Hi I have just been diagnosed with oral lichen planus.
I have had a sore mouth for about six weeks now and have just seen my dentist and g.p.
I thought I would find out how mwny out there have this condition as I have never heard of it before.
Hi,
I was diagnosed in September 2009 with oral lichen planus. It's now May 2012 and it is much worst now and sadly after having a biopsy I now have lichen sclerous as well. I can't seem to keep it under control. I am now on a ciinamon free diet after testing positive in two seperate allergy patch testings and I am on week two of a 12 week Benzoate Free diet. Very early days and not seen any improvement as yet. I would like to now how you are. The Prof whom I am a patient of gives me very little imformation and my dentist is no help at all.
Hello my poor little Lichen sufferers! I need your help.
As I sit and cry tremendously it is not for me but for my best friend who has been diagnosed with this disease. She started having outbreaks at 16 and was getting them about once a year. However, we are 31 now and within the last 2 years she has been sick every 6 weeks. The rash is gets worse every time. Taking over her mouth, tongue, throat and down her esophagus. When she gets sick, she is only able to lay in bed for days or weeks at a time. She has been hospitalized several times because of dehydration because she cannot eat. She has been on several medications which include her having to get blood tests to ensure that her liver and kidneys are able to function while she is on it. The last few outbreaks have spread to her arms and hands. I am so worried for her doctors just keep trying these strong meds with little to no relief. My beautiful best friend is detriorating because she is constantly bed ridden and having a hard time caring for her 11 year old daughter. Is there something I can do. Maybe its the wrong diagnosis?
HELP!!
I was daignosed with Oral Lichen Planus 2 years ago and I was discharged from the hospital consultant being told there was nothing else they could do for me.
Following on from this prognosis, I went on a strict gluten free diet and eventually the sores cleared up and now they only reappear occasionally when I inadvertently eat some gluten in error.
I thought this was worth sharing with any sufferers out there.
I was daignosed with Oral Lichen Planus 2 years ago and I was discharged from the hospital consultant being told there was nothing else they could do for me.
Following on from this prognosis, I went on a strict gluten free diet and eventually the sores cleared up and now they only reappear occasionally when I inadvertently eat some gluten in error.
I thought this was worth sharing with any sufferers out there.
oral lichen planus is a inflamatory disease.this disease usually show in women about 50-60 th..the etiologi is unknown, but some of the reaserch show that OLP caused because of stress, allergy reaction from dentamaterial, or allergy from medicine such as anti hipertension, anti malarria etc. OLP can be symtomatic and asymtomatic..my mom have the asymtomatic and my teacher ask my mom to consume vit.A 20.000iu for 2 weeks and reduce her stress. but i read about the symtomatic to use corticosteroid.i wish it'll help.
Hello,
I absolutely agree Lichen Planus is related to Candida. Both my daughter and I were recently diagnosed with LP, and also determined to have candida overgrowth in our bodies due to exposure from a water leak in the laundry room.
The leak was fixed, mold cleaned - but it now in the HVAC system. So the expense continues. The oral blisters and sores and round lesions on face and nose first occured occurred during the period I didn't know about the water leak and mold growth in the basement. Now they occur whenever I turn on heat or AC.
I suggest anyone with the disease, take a close look at your workplace or environment. Any mold needs to be properly removed (borax in warm water is one of the best options to kill it permanently and then it needs to be scrubbed and vacuumed with a some type of HEPA system - bleach does will not kill it).
Also, suggest you have your doctor check your candida levels. It has yet to be proven, but I know they are related.
Curious question to sufferers - please respond to this if you have found any mold or water damage in your home, or if you get tested for candida overgrowth in your body.
Thank you and good luck to all!
Todd
I was also diagnosed with OLP about 6 months ago after a visit to my dentist for a check up. I was referred to a maxilo facial clinic where they took a biopsy, which turned out negative. I was given a strong mouth numbing mouthwash & told to get on with it. When it didn't clear up I went back & was given Betamethasone tablets, which had a mild effect but hasn't cleared it up. I am struggling with a number of problems & this was unexpected, especially the "we can't do anything for you" diagnosis. Lots of my favourite food like curry, chilli, anything spicy. My tongue is so swollen I have difficulties swallowing like you all do. I have big lumps on my tongue & the metalic taste. Nothing tastes the way it used to.
Not sure if this will help or not but here is my situation. I was diagnosed with LP 8 years ago and it is an uphill battle. I am fortunate that I do not have the oral variety but here is what I have found helps keep it under control for me. I started doing this regimen about 6 weeks ago and it has made a huge difference in controlling my LP.
I drink a lot of coffee and was using white sugar. Stopped using white sugar and switched to honey.
I try my best to avoid any vegetables that are connected to the nightshade family. So that means instead of ordinary potatoes switch to sweet potatoes(yams), they are really good with honey on them. No peppers, cut way down on tomatoes, no eggplant(no problem). Try and avoid the nightshade vege's.
I have also been sensitive to pasta, so I am no longer eating any pastas and have minimized the amount of grains that I eat.
However one of the biggest differences that has had a huge impact on the LP is the fact that I started taking coconut oil in pill form. I am currently taking 4 pills a day from the health food store and my skin, nails and the little hair I have left has never been in such good shape. The places where I have had the open sores from LP have smoothed over and oh it is so nice to not be constantly scratching. I still have the LP and I still get the itchies but they are so much much less that it is almost unbelievable.
When you start taking the coconut oil you will start noticing a difference after about 3 days. You will notice that your lips are really soft, you no longer need to put lip balm on because they are always moisturized. After about a week your entire sking will start to soften and you will notce the patches you have scratched are starting to flatten out.
Please try this and let me know if it is helpful or not. All I can report is that it sure helped me. By the way coconut oil is recognized as an all natural antibitioc, antifungal, and antiprarasitc oil.
I had LP years ago and bought toothpaste made from or containing aloe Vera, it cleared it up for good.
After taking a high dose of steroid for 25 days which didn't seem to help I have been told now that they would like me to take 200mg Hydroxychloroguine for my oral lichen planus.
I was wondering if any one else has taken this medication and did it work?
Hi everybody, I was diagnosed with lichen planus over twenty years ago, and I was fortunate enough to find something that works for me, clears it up every time...its Homeopathy, and its called Arsenicum Album, every single time I have had a flare of lichen planus I take this treatment and it works...so I definitely urge people to give it a go....but do remember that we are all different and whilst it works for me it may not work for everyone..also recently, and for the first time, this problem moved down to my vagina, which believe me is not pleasant, and it cleared it up there as well.
I have been diagnosed with Lichen Planus in the vulva area including the vagina. I am having a horrible time. I was given a presctiption with steroid as a topical medication. Can you apply the Arsenicum Album to this area. I also have Hashimoto disease, hypothroid. I've been looking into improving my ammune system. Have you ever tried probiotics?
Hi Sandy, I take Ultimate care 50bill probotics, twice daily, you can get these on Amazon..the Arsenicum Album you take either in drops or small tablets, they work well for me with my oral lichen planus, and def helped below as well, so it might be worth trying too.
A medical study by Petruzzi found 5 out of 10 with OLP have HCV hepatitis and a quick web search suggests it is associates. A leading liver professor at Royal London (Prf Foster) told me OLP usually goes if HCV virus is cleared. Maybe worth having test for hep c just to eliminate that connection
I went gluten-free for several months and it didn't help at all. I guess we're all different. Tried paleo, veganism, etc., to no avail.
Recently diagnosed too, waiting for dental hospital appointment. Don't know if it's just my imagination but have found a certain new chewy sweet, lemon or orange seems to help! Not sure why but think they may help with keeping mouth moist. I bought them just to try but a few days later noticed my mouth getting uncomfortable which settled again after I got more! No cure but certainly help. Plan to stop the sweeties and see what happens. By the way I feel that taking NSAIDs for my psoriatic arthritis was the trigger! Stopped that too.
Hi
Do you take arsen alb just during a flare up or all the time? Glad to hear it works for you, hoping it will for me too.
Thanks
Hi, I only use it during a flare, and usually three times a day for a week to ten days...I wouldnt recommend using it when not in a flare.
I have posted before that I believe Candida which causes oral and vaginal thrush is linked to oral lichen planus....obviously I am not a doctor, but before using the Arsen alb I would treat yourself to ensure you are free of this or the homeopathy will likely not work as well...Recently when I had OLP really bad I used Nystatin oral treatment for thrush and Diflucan for vaginal thrush, then and only then did I use the Homeopathy treatment...actually to be honest I was surprised I did not get many people commenting on my old post, when here was one person who had it really bad, and got rid of it...I know it will flare up again at some point, but I know I can deal with it, and most people havnt any idea how to deal with this serious problem, and I have had it for over thirty years.
I was diagnosed 4 years back and I tried doctors, surgeons but all was temporarily worked....
I found the solution my self to this diesease and its working for me... it appears after 1 year but its not teasing me any more..