had knowledge of beforehand as a possibility but of course I was hoping that it would not happen to me. My question to anybody out there in this forum would be ... is there anyone with similar experience as me and similar age with some sort of timetable of successfully regaining sexual function. I need something to hold onto. I need hope
Mark I am 57 and had my prostatectomy in February so I am about 7 months ahead of you. As soon as they give you the go for sex I would get on injections. You may find that your orgasms are more instanced then before which is a good thing. I would also start a pump therapy as soon as they give you the OK. Using the pump every day for the last 7 months and now injections I think I have got my size back close to where it was. There is a great support group on cancer forums under prostate cancer of course. Ask me any question s you have I wish I would have had someone 7 months ago.
Hi Mark,
Well so far so good. PCa, Tick(we hope), Incontinence, Tick. Now from what I see here on this forum and others, the last item on our wish lists is sexual function return. It seems to return often much later on, 3-6-12 months. Maybe with a bit of viagra etc to get things working, then hopefully, solo.
Geoff
Hay mark, I just had mine done on 8-16 2016 and I am experience the same promblem. Hope I get the feeling back soon, I'm hoping that the feeling will come back soon because I'm only 47. Can some one shed some light on this issue for Mark and I??? Please!!
Mark,
Listen to Tybeeman. He has gone through this and is an excellent resource for you. The sooner you can get stimulation to that area (with doctors approval) the better the results tend to be. Do the injections and if you can't (psychologically or physically) do them to yourself, have someone (trained) do them for you. Do the pills as soon as you are given the ok by the doctor. The pump is a great suggestion. Studies show the sooner you are proactive, the better the results tend to be.
Hello. I am the partner of someone with prostate cancer. He went for brachytherapy not prostate removal. But having read up quite a bit on prostate cancer, I like the uk prostate cancer community forum.
There are many stories on there of men that have gone down the removal route. Many go on to having things return to normal in that department, but it takes time, a year or so. Others never regain the use. The younger you are it seems the better.
From what I have read it is hard work, including using a pump several times a day. Not for sex, but to get the blood flow into it, for rehabilitation. Also medication, like cialis to help with the flow down there.
Wishing you all the best and I hope you are successful.
To Mark and All,
So far I did not have my prostatectomy but I am scheduled for surgery on November 2nd. Diagnosed with prostate Ca in August Gleason 7 (4+3). My question for all of you is: Did you guys regretted having surgery? I am terrified of surgical side effects as be incontinent and impotent for the rest of my life. Even being scheduled for surgery I am still fighting with my self thinking that I already made wrong decision.
I do not know what to do, proceeding with surgery or back up and do nothing while enjoying meaningful life.
I appreciate any response and please tell about your good and not so good experience about regaining continence and your sexual life back.
i don't mind hearing bad experience also.
God bless you all,
MK
Mk, I don't regret any thing. My Gleason was a 9, and I had my prostate taken out on the 16th of last month the only thing I'm worried about is down below that I'm able to perform again, hopefully soon...
Andrew,
what was your experience with urinary incontinence? How long it took you to regain it? I can't believe you have full urinary control after just 45 days.
if that is right than you are the luckiest person in the world.
i am only 51 and all this worry me to death.
Thanks for your response.
MK
Mk, it's only been 2 1/2 week since my operation . I don't have full urination control but it's getting much better...the healing process is going very well. my only concern is being able to perform in the near future... there is no activity down there....
Is your cancer isolated to the prostate and only in one or two areas?
It was only in one area....
Sorry Andrew, I meant to ask 3 MK that question.
MK Who is doing your surgery? There are some great doctors out there that have done thousands of prostatectomies. I live in Georgia and had Doctor Patel do mine in Celebration Florida. I was only there a week.
Do you research there is a lot of therapy you will need to do before and after surgery. In most cases if the cancer is contained to the prostrate the continence will not be an issue. Now the sex part is a different situation. I had my surgery 7 months ago and have no feeling down there. But as I have said my orgasms are a lot more instanced than before. I started injections that I have not been able to get right mix but working on it. I am 57 and I figure worst case I will get an implant.
At 51 why would you take the chance of leaving that cancer in you. If you go with the chemical treatment you will never have the removal option. You are doing the right thing.
Lol lol
Only one area.
Tibeeman,
my surgery will be with the doc who only performed about 300 robot assisted prostatectomy and that number includes his cases as a resident. He is very young and I doubt he has much of experience. I can not go out of my insurance group of providers and facilities. Very limited number of docs that are employed directly by the group. I have no coverage outside of that group.
to be honest, I don't know if I am risking more with surgery or with doing nothing?
i
I do not see light at the end of my tunnel.
Relax you will be fine. Just make sure your doctor gives you everything you need for recovery
Geoff,
could you please elaborate with your experience on incontinece and how bad it was? Did you do kegel excercise before surgery? How long ago did you have your prostate removed? What was your recovery experience?
I am 51 and scheduled for surgery on 11/2.
Thank you,
MK
Thank you for your kind response.
Could you please shed some lights on your recovery and how log it took you to regain continence? I would like to hear first hand experience not sugar coated answers from doctors. Doctors especially surgeons will never tell the truth to any question without sugar coated answers. Side effects per doctors are always very minimal and their percentage don't make sense.
MK