Hello folks, you have no idea how your contribution hear has been inspiring and exciting. l am planning to go for PAE and would like to briefly here from folks who have done this PAE for well over 5 years and how it's working out for them after all these years. The main PAE thread had become so long wading through to get this information is very tedious. thanks to all.
My PAE was easy, but only about 10-20% effective, and lasted about a year. Turns out I had a median lobe issue so results weren’t very good, unfortunately. Today the IR doctors are much more aware of this median lobe issue.
Hope all goes well for you…
Tom
After good initial reports recently we have been getting news of posters needing second and third PAE’s.
Are you in the UK or USA ?
I’m in Canada.
Its been almost 5 years PSA is staring to rise again I am almost positive I will have to do it again soon . Other wise I would say it is a positive experience for me . Good luck
You will be taking a chance with a procedure that has had too many failures and too many repeats.
I just completed a PAE at St. Louis Un. hospital in St. Louis, MO. Mine had to be done in two procedures - the first attempt, through the wrist, could not embolize the left side. The second attempt was in the femoral artery and succeeded in embolizing the left. That was completed 10 days ago. I will report on progress. I should note that I had a urolift last October, and it was a complete failure. I was in serious pain for 4 months, and the pain only went away when I had the first PAE at the end of May. The urolift did not interfere with the procedure. I have been told that I should start to see improvements in a month or so.
from many of the posts i’ve read , looks like pae is not that bad and there seem to be a significant number of people who had good results . I guess some may have to go for 2 or 3 procedures for it to work for them, may be due to the nature of the procedure and our prostate.
hope it works out for you this time around
Lester900 , are the failures that much?
Have you asked you radiologist his success rate?
Forums like this always attract the people with problems.
It is best to go with procedures that have stood the test of time but nothing is guaranteed because no two individuals are alike.
Hi, Derek et al,
I have never undergone a PAE procedure but, many, many, moons ago I was involved in the design of self-actuated prosthetic limbs and learnt much. One of the things that stands out in my mind concerns how the human body realizes when an injury interferes with nerve activity or
blood flow and responds by attempting to repair the damage.
Is this not what might be happening with our PAEs?
Just a thought, but anyone with answers please put me out of my misery! Many thanks, alan86734.
Hi. Sorry my reply isn’t after 5 years later but maybe my experience will be of a little interest. i had pae in April. i was up 8 times a night before and am now up 4 times. the process took 10 minutes and with very little pain. it was done at 10am and was home by 3pm. the blood and clot passing was soon over as urine was running clear by 5pm.
the procedure worked perfectly (3 clips). the reason i have not had a satisfactory result is due to my bladder losing elasticity by pushing urine past constricted urethra for 3/4 years prior.
i think the main determinant of a good outcome is the bladder state. if you ask the urologist to check it when doing the cystoscopy this should provide a pointer as to the outcome. i alao think this woukd apply to any of the other prostate procedures.
Geoffrey
Geoffrey,
If your procedure only took 10 minutes and you had 3 clips this is describing a Urolift, not a PAE. A PAE takes a couple of hours and there are no clips. It’s done by an Interventional Radiologist not a urologist. I am a bit confused by your post.
Tom
Hi Martass,
I had mine done in April this year and had my follow up appointment with IR yesterday. When the Doc reached out to shake my hand, I instead embraced him with a HUGE HUG! I proceeded to express my gratitude for changing my life!
Not 5 years in, only 3 months in, if my symptoms came back to PRE-PAE I would be very disappointed , but I would still be grateful for the past 3 months. I have gotten a chance to feel NORMAL again! 3 months of normal VS 5 years of agony.
I asked about long term, which he referred to as durability. He said he has had good results but could not guarantee anything. He told me my outlook for the future looks good.
I am a young 54 and very fit with an active lifestyle, this procedure appears to have been tailor made for me!
Good Luck!
Hi Bobcats,
I’m really happy for you it’s working well at this point.
Hope it continues like that.
Did you ask the doctor what some of the causes of failures are ?
For something to begin working so well and start failing down the road. Five years duration wouldn’t have been that baf
Can you say where it was done and the doctor, or is that against the terms of service for the board?
I’d also like to hear reports from individuals who had PAE years ago, but I suspect they would only still be on this forum if it wasn’t working so well. I had mine two weeks ago and my life is already better than it’s been for the past year. I stopped taking Tamsulosin already and am very happy. Hoping for continued improvement over the coming weeks. -Dale
good to hear dale, i hope it works all the way out.
At this point it looks to me that pae is being established as a good procedure for prostate enlargement. the issue mow is it’s durability .