I started having pain in my lower left side in October of last year, it wasnt too bad so I didnt go to the doctors until january as I thought it may go away. I suspected I may have a Cyst and told the doctor and he refered me for a scan. I had a scan in mid Feb and I was diagnosed with a Dermoid Ovarian Cyst, it was about 3.5cm. I had another scan the other day and it has grown to 5cm. I have been refered to a gynocologist and been told that its going to take 20 weeks. I went back to the doctors because its causing me a lot of pain, but he said just to take pain killers (which doesnt really help) Iv been getting really really tired lately and doctor thinks that it could be related to the cyst.
The pain is getting me down, today I was in agony, I had a really sharp pain and I couldnt move, I was in tears. Im not going to be seen for another 4 months at least and I dont know what to do! Im worried its going to grow bigger.
Has anyone else been through similar experiences? How can I relieve the pain, Iv tired pain killers and warm baths but nothing works. Im only little and worried about how big the cyst is going to get, how quickly do these things grow? Mine got 1.5cm bigger in 5 weeks, so Im hoping it might stop for a bit!
You could be virtually pain free and able to go about your normal everyday business if your GP chose to treat you correctly,, you have a proven painful medical condition and for whatever reason your GP is causing you needless suffering,, when his / her job is supposed to be the opposite,, s / he should be ashamed of themselves but somehow I doubt this individual will be
I'm a very similar position at the moment with a painful cyst. Can I ask you how long it took for you to get a transvagalscan after your doctors appointment. I've been wait 4 weeks for a scan (and still waiting). I have been in pain everyday.
Hi i am 54yrs old had various scans that show i have a dermoid ovary cyst,3inches,i have now been in pain about 5months off and on,been admitted to hospital,given pain killers and sent home,my tummy looks like im 7months pregnant,i went to see my gynecologist ,he said dermoid cysts do not have nerves,NO but they can push other organs,and sent me home for 4weeks saying its possible ibs,(he was going on holiday ,hope he had fun grr,,going to see him monday hm will see?what he says ill let you know.i am still in lots pain ,and swollen tummy,i have slept in my recliner for months now as cannot sleep in my bed ,because of the pain,please dont let them fob us off,we after all are the sufferers,,,,,,ill report back ,ps heat pad helps and pain killers
hi just to let you know whats happening,well im going in hospital on monday 12th march ,having dermoid and both ovaries removed,i told the sugeon just take it out had enough of months of pain,,,he agreed,,,,got to have bikini line cut, ill let you know of the outcome,hes even going to take pic of it for me yuk lol fight on girls you will get it done.let u know on my return ,
I'm 19, I went to the doctors over a year ago, with really bad bloating, dodgy periods and pain during sex. I was given a pregnancy test, which was negative and sent away. The pain got worse and I went back just over a month ago. I got diagnosed with an ovarian cyst. Measuring 13x8cm. Pretty big! I've been for loads of blood tests and examinations I have an MRI booked in and my operation soon after. I have to have a laparoscopy and have a Fallopian tube and an ovary removed. I'm so scared!
hi all just to let you know i had op,came home today,resting .well ,after the op which he done yesterday,My surgeon came to see me this am and said i could go home as i was do ok,he also said he was so sorry.....but he discovered my dermoid cyst was twisted 3 and half times hidden below my urterus,so you see the scan didnt show it were twisted,as this can ruptor,(not good)he said how sorry he was saying it was ibs causing this pain,,,,,,,i know my body......i knew my pain was this dermoid not IBS.....anyway its been removed along with my ovaries,,,,yes a bit painful to move about ,be 12 weeks to recover,but NOW theres a light at the tunnel,i can only get better ,,,,,have staples removed on monday,ill let you know of my recovery.reply to abcos93-----it be fine go for it girl,it will be fine,staff were fantastic towards me,dont be scared get rid of it tc,(GIRLS DONT SIT BACK KEEP ON AND YOUR BE LISTERNED TO IN THE END,,,I WAS,)tc all
Hi, I too have been diagnosed with a dermoid cyst. I had a gynae appointment yesterday, where all that happened was a blood test & told to come back in four weeks. I am disappointed I wasn't put on the waiting list for surgery yet as I've been in constant pain since the beginning of February with three bouts of very severe pain. I also feel like my mood is really low & wonder if other sufferers have experienced this?
I too had extremely severe pain & presented myself to the out of hours GP & ended up in A&E as the pain was on my right side & they couldnt be sure it wasnt appendicitis. I had loads of blood tests & was admitted to a ward & the next morning they were not convinced it was appendicitis so i was sent for an ultrasound which was extremely painful as they were pushing down hard to see things. It transpired that my huge cyst on my ovary had ruptured & dumped its contents into my abdomen & i had a laparoscopy & they removed remains of the cyst & the fluid & washed out my abdomen. My bellybutton scar hurts the worst & i cant bear to have clothing on it.
I emailed my consultant following my outpatient appointment and he agreed i should be put straight on the list for surgery.I had my laparoscopic cystectomy on Monday & know what you mean about the pain, I can't
bear clothing touching the scars either. So relieved to be rid of the cyst though.
hello all," wow" im almost back to normal,been 9weeks since i had the nasty dermoid tumor removed,scar is now shrunk to 7inches from 10inches,doing great,tummys going down to,another 3 weeks and ill be exercising,cant wait,still got be careful lifting etc but feel wonderful,i would have have been left in agony if i had not persisted in phoning my gyney,all i can say is thanks to my doctor gp i mean,and me phoning nonstop,i was told it was ibs yeah right,,,,,i had the nasty gremlin removed all 3inches of it yuk gone ye haw,DONT GIVE UP GIRLS ,SPEAK UP,ITS YOUR BODY AFTER ALL,GODBLESS ALL AND GET BETTER SOON ,mags
Mags, I am booked in for surgery in July to remove both ovaries. They are not doing keyhole so I have been told the recovery will be longer. You have said 9 weeks recovery, which type of surgery did you have? I have booked 8 weeks off work but would be interested in reality how long it might actually take. I have two dermoid cysts which are both 7.5 cm. Is the surgery ok and how long did it take to stop being really sore. Also were you given the option of a full hysterectomy? I'm actually over 50 and have had any children so this option was given to me but I think I will just go with the ovaries. I think the thing Im dreading most is the catheter of all things? Can anyone tell me how this feels. Thanks
Hi, can anyone advice me please. I am 53 and have 2 large dermoid ovarian cysts. I am booked in for surgery 2nd July for an operation. They are not doing keyhole in-case the cysts rupture. During my last consultation I was asked to consider whether I want to go for a full Hysterectomy. I didn't get the sense they thought I had cancer or anything sinister as they said it was entirely my choice. I have to make a decision by the middle of next week when I attend my pre-op. I am post menopausal so having children is not an issue. Has anyone else been in this situation and any advice about whether I should have everything out or just the ovaries would be very welcome. Thanks
hi im 41 i started having stomach pains the end of january and did not go to the doctor i thaught it would go away, since going to my doctor in april i was sent for 3 ultrasounds where they found a large ovarian cyst measures 10-12 cms i opted to go to the spire hospital which is private but you can still go there this was the best decision iv ever made i was seen the same week i had my surgery the 1st july 2013 please dont sit and suffer with the pain of this keep at the doctor im recovering at home i was only in hospital 2 days had a catheter in that is not a problem getting that out u can hardly feel it soo dont worry . i was also always tired before but time will tell when im better . after you hav your surgery i took ibrufen to get swelling down with cocodamol was the best for me anyway . my cyst has been sent away for tests i will check back in with you and let you know when it comes back . they cannot do these operations by keyhole because of the size they are . i hope my experience has helped somone thank you and good luck to you all xx
Hello everyone, I am 53 years old and I went to the GP in May this year because of waterworks problems; having to get up in the night to spend a penny which is out of character for me! She sent me for ultrasound tests and they found a 3cm dermoid cyst on my right ovary. I had the CA125 blood test which was normal (thank goodness!) I was booked in for a follow up ultrasound to check for any change in July. The cyst was pretty much the same but they also found a 4cm fibroid growing on the outside of the womb (I think this is called a pendunculated fibroid). I saw the consultant this week and she said that at my age they would need to remove the ovary with the cyst but to remove the fibroid would require a full hysterectomy because of where it is. I have constant dull pain, feel exhausted, have lower backache and in addition to the waterworks problem have persistent upset stomach problems. The GP and consultant both feel that the cyst and fibroid are not large enough to cause symptoms but in view of my age and the fact that neither problem was present when I had an ultrasound in 2010 it would be advisable to get rid of them. I am convinced that my symptoms are caused by the dermoid cyst and the fibroid but don't relish the prospect of surgery if it can be avoided. I would really appreciate your thoughts and opinions please xx
Hi Shaunagh1, I had exactly the same symptoms you are describing. Also, just like you, a fibroid was found when they did my ultrasound but it was very small & did not need to be removed. I had my dermoid cyst
removed laparoscopically in May & all the symptoms disappeared. I don't think I fully appreciated how ill
the dermoid had made me until it was gone & if it is affecting you in the same way I wouldn't hesitate to have
Hi Karen, I am having the dermoid and right ovary removed but they are leaving the fibroid alone for the time being. My consultant has said that she will probably also remove the left ovary as both are often affected. I am a little concerned about how this will affect me as I have read that even post menopause the ovaries do still produce a small amount of oestrogen which in turns helps protect against heart disease. The surgery is planned to be carried out laparoscopically so I am hoping for a quick recovery! I would be interested to know how long it took you to get over your surgery. I have had two previous c-sections and have a lot of scar tissue so I am hoping that this won't be a problem with regard to laparoscopic surgery. Many thanks for responding to my comment, so pleased you now feel so much better; I am hoping for a similar outcome too! xx
Hi Shaunagh, I was off work for a month - originally signed off for three weeks but I took an extra week as I
was still quite tired & a bit sore (sitting very upright ie in an office chair was uncomfortable). I imagine you
would need a longer recovery period if you are having the ovaries removed too. I do think I took longer to
recover as I was pretty run down prior to the op due to the bouts of severe abdo pain & also getting other
random ailments such as mastitis the week before op!
I've got three tiny scars from the laparapscopy - one in my navel, one tiny one below my left hip & one slightly larger incision of about 2cm (which is the one they remove the cyst through) just below my bikini line. They healed really well.
I wonder if your consultant is just talking about removing both ovaries just to be on the safe side - they said to me they may have to remove my ovary if the cyst was interwoven with it, but this turned out not to be the
case - they like to warn you in advance just in case the op turns out to be more complicated than a simple
cyst removal. Perhaps when they operate & get a good look at both ovaries they may not need to remove the left one.
Hoping for Thursday week as we have private insurance; at least I won't have too long to think about it! After talking to the consultant I got the impression that removing both ovaries is fairly routine. She said that ovarian dermoids often grow in pairs so it is probably safest to remove both. To be honest, I think I would prefer to keep one if it's at all possible but I trust her to make the right decision. I don't like uncertainty and I would prefer to know which bits of me I am going to wake up without, before I go to theatre! I work in school so the timing isn't great; having had six weeks off already for the holiday it likes like I may be getting an extra long summer holiday! How long was it before you were able to drive, Karen and was the post-operative pain easy to control with meds? x
I have an MRI booked in and my operation soon after. I have to have a laparoscopy and have a Fallopian tube and an ovary removed. I'm so scared!