I have suffered bouts of cystitis since I was 16 (I’m now 32). More often the test results would show negative, but I would still be treated with antibiotics. I don’t think there is one antibiotic that I have never had. Approx 18 months ago – and whilst on an alternating prophylaxis treatment of one antibiotic per day I had an operation called a cystoscopy with urethral dilatation.
I have now been in chronic pain – urethral and supra-pubic from the date of this operation until now. I believe that the cystoscopy actually made my symptoms worse.
I went on holiday in October to the Caribbean and ended up in hospital with further pain which turned out to be a simple cystitis infection. £2,000 later this infection makes the urethral pain and suprapubic pain feel immense. I felt as though my whole body was on fire.
When I returned to England, my consultant put me straight away on an alpha-blocker and I was diagnosed with urethral stricture. Within 2 weeks – (to the day) the pain disappeared. I couldn’t believe it! Something that worked. Something other than ibuprofen and codeine.
I still take an anti biotic following intercourse for the low lying bacteria that my body does not resist, but the alpha blocker has been a god send.
My Urologist now wants to do an operation on my called an Otis Urethrotomy. I have heard mixed reports about this operations effects and indeed results. I have been told there is a risk that I may be left incontinent or have a life time of self catheterizing. Something which I don’t want to trade in – especially if the alpha blocker is working.
Does anyone have any comments on this? Also – Does anyone know – will the alpha blocker soon stop working? Will the stricture get any worse?