How those words ring so true and how fibro lets you know who is boss? I keep telling my self to pace my self but myself never listens, then fibro puts me back in my place onwards upwards every one battle on altogeather gentle hugs to maggers and you all x
You me both maggers trouble is we are the ones that suffer after yet we still keep doing it stubborn to the core you me Hi hate bossy boots fibro. take care gentle hug
I've been very lucky and I've been well for about six weeks, never completely pain free but focused and energised it's been amazing, but yesterday evening a very black heavy cloud creeped over my shoulder and pushed me to the floor my husband was there to pick me up thank goodness, I slept from 7.30 and dragged my body out of bed this morning at 8.30 still as tiered as the moment my head touched my pillow, cringing with pain I dragged my useless body out of bed,
I'm working a late shift this afternoon but need to leave by 11.30 HOW I don't know, auto pilot again for me, fingers crossed it's a quiet shift,
Why don't we ever learn it's been nearly 15 years, I have a degree and good education, I question my stupidity on time,
I wonder how long this attack will last? Who knows,
I hope all my fellow fibro friends are feeling well today, if not gentle hugs to you all
3 years ago I went into remission for a short time then it came back with vengence I was in bed for 8 months and carers in having to look after me not nice having to rely on others feeling useless helpless and vunerable. its happened 3 x like that last time was last year had to have carers in again ive got everything crossed it wount happen again but fibro is the boss not me feeling for you having to go to work hope your shift is quiet for you. take care gentle hugs
Dont criticise yourself Maggers - the sprite wants you to give up and stop living your life in an enjoyable way. We cant give in to it, we have to at least try to do the things we want when we have the ability to do them. That horrible sprite will sneak up on us even when we don't do too much, so as the saying goes, might as well be hung for a sheep as for a lamb eh? Or more bluntly - you're fxxxx if you do and you're fxxxx if you don't - gotta laugh eh.
Hi loxie totaly agree with what youve said to maggers, we cant win really what ever we do or dont do. onwards upwards go forh we go. hope both have alovely weekend and not toooo much pain. x
Me too. I had to drag myself work this afternoon. I suffered terrible fog and had to keep asking people to repeat things as the brain just would not absorb a single thing. Hopefully tomorrow will be easier - I live in hope. Hope your shift was nice and quiet.
Maggers your lovely well written account of your 'Reprieve, or remission' is very much on par with my own. Mine do not happen very often at all. But in saying that I had one day very much reflecting the very same activities as yours.. I have 3 dogs here. One mine, the other two I am minding for my cousin. I am looking after their house to whilst they are away overseas. The thing to remember is 'there is no way to truly to pace one's self, as every day is different and we face those days differently according to the body'.... We can be kind to ourselves and simply 'not do today' and still 'BAM' got ya... lol.... It is a real pain, yes I swear at myself a lot some days, I swear at things I fumble with, things I cannot open or turn. Steps I cannot walk up, and when I stumble. Then there are the times I swear 'at it' ...haha another 'Release Valve'...
Now here is a serious topic.. I have had the opportunity to try sampling a couple of puffs of real Green (weed, whackybacky whatever one calls it), on a couple of occasions in the past to see if there was in fact any truth in what they say. I can honestly say, 'yes it worked for me'... I lost all my body aches and my body pains. It freed me up. I was still a little stiff but NO pain. I tried it in the later evening so I slept really well to. However I must say I laughed my socks off, more laughing than I have laughed in years ... must have been the good company I shared. I have thought about this as a pain medication and look at it with mix thoughts... I haven't tried any since, but I possibly would if I could, but I wouldn't smoke it, I'd eat it I think. I don't have good lungs for that sort of thing.
Have any other folk in here had the experience of using it for pain medication??
morning maggers how are you today?. I had 1hr sleep Im like a zombie this morning. on the upside a part from numbness tingling in my right leg Im pain free at the moment which is great as normally Im never pain free. charlie cant settle his wounds are irritating him. I had him layed in my arms last night trying to settle him. wish I could help him? hope you have a lovely day take care
hope your ok im feeling better after yesterdays scare i have been told its more likely to be costocondritis as its commen in people with fibro its scary and very hard to handle that kind of pain but its easing of now just have to take it easier than i have been but you see i dont know what my limits are yet so i had better not push my luck
Hi Derek it is very scary when it happens as it mimics a heart attack. I was rushed into hospital and kept in over night. Costocondritis is common in people with fibro. its hard trying to learn to pace ourselves. we think oh we are feeling not too bad, I think I will hoover dust etc then bam your flat on your back. so now I do a tiny bit each day hoover 1 day wash another try to do it like that. But If I get up dont feel like doing anything then I dont.I just go with what my body is telling me. fibro lets you know when youve over stepped the mark. take care
Hi derek I have been lucky today Ive actually had a pain free day,except for numbness pins needles in left foot leg and hands fingers. I am struggling to use my hands especially for eating holding knife fork, grasping I got upset last night as I was struggling to hold knife fork more food was going down me than in my mouth.? gentle hug
me to at last its eased but my hands are the same as yours the only thing annoying me at the moment is that lady telling people its ok to use ganja when its not and saying to me a doctor told her its safer than paracetomol well if that was the case then why is ganja illegal when paracetomol is not so i cant stress enough people dont listen and dont take ganja
i will and thanks its horrible and scary but i will never result to using ganja or anyother illegal substance people should not tell people to take anything if there not that persons doctor cause it may be ok for someone but wont be for someone else in fact it could do them more harm that good always take what your own doctor tells you dont listen to the women who said its safe when its not promiss me kaz you have been a dear friend to me and i dont want you to listen to her